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  1. Andy
    Thread

    UK: Petition: It’s time to #BackThe1in6 [living with with a neurological condition]

    It’s time to #BackThe1in6 1 in 6 people in the UK live with a neurological condition, but there simply aren’t the workforce or services in place...
    Thread by: Andy, Jun 30, 2022 at 10:47 AM, 0 replies, in forum: Petitions
  2. Andy
    Post

    UK: The Neurological Alliance: "My Neuro" survey, 2021 (close 6th Feb 2022)

    Together for the 1 in 6: findings from My Neuro Survey 1 in 6 people in the UK live with a neurological condition, but there simply isn’t the...
    Post by: Andy, Jun 30, 2022 at 10:41 AM in forum: General ME/CFS news
  3. Andy
    Post

    Long Covid in the media and social media 2022

    News from the Netherlands. Over half of people with Long Covid for two years are declared unfit to work A majority of people with Long Covid who...
    Post by: Andy, Jun 29, 2022 at 7:03 PM in forum: Long Covid news
  4. Andy
    Thread

    Getting it wrong most of the time? Comparing trialists’ choice of primary outcome with what patients and health professionals want, 2022, Treweek

    Abstract Background Randomised trials support improved decision-making through the data they collect. One important piece of data is the primary...
    Thread by: Andy, Jun 29, 2022 at 2:41 PM, 8 replies, in forum: Research methodology news and research
  5. Andy
    Thread

    Long COVID burden and risk factors in 10 UK longitudinal studies and electronic health records, 2022, Thompson et al

    Abstract The frequency of, and risk factors for, long COVID are unclear among community-based individuals with a history of COVID-19. To...
    Thread by: Andy, Jun 29, 2022 at 12:41 PM, 2 replies, in forum: Long Covid research
  6. Andy
    Post

    Altered brain regional homogeneity is associated with depressive symptoms in COVID-19, 2022, Cattarinussi et al

    "Clinical assessment We evaluated depressive symptoms using the Patient Health Questionnaire (PHQ-9) (Kroenke et al., 2001) and anxiety...
    Post by: Andy, Jun 29, 2022 at 12:40 PM in forum: Epidemics (including Covid-19, not Long Covid)
  7. Andy
    Thread

    Altered brain regional homogeneity is associated with depressive symptoms in COVID-19, 2022, Cattarinussi et al

    Highlights • COVID-19 is associated to depression, anxiety and fatigue. • COVID-19 presents functional connectivity alterations in...
    Thread by: Andy, Jun 29, 2022 at 12:31 PM, 1 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  8. Andy
    Post

    Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman

    Our thread on this is here, USA: RESTORE ME: A RandomizEd Double Blind Placebo Control Trial to Determine the EffectS of OxaloaceTate On ImpRoving...
    Post by: Andy, Jun 29, 2022 at 11:20 AM in forum: ME/CFS research
  9. Andy
    Post

    Who Hijacked ME?

    Or maybe the ME is the same, it's just the description has been improved over time. To be honest, without having a definitive test for ME, and...
    Post by: Andy, Jun 29, 2022 at 8:23 AM in forum: Diagnostic Criteria and Naming Discussions
  10. Andy
    Post

    United Kingdom: NHS East Kent Hospitals University - ME/CFS

    https://en.m.wikipedia.org/wiki/NHS_internal_market
    Post by: Andy, Jun 28, 2022 at 9:51 PM in forum: UK clinics and doctors
  11. Andy
    Post

    Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman

    For those who might not have seen it, here is our submission on the problems with the Chalder Fatigue Scale, S4ME: Submission to the public review...
    Post by: Andy, Jun 28, 2022 at 6:51 PM in forum: ME/CFS research
  12. Andy
    Post

    Fundraiser for a study at the University Hospital Erlangen with the drug BC007 for ME/CFS patients

    This seems to be more informative [MEDIA]
    Post by: Andy, Jun 28, 2022 at 3:46 PM in forum: Fundraising
  13. Andy
    Thread

    Are nerve conduction studies altered in functional neurological disorders?, 2022, Sukockienė et al

    Highlights • Central nervous system activity influences generation of F-waves. • We report F-wave abnormalities in a patient with a functional...
    Thread by: Andy, Jun 28, 2022 at 1:49 PM, 1 replies, in forum: Other psychosomatic news and research
  14. Andy
    Post

    Hypnotic suggestibility in dissociative and related disorders: A meta-analysis, 2022, Wieder et al

    Despite these convergent results, considering elevated suggestibility in these conditions under the broad umbrella of dissociative psychopathology...
    Post by: Andy, Jun 28, 2022 at 1:45 PM in forum: Other psychosomatic news and research
  15. Andy
    Thread

    Hypnotic suggestibility in dissociative and related disorders: A meta-analysis, 2022, Wieder et al

    Highlights • Patients characterized by severe dissociative psychopathology display elevated hypnotic suggestibility. • Elevated hypnotic...
    Thread by: Andy, Jun 28, 2022 at 1:42 PM, 6 replies, in forum: Other psychosomatic news and research
  16. Andy
    Thread

    Functional Status, Mood State, and Physical Activity Among Women With Post-Acute COVID-19 Syndrome, 2022, Carter et al

    Objectives: While organ-specific pathophysiology has been well-described in SARS-CoV-2 infection, less is known about the attendant effects on...
    Thread by: Andy, Jun 28, 2022 at 1:34 PM, 1 replies, in forum: Long Covid research
  17. Andy
    Thread

    Remodeling of T Cell Dynamics During Long COVID Is Dependent on Severity of SARS-CoV-2 Infection, 2022, Wiech et al

    Several COVID-19 convalescents suffer from the post-acute COVID-syndrome (PACS)/long COVID, with symptoms that include fatigue, dyspnea, pulmonary...
    Thread by: Andy, Jun 28, 2022 at 1:14 PM, 1 replies, in forum: Long Covid research
  18. Andy
    Thread

    Associations of health-related quality of life with depression and stigma in MERS-CoV survivors during the recovery period, 2022, Ahn et al

    Abstract We explored factors related to health-related quality of life (HRQOL), including psychiatric symptoms and stigma related to Middle East...
    Thread by: Andy, Jun 28, 2022 at 1:12 PM, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
  19. Andy
    Post

    cognitive behavioural and personalised exercise interventions for fatigue in inflammatory rheumatic diseases (LIFT), 2022, Bachmair et al

    From the paper, my bolding "Procedures All participants were aware that the trial interventions were designed specifically to reduce fatigue. As...
    Post by: Andy, Jun 28, 2022 at 12:14 PM in forum: Other health news and research
  20. Andy
    Post

    Who Hijacked ME?

    The suggestion seems to be that criteria that doesn't include emotional lability are examples of ME being 'hijacked'.
    Post by: Andy, Jun 28, 2022 at 9:05 AM in forum: Diagnostic Criteria and Naming Discussions
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