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invisible illness

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  1. Wyva
    Thread

    Sooner or Later, We’ll All Belong to the Kingdom of the Sick (Interview with Meghan O'Rourke, author of The Invisible Kingdom)

    CC: In The Invisible Kingdom, you write that if every age has its “signature disease,” ours is the type of chronic illness that tends to go...
    Thread by: Wyva, Jul 4, 2022, 4 replies, in forum: General ME/CFS news
  2. Wyva
    Thread

    AMA Journal of Ethics: What to do when symptoms are difficult to see or measure

    Physicians depend on the measurability and empirical verifiability of symptoms. Still, some symptoms defy observation and measurement, which can...
    Thread by: Wyva, Jul 14, 2021, 1 replies, in forum: General ME/CFS news
  3. Sly Saint
    Thread

    AMA Journal of Ethics : The Importance of Listening in Treating Invisible Illness and Long-Haul COVID-19

    Primary and specialty care clinicians strive to base diagnoses and treatment on specific, measurable abnormalities. Yet those with invisible,...
    Thread by: Sly Saint, Jul 2, 2021, 12 replies, in forum: General ME/CFS news
  4. Cheshire
    Thread

    Improving images used to depict ME/CFS

    Merged thread: 'Stock photos are terrible at depicting illness' Stock photos are ubiquitous—and infamous. The concepts are often laugh-out-loud...
    Thread by: Cheshire, Nov 6, 2017, 62 replies, in forum: Advocacy Projects and Campaigns
  5. Sly Saint
    Thread

    Blog: M.E. myself and I Living life in the slow lane with an invisible,chronic illness

    By other people’s standards my health is never Good. So it can be hard to convince them what I mean when I say things are Bad. There are no...
    Thread by: Sly Saint, Sep 5, 2020, 1 replies, in forum: General ME/CFS news
  6. Sly Saint
    Thread

    “That's why they don't believe you, you don't look sick!”: Creating Medical Credibility and patient visibility for ME/CFS through Television

    by Giada Da Ros Abstract: Since the end of the 20th century, the Myalgic Encephalomyelitis / Chronic Fatigue Syndrome community tried to create...
    Thread by: Sly Saint, Jul 4, 2020, 8 replies, in forum: General ME/CFS news
  7. Sly Saint
    Thread

    Australia - Survey 'Making the invisible visible: investigating the views and experiences of frail, homebound and bedridden people' 2020

    Before COVID-19, some members of our Australian community have been living with several health issues that do not allow them to leave their houses...
    Thread by: Sly Saint, Jul 2, 2020, 0 replies, in forum: General ME/CFS news
  8. Dolphin
    Thread

    (Thesis) Modeling Disability: Softly Making the Invisible Visible, 2020, Evan

    https://openscholarship.wustl.edu/cgi/viewcontent.cgi?article=1075&context=bfa The thesis contains some photographs. Washington University in St....
    Thread by: Dolphin, May 26, 2020, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Sly Saint
    Thread

    Article by Prof Warren Tate (NZ): Research unveiling the ‘invisible illness’ May 2020

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in New Zealand affects about 0.4% of the population. There will be up to 100 affected...
    Thread by: Sly Saint, May 9, 2020, 1 replies, in forum: ME/CFS research news
  10. Kalliope
    Thread

    Norway: Book about ME and invisible illness- "But you don't look sick" by Ragnhild Holmås

    Ragnhild Holmås has suffered from ME for nine years. She is now publishing a book where she challenges prejudice against chronic and invisible...
    Thread by: Kalliope, Apr 7, 2020, 5 replies, in forum: General ME/CFS news
  11. Sly Saint
    Thread

    Article (Australia): I'm 18 years old and living with three chronic conditions you can't see - Feb 2020

    You may not be able to see Chloe’s medical conditions, but before you judge her she wants you to know they are there, they are real, and she’s not...
    Thread by: Sly Saint, Feb 27, 2020, 0 replies, in forum: General ME/CFS news
  12. Andy
    Thread

    BBC short video: Chronic fatigue syndrome: Living with an invisible illness

    Lorna Bryson, 25, suffers from Myalgic Encephalomyelitis (ME) also known as chronic fatigue syndrome. The illness means she has a low immune...
    Thread by: Andy, Feb 16, 2020, 14 replies, in forum: General ME/CFS news
  13. Mij
    Thread

    Disability Tax Credit in Canada Difficult for Invisible Illnesses

    The application for the Disability Tax Credit does not 'fit' our reality. I was receiving the DTC for over 25 years, but it appears that the...
    Thread by: Mij, Feb 9, 2020, 1 replies, in forum: General ME/CFS news
  14. Andy
    Thread

    Commentary: Suicide is a Concern for the Chronic Invisible Illness Community, 2020, Pederson

    Rates of suicidal ideation, attempts, and completion are alarmingly high in chronic invisible illness communities. Suicide is the second leading...
    Thread by: Andy, Feb 8, 2020, 9 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  15. JohnTheJack
    Thread

    What People With Invisible Illnesses Want You To Know 2020 Huffington Post article

    It doesn't actually mention ME, but it does apply, and is quite a good article. When you think about a disability, one that requires a mobility...
    Thread by: JohnTheJack, Feb 4, 2020, 1 replies, in forum: General ME/CFS news
  16. Sly Saint
    Thread

    Article: Tesco launch sunflower lanyard scheme to help shoppers with hidden disabilities Dec 2019

    Tesco has taken steps to help shoppers with hidden disabilities by launching the sunflower lanyard scheme in stores across the UK. The...
    Thread by: Sly Saint, Dec 5, 2019, 0 replies, in forum: General disability topics and advocacy
  17. Sly Saint
    Thread

    The Sun article - INVISIBLE ILLNESS The 5 signs your constant tiredness is actually chronic fatigue syndrome – as 90% of cases are missed (Aug 2019)

    Contibutions from Dr Sarah Jarvis, Charles Shepherd (MEA), Sonia Chowdhury(AfME), Leonard Jason. Muscle aches and four other signs your...
    Thread by: Sly Saint, Aug 14, 2019, 8 replies, in forum: General ME/CFS news
  18. Sly Saint
    Thread

    Article in 'Philly voice' - This 'invisible illness' doesn't have a known cause or effective treatment

    Not a particularly bad article that quotes #MEAction a lot (The Myalgic Encephalomyelitis Action Network). However, I question the bit at the end...
    Thread by: Sly Saint, Apr 12, 2019, 0 replies, in forum: General ME/CFS news
  19. leokitten
    Thread

    Metro UK: “You Don’t Look Sick” Weekly Series

    https://metro.co.uk/tag/you-dont-look-sick/ A weekly series published every Sunday telling the stories of people with invisible illness and...
    Thread by: leokitten, Apr 7, 2019, 11 replies, in forum: General ME/CFS news
  20. Andy
    Thread

    Sunday Times readers comments: "The ‘invisible illness’: what it feels like to live with chronic fatigue syndrome or ME"

    Sunday Times publishes three readers accounts of their personal experiences of ME. y doctor told me never to say I had this condition, to be...
    Thread by: Andy, Mar 24, 2019, 25 replies, in forum: General ME/CFS news
Showing results 1 to 20 of 25
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