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  1. Simone
    Post

    Emerge Australia Research meeting Twitter summary

    For anyone who missed the research panel, the video is now available. A written summary will also be published....
    Post by: Simone, May 29, 2022 in forum: ME/CFS research
  2. Simone
    Post

    Emerge Australia Research meeting Twitter summary

    Thanks, @Trish! If we have the resources, we will definitely produce a summary (always too much to do, and not enough people/time etc). For...
    Post by: Simone, May 10, 2022 in forum: ME/CFS research
  3. Simone
    Post

    ME Awareness Day / Week / Month, May 2022

    Emerge Australia’s May awareness week webinar series: The Basics of ME/CFS Join Emerge Australia's Nurse Educator Kate Herbert as we dive into...
    Post by: Simone, Apr 12, 2022 in forum: Advocacy Projects and Campaigns
  4. Simone
    Post

    News from Australia

    ABC News article on NCNED research into ME/CFS and its application to Long COVID....
    Post by: Simone, Mar 18, 2022 in forum: Regional news
  5. Simone
    Post

    News from Australia

    Recent radio segment on ABC Life Matters, featuring ME/CFS patient Sara Gingold, Emerge Australia CEO Anne Wilson, and Associate Professor of...
    Post by: Simone, Mar 17, 2022 in forum: Regional news
  6. Simone
    Post

    Impaired TRPM3-dependent calcium influx and restoration using Naltrexone in natural killer cells of [ME/CFS], 2022, Eaton-Fitch et al

    Thats my concern as well. NCNED claim that TRPM3 dysfunction is the cause of ME/CFS, and that naltrexone repairs it, but we know that anecdotally...
    Post by: Simone, Mar 7, 2022 in forum: ME/CFS research
  7. Simone
    Post

    National Centre for Neuroimmunology and Emerging Diseases ME/CFS conference, Griffith University, Australia, 2021

    This should say Vicky Whittemore! :banghead::wtf: [MEDIA]
    Post by: Simone, Nov 16, 2021 in forum: General ME/CFS news
  8. Simone
    Post

    National Centre for Neuroimmunology and Emerging Diseases ME/CFS conference, Griffith University, Australia, 2021

    [MEDIA]
    Post by: Simone, Nov 16, 2021 in forum: General ME/CFS news
  9. Simone
    Post

    National Centre for Neuroimmunology and Emerging Diseases ME/CFS conference, Griffith University, Australia, 2021

    [MEDIA]
    Post by: Simone, Nov 16, 2021 in forum: General ME/CFS news
  10. Simone
    Post

    National Centre for Neuroimmunology and Emerging Diseases ME/CFS conference, Griffith University, Australia, 2021

    Summary other tweets from the morning session. Unfortunately, I only tweeted Elizabeth Unger’s presentation. Nothing very new from the session....
    Post by: Simone, Nov 16, 2021 in forum: General ME/CFS news
  11. Simone
    Post

    National Centre for Neuroimmunology and Emerging Diseases ME/CFS conference, Griffith University, Australia, 2021

    I ran out of puff after the morning, so didn’t see any of the presentations in the afternoon. Jarred Younger’s presentation was definitely the...
    Post by: Simone, Nov 16, 2021 in forum: General ME/CFS news
  12. Simone
    Post

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    Abstract Evidence based care for people with broken leg syndrome and skeletal fracture Journal of General Medical Gaslighting Accepted/In press...
    Post by: Simone, Oct 22, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Simone
    Post

    CDC Treatment Evidence Review - updated thread. Request for comment from 17th May 2021.

    Thanks for sharing our submission. Unfortunately, we’ve had to resubmit because the references somehow disappeared when the document was formatted...
    Post by: Simone, Aug 17, 2021 in forum: 2021 USA CDC ME/CFS Diagnosis and Treatment Review
  14. Simone
    Post

    Institution for severe ME patients in Norway

    @Kalliope, is there any update on the service and how things are progressing? Really interested to hear how it’s going.
    Post by: Simone, Aug 17, 2021 in forum: Other clinics and doctors
  15. Simone
    Post

    CDC Treatment Evidence Review - updated thread. Request for comment from 17th May 2021.

    You can’t do everything! This work is definitely a community effort, with the baton often being shared around.
    Post by: Simone, Aug 9, 2021 in forum: 2021 USA CDC ME/CFS Diagnosis and Treatment Review
  16. Simone
    Post

    Effect of Dietary Coenzyme Q10 Plus NADH Supplementation on Fatigue Perception and Health-Related QoL in ... ME/CFS, 2021, Castro-Marrero et al.

    I don’t understand how peer reviewers could look at this study, and the conclusions the researchers drew, and let it get published.
    Post by: Simone, Aug 1, 2021 in forum: ME/CFS research
  17. Simone
    Post

    Potential therapeutic benefit of Low Dose Naltrexone in [ME/CFS]: Role of Transient Receptor Potential Melastatin 3 ion channels, 2021, Cabanas et al

    They’re really relying on the changes in TRPM3 activity, when they apply the agonist and antagonist, compared to healthy controls (and compared...
    Post by: Simone, Jul 20, 2021 in forum: ME/CFS research
  18. Simone
    Post

    News from Australia

    Me too.
    Post by: Simone, Jul 15, 2021 in forum: Regional news
  19. Simone
    Post

    News from Australia

    Our low infection rates have created a problem for the small number of patients here who have developed long-COVID, in that they’ve been largely...
    Post by: Simone, Jul 12, 2021 in forum: Regional news
  20. Simone
    Post

    News from Australia

    Thanks, Hutan. Mary-Louise is very well respected here, though I’ve not heard her mention long-COVID much. There is some longitudinal research on...
    Post by: Simone, Jul 12, 2021 in forum: Regional news
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