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  1. Kalliope
    Post

    Open A 3-day Course for Adults With Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): a Randomized Controlled Trial : 2022 Norway

    no, it's not official yet what the National Committee for Medical and Health Research Ethics decided regarding the ethical approval. Hope we'll...
    Post by: Kalliope, Jun 24, 2022 at 3:58 PM in forum: Recruitment into current ME/CFS research studies
  2. Kalliope
    Post

    Long Covid in the media and social media 2022

    I'm reading between the lines here that Dr. Koroshetz says ME is not "solved" yet due to its complexity, not for lack of trying. But due to...
    Post by: Kalliope, Jun 24, 2022 at 11:54 AM in forum: Long Covid news
  3. Kalliope
    Post

    Michael Sharpe about Paul Garner at the European Association of Psychosomatic Medicine (EAPM), 2021 3rd June

    Some titles from the program of this year's EAPM conference in Wien earlier this month: Sharpe: "Biopsychosocial medicine: the EAPM mission"...
    Post by: Kalliope, Jun 21, 2022 in forum: General ME/CFS news
  4. Kalliope
    Post

    Sweden - RME news - (forthcoming event ME conference October 2022)

    The Swedish patient organisation RME is once again organising their annual ME conference. The conference will take place in Stockholm (12th Oct)...
    Post by: Kalliope, Jun 19, 2022 in forum: News from organisations
  5. Kalliope
    Post

    News from Scandinavia

    The Swedish Parliament has supported a motion to ask the Government to investigate how a National Competence Centre for ME/CFS can be established,...
    Post by: Kalliope, Jun 14, 2022 in forum: Regional news
  6. Kalliope
    Post

    Open Pilot study in Norway - Daratumumab in ME/CFS

    The study is funded (I belive in full) by patients and patient organisations.
    Post by: Kalliope, Jun 14, 2022 in forum: Recruitment into current ME/CFS research studies
  7. Kalliope
    Post

    Open Pilot study in Norway - Daratumumab in ME/CFS

    More information at Current Research Information System In Norway (CRISTIN) where there's a description of the research project with a summary of...
    Post by: Kalliope, Jun 14, 2022 in forum: Recruitment into current ME/CFS research studies
  8. Kalliope
    Post

    Open Pilot study in Norway - Daratumumab in ME/CFS

    Good point. I hope they have thought about it and are able to take precautions at the hospital. It's a cancer ward, so they must be? As far as I...
    Post by: Kalliope, Jun 14, 2022 in forum: Recruitment into current ME/CFS research studies
  9. Kalliope
    Post

    Open Pilot study in Norway - Daratumumab in ME/CFS

    Wikipedia on Daratumumab: Daratumumab, sold under the brand name Darzalex, is an anti-cancer monoclonal antibody medication. It binds to CD38,[2]...
    Post by: Kalliope, Jun 14, 2022 in forum: Recruitment into current ME/CFS research studies
  10. Kalliope
    Thread

    Open Pilot study in Norway - Daratumumab in ME/CFS

    Fluge et al are recruiting six moderate to severe ME patients for a pilot trial on Daratumumab. Participants need to be able to travel to...
    Thread by: Kalliope, Jun 14, 2022, 13 replies, in forum: Recruitment into current ME/CFS research studies
  11. Kalliope
    Post

    Tjenesten og MEg | The health service and ME, Ongoing, Sintef FaFo

    The newspaper Dagsavisen has an interview today with researcher Anne Kielland. A letter from the Directorate of Labor and Welfare emphasises that...
    Post by: Kalliope, Jun 9, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Kalliope
    Post

    MElivet - Blog posts by Nina E. Steinkopf

    Nina E. Steinkopf: Recovery Norway; a PR agency for researchers? quote: Both NICE and the CDC are clear that GET can be harmful for ME patients....
    Post by: Kalliope, Jun 8, 2022 in forum: General ME/CFS news
  13. Kalliope
    Post

    News from Scandinavia

    Trisha Greenhalgh is one of the keynote speakers Professor Wilkinson from the Mayo clinic will talk about how to establish trust in 10 minutes....
    Post by: Kalliope, Jun 7, 2022 in forum: Regional news
  14. Kalliope
    Post

    Long Covid in the media and social media 2022

    CBS News - Transcript: Dr. Walter Koroshetz on "Face the Nation," June 5, 2022 quote: Those people with post-infectious mononucleosis, people...
    Post by: Kalliope, Jun 5, 2022 in forum: Long Covid news
  15. Kalliope
    Post

    Long Covid in the media and social media 2022

    Missoulian Missed risk: Long COVID threat extends far beyond pandemic The article is available as audio version as well. quote: In January, the...
    Post by: Kalliope, Jun 5, 2022 in forum: Long Covid news
  16. Kalliope
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    The Science Bit by prof. Brian Hughes 'Cancel culture' paranoia and other right-wing hysterics reveal medical conservatism's true colours quote:...
    Post by: Kalliope, Jun 4, 2022 in forum: News from organisations
  17. Kalliope
    Post

    United Kingdom: Science Media Centre (including Fiona Fox)

    Trial by Error by David Tuller Science Media Centre Chief Compares Patient Advocates to Nazis quote: In a widely hyped new book–“Beyond the Hype:...
    Post by: Kalliope, Jun 4, 2022 in forum: News from organisations
  18. Kalliope
    Post

    Long Covid in the media and social media 2022

    Short interview with prof. Mady Hornig on Long Covid and her own battle with it. I was hoping she had been improving, but she mentions several...
    Post by: Kalliope, Jun 3, 2022 in forum: Long Covid news
  19. Kalliope
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls)

    Podcast from CDC Featured Podcast on ME: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M-E-C-F-S): Better Understanding of a Complex Illness...
    Post by: Kalliope, Jun 2, 2022 in forum: News from organisations
  20. Kalliope
    Post

    News from Scandinavia

    An awful story from Norway. The Norwegian Labour and Welfare Administration required ME sufferer Jane to undergo a gastric sleeve operation...
    Post by: Kalliope, Jun 2, 2022 in forum: Regional news
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