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  1. Dolphin
    Thread

    NHS is accused of 'endorsing quackery' after posting job ad for a Japanese energy healer who will treat cancer patients alongside chemo

    NHS is accused of 'endorsing quackery' after posting job ad for a Japanese energy healer who will treat cancer patients alongside chemo...
    Thread by: Dolphin, Aug 17, 2022 at 2:00 PM, 1 replies, in forum: Other health news and research
  2. Dolphin
    Post

    Long Covid in the media and social media 2022

    This led to this article in a national newspaper in Ireland: https://www.irishexaminer.com/news/arid-40940651.html
    Post by: Dolphin, Aug 17, 2022 at 12:46 AM in forum: Long Covid news
  3. Dolphin
    Post

    IACFSME 2022 Virtual Medical Conference: Day 2 Presentations: 28 July (9 am to 5 pm EDT)

    it would be interesting to see the recruitment material to see what biasing effect if any it might have had on recruitment.
    Post by: Dolphin, Aug 16, 2022 at 3:09 PM in forum: ME/CFS research news
  4. Dolphin
    Post

    New Zealand: 2022 Petition for the NZ government to recognise ME/CFS as a disability - deadline 29 August 2022 (people living outside NZ can sign)

    I’m grateful to anyone who puts themselves forward for a media interview. But in the video clip, the wording seemed to give the impression the...
    Post by: Dolphin, Aug 11, 2022 in forum: Petitions
  5. Dolphin
    Post

    Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in Australian primary care patients: only part of the story?, 2022, Orji et

    The regular attenders’ thing would have excluded me for many years. But when my GP retired and another GP practice got her patients, the new...
    Post by: Dolphin, Aug 10, 2022 in forum: ME/CFS research
  6. Dolphin
    Post

    Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in Australian primary care patients: only part of the story?, 2022, Orji et

    The peer review history is here: https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-022-13929-9/peer-review Sometimes this can be...
    Post by: Dolphin, Aug 10, 2022 in forum: ME/CFS research
  7. Dolphin
    Post

    Long Covid in the media and social media 2022

    NIH tweet for what it is worth:
    Post by: Dolphin, Aug 3, 2022 in forum: Long Covid news
  8. Dolphin
    Post

    Long Covid in the media and social media 2022

    Long covid symptoms will be permanent for for many, says study "Loss of smell and taste adversely affects quality of life by depriving those...
    Post by: Dolphin, Aug 2, 2022 in forum: Long Covid news
  9. Dolphin
    Post

    Action for ME's administration and how that affects its views about treatment

    The ICC weren’t created/published when it was being done.
    Post by: Dolphin, Aug 1, 2022 in forum: General ME/CFS news
  10. Dolphin
    Post

    What major medical advances have been made in the past 5 years?

    Not sure of timeline but the efficacy and widespread access to Pre-Exposure Prophylaxis (PrEP) for HIV seems like a breakthrough.
    Post by: Dolphin, Jul 31, 2022 in forum: Other health news and research
  11. Dolphin
    Post

    What major medical advances have been made in the past 5 years?

    I got the impression the treatment of Hepatitis C is a big breakthrough. Don’t have any in-depth knowledge though.
    Post by: Dolphin, Jul 30, 2022 in forum: Other health news and research
  12. Dolphin
    Post

    Action for ME's administration and how that affects its views about treatment

    It led to studies like this: Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated...
    Post by: Dolphin, Jul 29, 2022 in forum: General ME/CFS news
  13. Dolphin
    Post

    A journal for Myalgic Encephalomyelitis to provide a space for ME research to be published?

    If I recall correctly, the IACFS/ME have to subsidise it. Previously there was the Journal of Chronic Fatigue Syndrome. It wasn’t PubMed-listed....
    Post by: Dolphin, Jul 29, 2022 in forum: General ME/CFS news
  14. Dolphin
    Post

    Epstein-Barr Virus and the Origin of Myalgic Encephalomyelitis or Chronic Fatigue Syndrome, 2021, Manuel Ruiz-Pablos et al.

    Here's a Twitter thread on this: ETA: Actually this is for his new paper. I might leave as they seem related.
    Post by: Dolphin, Jul 26, 2022 in forum: ME/CFS research
  15. Dolphin
    Post

    An online survey of pelvic congestion support group members regarding comorbid symptoms and syndromes, 2022, Smith et al

    For what it is worth, the lead author has posted around 10 tweet replies like this in reply to ME/CFS messages today: He also wrote this:
    Post by: Dolphin, Jul 23, 2022 in forum: 'Conditions related to ME/CFS' news and research
  16. Dolphin
    Post

    ME Research UK: Funding open call, 2022 onwards

    By the way, if one puts a username at the very start of a tweet, it won’t tend to show up in other people’s Twitter feeds (unless retweeted). It...
    Post by: Dolphin, Jul 22, 2022 in forum: ME/CFS research news
  17. Dolphin
    Post

    Human enteroviral infection in fibromyalgia: a case-control blinded study, 2022, Armin Schwarzbach et al

    I should probably have included that I think this lab in Germany is the primary lab people in Ireland use when unhappy with conventional testing...
    Post by: Dolphin, Jul 21, 2022 in forum: 'Conditions related to ME/CFS' news and research
  18. Dolphin
    Post

    Animal research for ME

    I dislike people against animal research getting a veto on it. Vegetarians for example don't consume dead animals. However they don't get a veto...
    Post by: Dolphin, Jul 21, 2022 in forum: Other research methodology topics
  19. Dolphin
    Post

    Animal research for ME

    Perhaps the question needs to be clarified because I presume what is being asked is whether you believe there are no circumstances under which...
    Post by: Dolphin, Jul 21, 2022 in forum: Other research methodology topics
  20. Dolphin
    Post

    News from Germany

    Thread
    Post by: Dolphin, Jul 20, 2022 in forum: Regional news
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