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  1. Trish
    Post

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    Excellent response by Michiel Tack, a masterpiece of clarity and brevity yet covering all the key points. The response by Chalder et all goes...
    Post by: Trish, Jun 30, 2022 at 11:14 AM in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Trish
    Post

    Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman

    This thread is a reminder of the value of this forum. Over on twitter someone posted the paper and all the responses were unquestioning...
    Post by: Trish, Jun 29, 2022 at 11:33 PM in forum: ME/CFS research
  3. Trish
    Post

    Getting it wrong most of the time? Comparing trialists’ choice of primary outcome with what patients and health professionals want, 2022, Treweek

    I've only read the abstract. Surely the primary outcome measure chosen has to directly reflect the effect aimed for in the particular treatment....
    Post by: Trish, Jun 29, 2022 at 3:30 PM in forum: Research methodology news and research
  4. Trish
    Post

    Hypnotic suggestibility in dissociative and related disorders: A meta-analysis, 2022, Wieder et al

    I tried being hynotised once by a professional hypnotist who used it for things like smoking cessation. I can't remember what it was intended for...
    Post by: Trish, Jun 29, 2022 at 11:55 AM in forum: Other psychosomatic news and research
  5. Trish
    Post

    Hypnotic suggestibility in dissociative and related disorders: A meta-analysis, 2022, Wieder et al

    This idea of pwCFS being prone to hypnotic suggestibility reminds me of the patients' accounts of LP, where at least one described something that...
    Post by: Trish, Jun 29, 2022 at 10:40 AM in forum: Other psychosomatic news and research
  6. Trish
    Post

    Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman

    Thanks for this, Jaybee. I have skimmed it but I'm not a biochemist, so I can't follow all the details. If it's accurate, then the whole...
    Post by: Trish, Jun 29, 2022 at 9:37 AM in forum: ME/CFS research
  7. Trish
    Post

    Who Hijacked ME?

    Thank you @boolybooly for your very clear description of your experience with emotional lability. It sounds really awful and hard to cope with. I...
    Post by: Trish, Jun 29, 2022 at 9:20 AM in forum: Diagnostic Criteria and Naming Discussions
  8. Trish
    Post

    United Kingdom: UKCRC (UK Clinical Research Collaboration) Subgroup on ME

    Thanks Luna, that sounds like a really good idea. Tagging @MEMarge who may be able to follow this up.
    Post by: Trish, Jun 28, 2022 at 9:57 PM in forum: News from organisations
  9. Trish
    Post

    Persistent 129Xe MRI Pulmonary and CT Vascular abnormalities in ... [PACS] , 2022, Parraga, Matheson (and related papers by Grist, Wild)

    Persistent 129Xe MRI Pulmonary and CT Vascular Abnormalities in Symptomatic Individuals with Post-Acute COVID-19 Syndrome Alexander M. Matheson...
    Post by: Trish, Jun 28, 2022 at 9:54 PM in forum: Long Covid research
  10. Trish
    Post

    Long Covid in the media and social media 2022

    The Telegraph article is paywalled. Can anyone reveal what it recommends. Replies on Twitter seem to suggest it ignores Long Covid.
    Post by: Trish, Jun 28, 2022 at 9:52 PM in forum: Long Covid news
  11. Trish
    Post

    Functional Status, Mood State, and Physical Activity Among Women With Post-Acute COVID-19 Syndrome, 2022, Carter et al

    Is this study really as stupid as it sounds from the abstract? People with symptoms for longer recover more slowly and can do less. Surely that's...
    Post by: Trish, Jun 28, 2022 at 2:17 PM in forum: Long Covid research
  12. Trish
    Post

    Who Hijacked ME?

    Thanks @Arvo, it's great to have the historical information relevant to this discussion stated so clearly.
    Post by: Trish, Jun 28, 2022 at 12:52 PM in forum: Diagnostic Criteria and Naming Discussions
  13. Trish
    Post

    cognitive behavioural and personalised exercise interventions for fatigue in inflammatory rheumatic diseases (LIFT), 2022, Bachmair et al

    One of the things I love about this forum is the wit and wisdom and humour. Thank you @Hutan, @chrisb and @Peter Trewhitt. You have lightened my day.
    Post by: Trish, Jun 28, 2022 at 11:15 AM in forum: Other health news and research
  14. Trish
    Post

    Who Hijacked ME?

    The question of emotional lability is interesting. I don't know whether those who included in one or more diagnostic criteria researched it...
    Post by: Trish, Jun 28, 2022 at 11:03 AM in forum: Diagnostic Criteria and Naming Discussions
  15. Trish
    Post

    Blog: The PACE trial - a complaint.

    @Suffolkres can you clarify what role Peter White and PACE has in this session. It's over an hour and too much for me to watch. Is there a...
    Post by: Trish, Jun 28, 2022 at 10:44 AM in forum: Psychosomatic theories and treatments discussions
  16. Trish
    Post

    Lightning Process - discussion thread

    That looks like advertising to me. To counterbalance it I hope someone will post a link to the website where lots of Norwegian pwME describe how...
    Post by: Trish, Jun 28, 2022 at 3:23 AM in forum: Psychosomatic theories and treatments discussions
  17. Trish
    Post

    Questionnaires - design, validation and use in ME/CFS research - discussion thread

    Intersting, thanks, @SNT Gatchaman. Is it possible for you to write to the researchers explaining your concerns?
    Post by: Trish, Jun 27, 2022 at 10:49 PM in forum: Subjective outcome measures (questionnaires)
  18. Trish
    Post

    Covid-19 vaccines and vaccinations

    Hard to hit 'like' on your post. Really sorry to hear it's getting worse.
    Post by: Trish, Jun 27, 2022 at 10:29 PM in forum: Epidemics (including Covid-19, not Long Covid)
  19. Trish
    Post

    News from Doctors with ME

    I don't know where you got 2014 from. The wikipedia article says 'In 1839, French feminist and author George Sand used a similar phrase, une voûte...
    Post by: Trish, Jun 27, 2022 at 7:13 PM in forum: News from organisations
  20. Trish
    Post

    News from Doctors with ME

    It's very familiar in the UK. But not in whatever sense it appears to mean in the DwME material. [SPOILER] I disagree that it doesn't matter that...
    Post by: Trish, Jun 27, 2022 at 5:21 PM in forum: News from organisations
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