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Recent Activity

Activity stream for all registered members at Science for ME.

  1. SNT Gatchaman liked Binkie4's post in the thread Severe difficulties with eating in ME/CFS.

    Interesting letter, worth reproducing in full. Thank you @MrMagoo Rapid response to: We need better care for long covid and ME/CFS...

    Apr 23, 2024 at 8:47 PM
  2. MEMarge liked Andy's post in the thread Work begins to develop UK clinical guidelines for PANS and PANDAS.

    "Friday 19th April 2024 marked the inaugural meeting of the PANS PANDAS Clinical Guidelines Development Group, held in central London....

    Apr 23, 2024 at 8:47 PM
  3. MEMarge liked RaviHVJ's post in the thread Protocol Online cognitive training for people with cognitive impairment following SARS-CoV-2 infection: A randomised controlled clinical trial, 2024, Corbett.

    My biggest problem with the study is that I have little idea what they mean by ‘Long Covid.’ I know of people who have brain fog post...

    Apr 23, 2024 at 8:45 PM
  4. MEMarge liked wabi-sabi's post in the thread Protocol Online cognitive training for people with cognitive impairment following SARS-CoV-2 infection: A randomised controlled clinical trial, 2024, Corbett.

    If thinking harder worked none of us would have had to leave work or school.

    Apr 23, 2024 at 8:45 PM
  5. MEMarge liked Kitty's post in the thread Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot.

    Transcript looks great, thanks @dave30th. It's great to have this as well as the video to share—some people prefer one form over...

    Apr 23, 2024 at 8:43 PM
  6. MEMarge liked John Mac's post in the thread Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot.

    Trial By Error: Guardian Columnist George Monbiot Discusses His Scathing Rebuke of the Biopsychosocial Brigades–Text Version 1 Comment /...

    Apr 23, 2024 at 8:43 PM
  7. RaviHVJ liked Sean's post in the thread Australia: RACGP: GET for CFS.

    Citing PACE in support of GET says everything you need to know about how shitty the situation is here with the medical establishment....

    Apr 23, 2024 at 8:43 PM
  8. MEMarge liked Wonko's post in the thread Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?.

    Eddie had a better understanding (understanding human psychology is essential for Jack Russells). Despite his passing in 2006 he...

    Apr 23, 2024 at 8:43 PM
  9. MEMarge liked MrMagoo's post in the thread Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?.

    It makes me feel sick - literally queasy- when I think of the psychobabble which has infiltrated my medical treatment. A GP, on hearing...

    Apr 23, 2024 at 8:43 PM
  10. MEMarge liked Creekside's post in the thread Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?.

    I think of psychology as similar to religion: belief-based rather than evidence-based. The true believers are trained to accept...

    Apr 23, 2024 at 8:42 PM
  11. MEMarge liked Maat's post in the thread Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?.

    I question how they're doing their reflective practice. Everyone has become so used to thinking of patients in a discriminatory,...

    Apr 23, 2024 at 8:42 PM
  12. MEMarge liked JellyBabyKid's post in the thread Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?.

    This. I find it completely unfathomable. I also cannot understand the blatant and glaring contradiction between dismissing us when we...

    Apr 23, 2024 at 8:42 PM
  13. MEMarge liked Kitty's post in the thread Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?.

    Yup. Risk assessment for a nighttime wildlife survey: It'll be dark, you might trip over something. There's a lake, you might fall...

    Apr 23, 2024 at 8:42 PM
  14. MEMarge liked Nightsong's post in the thread Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?.

    A few random thoughts: There seems to be a belief in the world of psychology (& social science) that good intentions are sufficient to...

    Apr 23, 2024 at 8:41 PM
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