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me association

  1. Science For ME
    Thread

    Open letters to the UK ME Association trustees about a research project developing PROMs, led by Sarah Tyson

    In 2023 the UK ME Association announced it was funding a project, currently ongoing, which is developing Patient Reported Outcome Measures...
    Thread by: Science For ME, Apr 2, 2024, 4 replies, in forum: Open Letters and Replies
  2. Dx Revision Watch
    Thread

    ME Association: iterations of objectives between 2021 and 2023

    Wasn't sure where to put this but I wanted to note the following: It's not known whether or when the ME Association plans to update its Articles...
    Thread by: Dx Revision Watch, Sep 15, 2023, 15 replies, in forum: General Advocacy Discussions
  3. Andy
    Thread

    Open ME Association: The UK ME/CFS Post Mortem Tissue Bank and Tissue Donation

    "The ME Association is the only M.E. charity involved in the collection of post mortem tissue samples from people diagnosed with the disease in...
    Thread by: Andy, Jul 27, 2021, 6 replies, in forum: Recruitment into current ME/CFS research studies
  4. Trish
    Thread

    ME Association (UK) Fundraising

    2020 Christmas Appeal 'Call in the cavalry! Help us get out the correct news about graded exercise and CBT'...
    Thread by: Trish, Dec 5, 2020, 1 replies, in forum: Fundraising
  5. Hutan
    Thread

    UK: 'Managing my ME', 2010, ME Association

    'Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for...
    Thread by: Hutan, Nov 16, 2020, 12 replies, in forum: General ME/CFS news
  6. John Mac
    Thread

    Now Available: The 2020 ME Association ME/CFS/PVFS Clinical and Research Guide!

    The ME Association has just published it's latest guide. We are pleased to announce that the 2020 edition of the ME Association’s Clinical and...
    Thread by: John Mac, Aug 11, 2020, 1 replies, in forum: General ME/CFS news
  7. RuthT
    Thread

    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    I saw that Kingston CCG had tweeted that they would ensure all GP Practices have a copy of the MEA Purple Book, following this recommendation by...
    Thread by: RuthT, Feb 3, 2020, 15 replies, in forum: Advocacy Action Alerts
  8. Gary Burgess
    Thread

    Gary Burgess - The ME show, and updates about Gary's health.

    Morning all. Series two of The ME Show has just gone live. You can listen online at www.meassociation.org.uk/themeshow Or you can subscribe,...
    Thread by: Gary Burgess, Jan 28, 2019, 137 replies, in forum: General ME/CFS news
  9. Andy
    Thread

    ME Association Quick Survey Nov 18: Do you have a healthcare plan that is consulted, adhered to and kept up to date...?

    Full question: Do you have a healthcare plan that is consulted, adhered to and kept up to date every time you see a healthcare professional?...
    Thread by: Andy, Nov 2, 2018, 14 replies, in forum: Advocacy Action Alerts
  10. Andy
    Thread

    The ME Association's continued support of the Sussex ME Society

    I'm sure the MEA would claim that they are being a neutral broker of information that PwME might find interesting but personally I'm disappointed...
    Thread by: Andy, Sep 22, 2018, 120 replies, in forum: General ME/CFS news
  11. Andy
    Thread

    The ME Association to fund six student bursaries for 2018 CMRC research conference

    The ME Association is keen to encourage undergraduate and postgraduate medical and science students to develop a clinical or research interest in...
    Thread by: Andy, Jun 19, 2018, 1 replies, in forum: General ME/CFS news
  12. Andy
    Thread

    ME Association quick survey, June 2018: Have you tried using the FODMAP diet for irritable bowel symptoms?

    Click http://www.meassociation.org.uk/ to take part, survey is in the centre panel of their homepage, scroll towards the bottom of the page to...
    Thread by: Andy, Jun 6, 2018, 1 replies, in forum: General ME/CFS news
  13. Andy
    Thread

    ME Association: What's on the BBC tomorrow (Tuesday) for ME Awareness Week?

    "Your schedule for another packed day of ME Awareness The main event: 7.00am Newsbeat Documentary 'M.E. and me' on BBC iPlayer (and hopefully...
    Thread by: Andy, May 7, 2018, 0 replies, in forum: General ME/CFS news
  14. Andy
    Thread

    ME Association monthly poll: Effective forms of pain management

    Their poll is on pain management. It can be found on their homepage here, http://www.meassociation.org.uk/, middle column, towards the bottom of...
    Thread by: Andy, Mar 5, 2018, 3 replies, in forum: General ME/CFS news
  15. Andy
    Thread

    ME Association "looking for someone with severe M.E. to be a case study for a future article"

    We are looking for someone with severe M.E. to be a case study for a future article that will appear in the mainstream media. The piece will...
    Thread by: Andy, Jan 30, 2018, 0 replies, in forum: General ME/CFS news
  16. Andy
    Thread

    ME Association: Website survey: What do you think should be our research funding priorities for 2018?

    To go straight to the survey, it's on the MEA home page, http://www.meassociation.org.uk/, towards the bottom of the page, middle column. Options...
    Thread by: Andy, Jan 4, 2018, 10 replies, in forum: General ME/CFS news
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