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  1. Sbag
    Post

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    There was a post by the ME Association about low cortisol and it was discussed at a conference last week....
    Post by: Sbag, Aug 12, 2022 at 6:28 PM in forum: ME/CFS research
  2. Sbag
    Post

    Open Pilot Study: A Novel Transcranial Magnetic Stimulation Treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    I have had numerous rTMS treatments for ME in the UK. The clinic I go to is very conscious of any negative issues and will alter treatment...
    Post by: Sbag, Jul 1, 2022 in forum: Recruitment into current ME/CFS research studies
  3. Sbag
    Post

    Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

    there is a non branded option which works out at about £60. So I think some people think it’s worth a punt at that price. If going for the branded...
    Post by: Sbag, Jun 26, 2022 in forum: Recruitment into current ME/CFS research studies
  4. Sbag
    Post

    NHS England web pages on ME/CFS updated 29th October 2021 (NICE publication date)

    There are then all of the local NHS trust pages that take their information from various sources. I think all the ones I have seen reference...
    Post by: Sbag, May 29, 2022 in forum: UK clinics and doctors
  5. Sbag
    Post

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    The NHS page about ME still has CBT top of the list of treatments ! https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/ they have a lot...
    Post by: Sbag, May 28, 2022 in forum: General ME/CFS news
  6. Sbag
    Post

    UK company Neuro ProActive

    I agree. Having worked in the IT industry I have found though that people working with apps or software are so embedded in the product that they...
    Post by: Sbag, Mar 21, 2022 in forum: UK clinics and doctors
  7. Sbag
    Post

    UK company Neuro ProActive

    I imagine because ME has been listed in a neurological list somewhere. And as a private company the developer will want to promote to as many...
    Post by: Sbag, Mar 21, 2022 in forum: UK clinics and doctors
  8. Sbag
    Post

    UK company Neuro ProActive

    I agree that this is something the NHS a should provide but as they haven’t even managed to get the electronic patient record (EPR) up and running...
    Post by: Sbag, Mar 21, 2022 in forum: UK clinics and doctors
  9. Sbag
    Post

    UK company Neuro ProActive

    it looks to me to be a portal that enables you to configure a virtual team of professionals that are dealing with your healthcare, and also to...
    Post by: Sbag, Mar 21, 2022 in forum: UK clinics and doctors
  10. Sbag
    Post

    Open UK - Recruiting: Novel Dynamic Proteomics Approaches to Investigate the Systems Level Pathology of ME/CFS

    Doing a quick internet search, Nottingham University are part of the “Harvard ME/CFS Collaboration”. On their page about skeletal muscle...
    Post by: Sbag, Mar 15, 2022 in forum: Recruitment into current ME/CFS research studies
  11. Sbag
    Post

    Coining a term for being limited in your interrelated energy and time.

    How about “energy bank” this gives the idea that there is only a certain amount of energy available and you could then use the analogy of going...
    Post by: Sbag, Feb 21, 2022 in forum: General Advocacy Discussions
  12. Sbag
    Post

    Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

    Med fit do a much more reasonably priced option which is the tens machine that can be programmed so that you can use it for vagus nerve...
    Post by: Sbag, Jan 17, 2022 in forum: Recruitment into current ME/CFS research studies
  13. Sbag
    Post

    Study protocol ... phase III trial ... of low-dose naltrexone (LDN) in patients with fibromyalgia (INNOVA study), 2022, Younger, Luciano et al

    I am taking LDN after being prescribed by my consultant. It comes from Dicksons pharmacy in Scotland and costs less than £30 a month. If your GP...
    Post by: Sbag, Jan 9, 2022 in forum: 'Conditions related to ME/CFS' news and research
  14. Sbag
    Post

    Open Pilot Study: A Novel Transcranial Magnetic Stimulation Treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    That might be something to do with the fact that they will zap the left side of the brain. Maybe left handed people have a slightly different...
    Post by: Sbag, Dec 10, 2021 in forum: Recruitment into current ME/CFS research studies
  15. Sbag
    Post

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    In response to their joint statement someone should ask them directly why they didn’t make their objections known at the round table that was...
    Post by: Sbag, Oct 31, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  16. Sbag
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    It is said that breathing a certain way can stimulate the vagus nerve, in a similar way to micro current devices
    Post by: Sbag, Oct 27, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  17. Sbag
    Post

    Potential therapeutic benefit of Low Dose Naltrexone in [ME/CFS]: Role of Transient Receptor Potential Melastatin 3 ion channels, 2021, Cabanas et al

    “Does Low Dose Naltrexone Improve Natural Killer Cell Functioning in ME/CFS?”...
    Post by: Sbag, Sep 8, 2021 in forum: ME/CFS research
  18. Sbag
    Post

    2021 UK: ME Association - NICE and the unpublished ME/CFS guideline - contact your MP

    Sent mine to Andrea Leadsom
    Post by: Sbag, Aug 26, 2021 in forum: Advocacy Action Alerts
  19. Sbag
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I don’t know if this is of any help or use but I did get copies of all the minutes from the previous guideline group meetings that NICE held. I...
    Post by: Sbag, Aug 11, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  20. Sbag
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I think there was some confusion and Andy was replying about commenting on the BMJ article, whereas you were asking about the draft guideline
    Post by: Sbag, Aug 6, 2021 in forum: 2020 UK NICE ME/CFS Guideline
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