1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 8th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

ME Action virtual protest of HHS today (Sept 14th)

Discussion in 'Advocacy Action Alerts' started by Esther12, Sep 14, 2018.

  1. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    Webdog, dannybex, Andy and 14 others like this.
  2. Medfeb

    Medfeb Senior Member (Voting Rights)

    Messages:
    565
    In a nutshell, CFSAC, the US government advisory committee that provided recommendations for action on issues related to ME, was disbanded by HHS with no warning or discussion. The explanation was that its mission had been accomplished. Ridiculous. Please tweet if you can, even if you can't post a picture. Hashtags are #MissionNotAccomplishedHHS, SecAzar and @HHSGov.

    Thank you for posting, @Esther12!
     
    Webdog, dannybex, Andy and 12 others like this.
  3. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    943
    Location:
    Germany
  4. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    943
    Location:
    Germany
  5. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    943
    Location:
    Germany
  6. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
    1,248
    Location:
    Stanford, CA
    https://twitter.com/user/status/1040664110503886848


    I thought of taking it from bed, but I'm able to stand today, and I wanted to represent the spectrum of illness. Beyond being too tired to brush down my flyaways this is how I present in public.

    Click on the tweet to see the whole sign.
     
    MarcNotMark, Inara, dannybex and 11 others like this.
  7. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    943
    Location:
    Germany
    Amazing sign @JaimeS!


    A tiny selection of the great protest posts on Facebook today:





     
    MarcNotMark, Inara, Andy and 6 others like this.
  8. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
    1,248
    Location:
    Stanford, CA
    Inara, Andy, alktipping and 6 others like this.
  9. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
    1,248
    Location:
    Stanford, CA
    The response continues to be amazing online! At this point, if they're going to be moved I have to think they will be. Please continue to add your own tweets and Facebook posts and contact your Congressional rep if you live in the US. It's pretty easy, everything is already filled in for you.
     
    Andy, alktipping, Dolphin and 5 others like this.
  10. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
    1,248
    Location:
    Stanford, CA
    I was waiting for it, too, and yes: the most famous MISSION ACCOMPLISHED meme was utilized.
     
    Alvin, Samuel, Lisa108 and 1 other person like this.
  11. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    943
    Location:
    Germany
  12. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    943
    Location:
    Germany
    JaimeS and Esther12 like this.
  13. Roy S

    Roy S Senior Member (Voting Rights)

    Messages:
    459
    Location:
    Illinois, USA

Share This Page