Film Gives Voice to Chronic Fatigue Patients Seeking Understanding, Treatment

Shame about the title.

"The association and the Geisel School of Medicine at Dartmouth are hosting a screening and panel discussion of Unrest at Dartmouth-Hitchcock Medical Center on Tuesday."

"At least two Upper Valley clinicians seeking to improve the medical community’s understanding of M.E. will be in attendance on Tuesday: Dr. Roshini Pinto-Powell, a D-H internist and associate dean of students at Geisel, and Dr. Robyn Jacobs, an obstetrician-gynecologist, who operates a private practice in Lebanon.

Both doctors have encountered patients with M.E. through their practices, and both agree with patients and advocates that the name “chronic fatigue syndrome” fails to capture the life-changing nature of the disease."

"Not all M.E. patients have found sympathetic doctors like Pinto-Powell. Unable to find a cause of an M.E. patient’s symptoms, many doctors have told patients that they were suffering from a psychological disorder."

"Eventually, in 2007, while she and her family were living in England, she received a more accurate diagnosis of M.E. But the correct diagnosis still didn’t pave the way to a cure. Instead, doctors recommended exercise therapy, which made her sicker because patients with M.E. tend to crash following exertion."

"In the Upper Valley, Paul Guyre and a team of researchers in a lab in the Borwell research building at DHMC are examining blood samples in search of a difference in immune response to infections in people with myalgic encephalomyelitis. Though the project is not yet NIH-funded, Guyre, an active emeritus professor of microbiology and immunology at Geisel, has applied for funding."

full article here:
https://www.vnews.com/Film-Shines-Light-on-Poorly-Understood-Debilitating-Illness-20784041

 

Its ironic that the headline underscores its contention.

 

another one that does the same thing
"
What causes chronic fatigue? What we know, don’t know and suspect
By
Health Minute
-
November 15, 2018
Around 200,000 people in Australia suffer from a debilitating illness often branded with the unfortunate name of chronic fatigue syndrome (CFS).

I say “unfortunate” because this implies patients are simply tired, run-down, burnt-out or overly stressed.

But myalgic encephalomyelitis, or ME/CFS as it is now more commonly called, is a serious and incapacitating disease that can have a devastating impact on a patient’s life."

https://healthminute.org/2018/11/what-causes-chronic-fatigue-what-we-know-dont-know-and-suspect/