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General Advocacy Discussions

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  1. JellyBabyKid

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    JellyBabyKid, Apr 20, 2024 at 11:03 PM ... 2
    Replies:
    24
    Views:
    290
    Kitty
    Apr 23, 2024 at 10:25 AM
  2. JohnTheJack

    What research do you want to see?

    JohnTheJack, Jul 7, 2018 ... 4 5 6
    Replies:
    107
    Views:
    9,885
    duncan
    Apr 14, 2024
  3. FMMM1

    cognitive dissonance - radio 4 program

    FMMM1, Mar 20, 2024
    Replies:
    0
    Views:
    201
    FMMM1
    Mar 20, 2024
  4. Simon M

    Published poems by Veronica Ashenhurst, who has Severe ME

    Simon M, Oct 4, 2021 ... 2 3
    Replies:
    40
    Views:
    6,859
    Simon M
    Jan 9, 2024
  5. adrienne

    FOIA denied CFSAC dissolution 2018/56 responsive records

    adrienne, Jan 5, 2024
    Replies:
    6
    Views:
    513
    adrienne
    Jan 7, 2024
  6. Suffolkres

    Healthwatch England - Resource for Campaign Assistance

    Suffolkres, Jan 16, 2019
    Replies:
    17
    Views:
    1,698
    bobbler
    Dec 17, 2023
  7. bobbler

    Masking and performing or 'management strategies' in ME/CFS (and being in positions where required or led to do so)

    bobbler, Mar 11, 2023
    Replies:
    11
    Views:
    1,322
    bobbler
    Nov 20, 2023
  8. bobbler

    Influence and Participation toolkit?

    bobbler, Nov 17, 2023
    Replies:
    4
    Views:
    406
    Hutan
    Nov 18, 2023
  9. Dolphin

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Dolphin, Apr 8, 2022 ... 2 3
    Replies:
    57
    Views:
    5,912
    bobbler
    Nov 11, 2023
  10. Hutan

    Responsible ME/CFS journalism - how to report on treatments?

    Hutan, Oct 21, 2023 ... 2
    Replies:
    20
    Views:
    1,548
    Sean
    Oct 30, 2023
  11. Tom Kindlon

    Advocacy idea: Pay for ads to advertise medical research studies that are struggling to recruit.

    Tom Kindlon, Oct 28, 2023
    Replies:
    4
    Views:
    630
    Tom Kindlon
    Oct 28, 2023
  12. Sly Saint

    Encyclopedia Britannica website: entry on CFS

    Sly Saint, Jan 10, 2022
    Replies:
    1
    Views:
    1,049
    Sly Saint
    Oct 15, 2023
  13. Dx Revision Watch

    ME Association: iterations of objectives between 2021 and 2023

    Dx Revision Watch, Sep 15, 2023
    Replies:
    15
    Views:
    881
    Sean
    Sep 18, 2023
  14. Sly Saint

    The Brain Charity - website content on ME/CFS

    Sly Saint, Jun 17, 2019
    Replies:
    4
    Views:
    1,500
    Ash
    Sep 11, 2023
  15. Dolphin

    Fundraising for ME/CFS research - opportunities, problems

    Dolphin, Aug 14, 2019 ... 2 3 4
    Replies:
    75
    Views:
    5,852
    Dolphin
    Sep 6, 2023
  16. Phoebe

    My Two Blogs; Puffins and Penguins & Puffs and Pens.

    Phoebe, Aug 11, 2023
    Replies:
    0
    Views:
    749
    Phoebe
    Aug 11, 2023
  17. Sly Saint

    Why are the majority of pwME rarely mentioned?

    Sly Saint, Jan 18, 2019 ... 2 3
    Replies:
    52
    Views:
    10,019
    Sly Saint
    Aug 3, 2023
  18. Robert 1973

    Advice for freelancers on pitching articles to newspapers, by Frances Ryan, Guardian journalist

    Robert 1973, Jul 17, 2023
    Replies:
    3
    Views:
    736
    adambeyoncelowe
    Jul 21, 2023
  19. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    InitialConditions, Jul 4, 2023 ... 3 4 5
    Replies:
    98
    Views:
    5,557
    AknaMontes
    Jul 11, 2023
  20. livinglighter

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    livinglighter, Jul 5, 2023
    Replies:
    17
    Views:
    1,353
    livinglighter
    Jul 7, 2023
Showing threads 1 to 20 of 204

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