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Broad Medical Uncertainty and the ethical obligation for openness, 2022, Brown, Barra, Earp

Abstract This paper argues that there exists a collective epistemic state of 'Broad Medical Uncertainty' (BMU) regarding the effectiveness of many...

Thread by: JohnTheJack, May 24, 2022 at 6:56 PM, 0 replies, in forum: Research methodology news and research
Thread
Lidocaine infusions for refractory chronic migraine: a retrospective analysis, 2022, Schwenk et al

Abstract Introduction Patients with refractory chronic migraine have poor quality of life. Intravenous infusions are indicated to rapidly ‘break...

Thread by: JohnTheJack, May 24, 2022 at 12:09 PM, 0 replies, in forum: Other health news and research
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UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

I haven't had any dealings with Holgate and those I respect (such as Simon and Andy) speak highly of his recent work. My own impression is that...

Post by: JohnTheJack, May 21, 2022 in forum: General ME/CFS news
Post
Long Covid in the media and social media 2022

Article (paywalled) in The Times (London) on how longitudinal studies are being used to look at Long Covid....

Post by: JohnTheJack, May 21, 2022 in forum: Long Covid news
Thread
Use of tranexamic acid in major trauma: sex-disaggragated analysis of trials & UK trauma clinics, 2022, Nutbeam et al

Full title: Use of tranexamic acid in major trauma: a sex-disaggragated analysis of the Clinical Randomisation of an Antifibrinolytic in...

Thread by: JohnTheJack, May 20, 2022, 0 replies, in forum: Other health news and research
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UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

Letter from Holgate in Times today. Can't help thinking there is some rewriting of history from Holgate who took instruction from Wessely,...

Post by: JohnTheJack, May 20, 2022 in forum: General ME/CFS news
Post
UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

Merged thread Letter in The Times (London) Chowdhury, Strain 18/05/2022

Post by: JohnTheJack, May 18, 2022 in forum: General ME/CFS news
Thread
I was in pain for years. After I was repeatedly told I just had ‘bad periods’, a giant cyst was found on my ovary. By Holly Bourne. The Times (London)

For years I was told to doubt my own body. My own pain levels. I was put to sleep and cut open, only to be told I didn’t have a disease I did...

Thread by: JohnTheJack, May 16, 2022, 3 replies, in forum: Other health news and research
Thread
A bivalent Epstein-Barr virus vaccine induces neutralizing antibodies that block infection and confer immunity in humanized mice, 2022, Wei et al

An Epstein-Barr virus vaccine Epstein-Barr virus (EBV) infection has been associated with infectious mononucleosis, human cancers, and, most...

Thread by: JohnTheJack, May 5, 2022, 0 replies, in forum: Other health news and research
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Review in The Sunday Times (London) of book on history of psychiatry

Priceless.

Post by: JohnTheJack, Apr 26, 2022 in forum: Other health news and research
Thread
Targeted A-to-G base editing in human mitochondrial DNA with programmable deaminases, 2022, Cho et al

SUMMARY Mitochondrial DNA (mtDNA) editing paves the way for disease modeling of mitochondrial genetic disorders in cell lines and animals and also...

Thread by: JohnTheJack, Apr 26, 2022, 0 replies, in forum: Other health news and research
Thread
Review in The Sunday Times (London) of book on history of psychiatry

Review by Sebastian Faulks of Desperate Remedies: Psychiatry and the Mysteries of Mental Illness by Andrew Scull. This in the review stood out to...

Thread by: JohnTheJack, Apr 25, 2022, 4 replies, in forum: Other health news and research
Post
United Kingdom: Dr Phil Hammond and ME/CFS (Bath paediatric CFS clinic)

Phil Hammond on BBC Radio 4 (merged thread) I had the radio on in the background while I was doing things in the kitchen and caught bits of this...

Post by: JohnTheJack, Apr 20, 2022 in forum: UK clinics and doctors
Thread
England footballer forced to take break because of fatigue

Not sure if this is actually related to ME, but may be of interest. https://www.bbc.co.uk/sport/football/61123213

Thread by: JohnTheJack, Apr 16, 2022, 2 replies, in forum: General ME/CFS news
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A general thread on the PACE trial!

That was one of my requests. I haven't been well enough to appeal but will try this year. It's timed out but I am going to ask if the tribunal...

Post by: JohnTheJack, Apr 4, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
Post
Covid-19 vaccines and vaccinations

I haven't looked at the study the anti-vaxxers quote so cannot say for sure, but the players are a low-risk group and have been vaccinated, which...

Post by: JohnTheJack, Jan 4, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
Post
Covid-19 vaccines and vaccinations

Good (paywalled) article by Tom Whipple addressing claims made by antivaxxers....

Post by: JohnTheJack, Jan 3, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
Thread
Fiona Watt, Chief Executive of MRC (UK), apologizes for bullying

MRC is now part of UKRI. On UKRI website: https://www.ukri.org/news/ukri-issues-statement-on-bullying-complaint/ News article (paywalled):...

Thread by: JohnTheJack, Dec 16, 2021, 5 replies, in forum: Other health news and research
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Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

Another excellent video. Thanks to Natalie and Josh and all who helped.

Post by: JohnTheJack, Dec 15, 2021 in forum: Advocacy Projects and Campaigns
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UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

Or indeed, as Crawley showed, if you use the same kind of trial design, the Lightning Process.

Post by: JohnTheJack, Dec 11, 2021 in forum: 2020 UK NICE ME/CFS Guideline

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