Well done, @JohnTheJack. Appalling that you should have had to go through such a battle.
From the other thread:
So how about:
The WIGWAM Study: Worldwide Investigation of Genome-Wide Association in ME/CFS
I've set up a thread for suggesting names:
What it says on the tin! Please suggest your names here about this project.
I like it!
Should we start a thread for name suggestions for the project (so that this thread can focus on the science)?
I think this is a hugely exciting project. If we'd had this done twenty years ago, who knows where we'd be now? This basic science is exactly what...
I was wishing I'd asked where they get their FM for the FMT in the clinical trials! From healthy relatives? From other people, who've been...
Some time ago, I think I read that the Quadram research was designed to produce a blood test to measure whether 'leaky gut' was a genuine thing,...
Thanks! I was wondering if it was a Systrom thing, but seem to think it was something else.
Is this the only paper indicating that OI in ME isn't due to deconditioning that has come out within the past year? I seem to remember something...
Good idea to get MPs involved, @dave30th.
Thanks - that's very interesting. I don't think I've had all of that done.
What would that look like? Wondering if I've ever had one.
Really?! That's a big step forward, and I'm really pleased to hear that IiME have taken it.
Looking forward to seeing the videos! I seem to...
Thanks Andy - do you mean they'll be posting a link to buy the DVD (rather than posting the video footage)?
Their usual thing is to allow...
Does anyone know if there's a DVD of the conference to order? I had a look at the IiME website but couldn't find anything.
Actually, this is reminding that I did go into a major remission but it wasn't instantaneous with a specific treatment.
Actually, I've never experienced that in over 30 years of being ill - certainly not instantaneously, if that's what the traction test is doing....
Thanks for explaining - I'd misunderstood your concern.
That sounds like a way forward.
I'm mostly absent from the forum now but just swinging by to congratulate you @JenB! This is fantastic news. I'm so happy for you. :balloons:
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