I've taken many 'big promise' supplements in the past, but the only ones that I felt helped were the ones I was deficient in.
Lying down with my head propped up looking at my tablet caused neck pain for 2.5 years back in 2005.
FIR sauna helped it disappear after 2 sessions.
@Alvin do experience delayed PEM? Where you can feel baseline after activity and PEM only hits 16+hrs later?
The PEM that starts to build...
Is it relieved after lying down for a while, or does it take 48+hrs to feel back to your baseline?
I seem to recall an Italian doctor was doing surgery 'unblocking' veins restricting blood flow to the brain on MS pts. He claimed a large...
Very interesting! I had a friend with FM who also told me the same thing! She suffered from depression.
I just read your question. I had low ferritin since the onset of ME (20+ years), but after menopause it has gone up at 98.
I think for me...
The ME doctor I saw in 1992 recommended Efamol for his patients, so I took it for over a year with no positive or negative effects.
At present PEM is subjective, we don't understand the physiopathology/mechanism. The autonomic system is affected for some but not all...
For Jeff it was after a minor dental procedure that his neck symptoms began.
I'm curious as to how taking Valcyte for years is no longer needed for a 'persistent viral infection' after CCI surgery? My conclusion is...
I hope this leads to investigating autonomic dysfunction for ppl diagnosed with ME.
The warning of feeling unwell precedes fatigability and I'm not even sure it's fatigue.
Haven't they done studies with MRI's that showed a lack of blood flow for ppl with depression?
Me on a good day.
In 1992 the ME doc I saw told me "do nothing, even when you feel recovered", but I didn't listen because he didn't explain why
I didn't experience PEM until I started running again 7 yrs into the illness when I felt almost 'recovered'.
@Sly Saint she's 93! Wow! I'm worried about my telomeres!
I look like a mature Bond girl.
Dr. Cheney's III Phases of ME
My best friend passed away in 2016 from complications of ME. He was not bedbound, tube feed etc but had severe...
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