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Recent Activity

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  1. Fero liked Peter Trewhitt's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    Given the paucity of studies into PEM what can we say about the duration of PEM? Given there are many anecdotes of the impact of PEM...

    Mar 29, 2024 at 12:24 AM
  2. Fero liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    I had a quick skim through what these were about. Many are paywalled so we can't study them, most are about measuring patients' progress...

    Mar 29, 2024 at 12:24 AM
  3. Fero liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    I am disappointed that our efforts to engage are seen as hysterical, hostile and insulting. We all want the same thing, better clinical...

    Mar 29, 2024 at 12:23 AM
  4. Fero liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    I agree. Why ask patients to spend 15 minutes filling in a lengthy questionnaire that tell the clinician nothing about what the patient...

    Mar 29, 2024 at 12:20 AM
  5. Fero liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    My immediate reaction is how can it be used for 'clinical assessment' if the pwME is saying PEM follows very slight exertion, or very...

    Mar 29, 2024 at 12:19 AM
  6. Murph replied to the thread MECFS data analysis thread.

    There are some great points here about the limits of knowledge. I want to describe how I see it. We know most studies cover only a...

    Mar 29, 2024 at 12:17 AM
  7. JoClaire replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    This was my thinking too. Also do not have experience. ps I've been frustrated that I can't follow a thread (within this thread) from...

    Mar 29, 2024 at 12:14 AM
  8. Peter Trewhitt liked Jonathan Edwards's post in the thread Exercise therapy for treatment of acute non-specific low back pain: a Cochrane systematic review and meta-analysis of [RCT]s, 2024, de Zoete.

    The irony is that for lack of effect you don't really need to worry about risk of bias because bias will usually be towards increasing...

    Mar 29, 2024 at 12:13 AM
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