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  1. Milo
    Post

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    Early on in my disease, I felt absolutely shitty, and I begged my doctor to do a Cortisol test. I did the AM and not sure if I did the PM that...
    Post by: Milo, Aug 11, 2022 in forum: ME/CFS research
  2. Milo
    Post

    Phenotypic characteristics of peripheral immune cells of ME/CFS via transmission electron microscopy: A pilot study, Jahanbani et al, 2022

    I tend to agree, but it seems like this work, particularly the electron microscopy is detailed and labor intensive, and not something you'd do by...
    Post by: Milo, Aug 11, 2022 in forum: ME/CFS research
  3. Milo
    Post

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    It would be worthwhile to repost in recruiting studies category so it gets seen more widely
    Post by: Milo, Aug 10, 2022 in forum: ME/CFS research news
  4. Milo
    Post

    Phenotypic characteristics of peripheral immune cells of ME/CFS via transmission electron microscopy: A pilot study, Jahanbani et al, 2022

    Agreed re: N=2. We do know that we are extremely heterogenous and missed diagnosis happen. We certainly cannot draw any conclusion from this paper...
    Post by: Milo, Aug 10, 2022 in forum: ME/CFS research
  5. Milo
    Thread

    A Zoonotic Henipavirus in Febrile Patients in China (2022) Zhang et al

    No abstract, behind paywall. Full title: A Zoonotic Henipavirus in Febrile Patients in China There is a news article here:...
    Thread by: Milo, Aug 10, 2022, 0 replies, in forum: Other health news and research
  6. Milo
    Post

    Antibodies to β adrenergic and muscarinic cholinergic receptors in patients with CFS, 2016, Loebel et al

    thank you Hutan, in regards to the graphs, are we comparing the red lines between subjects and controls?
    Post by: Milo, Aug 1, 2022 in forum: ME/CFS research
  7. Milo
    Post

    Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman

    Could it have been the prohibitive cost? Were the long-covid patients required to purchase it? Would allegiance to your doctor matters when it...
    Post by: Milo, Jul 31, 2022 in forum: ME/CFS research
  8. Milo
    Post

    Detection of G Protein-Coupled Receptor Autoantibodies in Postural Orthostatic Tachycardia Syndrome Using Standard Methodology (2022) Hall et al

    I will have to replay that, I could not watch any of the morning presentations because it was too darn early for my time zone.
    Post by: Milo, Jul 31, 2022 in forum: 'Conditions related to ME/CFS' news and research
  9. Milo
    Post

    What major medical advances have been made in the past 5 years?

    that was a big breakthrough. I would add that in a matter of a few weeks, there was a test for COVID, then vaccines, then treatments, all within...
    Post by: Milo, Jul 31, 2022 in forum: Other health news and research
  10. Milo
    Post

    Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman

    thank you @cassava7 I wish that there was more discussion at IACFSME surrounding this presentation but also others in regards to the limitations...
    Post by: Milo, Jul 31, 2022 in forum: ME/CFS research
  11. Milo
    Post

    CD4+ Cytotoxic T Cells Involved in the Development of EBV-Associated Diseases, 2022, Ruiz-Pablos

    Hello Manuel and welcome here. Thank you for sharing your paper and congratulation on this publication. What jumped to my eye by quickly...
    Post by: Milo, Jul 26, 2022 in forum: ME/CFS research news
  12. Milo
    Post

    Protocol: DecodeME: community recruitment for a large genetics study of ME/CFS, 2022, Devereux-Cooke et al

    Congratulations @Andy and team!
    Post by: Milo, Jul 19, 2022 in forum: ME/CFS research
  13. Milo
    Post

    Human enteroviral infection in fibromyalgia: a case-control blinded study, 2022, Armin Schwarzbach et al

    It sounds like they are not sure whether enterovirus is the cause of anything, since it is very prevalent in healthy controls as well. The...
    Post by: Milo, Jul 18, 2022 in forum: 'Conditions related to ME/CFS' news and research
  14. Milo
    Post

    "The whole of humanity has lungs, doesn't it? We are not all the same sort of people": .. an online..intervention: SELF-BREATHE, 2022, Chalder et al

    Really, addressing motivation in patients with advanced lung cancer? For cancer and non-cancer conditions affecting breathing, there is no lack of...
    Post by: Milo, Jul 16, 2022 in forum: Other health news and research
  15. Milo
    Post

    Hyperbaric oxygen therapy improves neurocognitive functions & symptoms of post-COVID condition: randomized controlled trial, 2022, Zilberman-Itskovich

    So... What is a sham HBOT treatment? You simply sit in the chamber and it doesn't get pressurized, for 40 sessions on end? yes. 90 minutes per...
    Post by: Milo, Jul 15, 2022 in forum: Long Covid research
  16. Milo
    Post

    GERD, acid reflux, heartburn and hiatus hernia

    No,(pure) instant coffee does not have sugar in it- however some products such as cappuccino that comes in powder, where you add water, or some...
    Post by: Milo, Jul 14, 2022 in forum: Gastrointestinal and Urinary
  17. Milo
    Post

    News from Canada

    this is highly disturbing and I am not sure how things will change for these patients living both in poverty and with a lifelong disabling disease...
    Post by: Milo, Jul 11, 2022 in forum: Regional news
  18. Milo
    Post

    Risk Factors for Self-reported Irritable Bowel Syndrome With Prior Psychiatric Disorder: The Lifelines Cohort Study, 2022, Creed

    So... more meditation and mindfulness, you think? :rolleyes: More CBT?
    Post by: Milo, Jul 9, 2022 in forum: Other psychosomatic news and research
  19. Milo
    Post

    Anyone else experienced a paralysis feeling at the top of the back of the legs

    It has not happened to me like this but I understand that walking uphill is a bigger demand on your body, specifically your leg muscles and it may...
    Post by: Milo, Jul 6, 2022 in forum: General and other signs and symptoms
  20. Milo
    Post

    The NIH is launching a new study of mitochondria in ME/CFS

    Only 12 patients = pilot study or proof of concept.
    Post by: Milo, Jul 2, 2022 in forum: ME/CFS research news
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