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Recent Activity
Activity stream for all registered members at Science for ME.
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Sean liked Trish's post in the thread Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults.
Edit: This post was written befor Dania edited the opening post to provide more information. Hi @Dania Ala, welcome to the forum. I...
Apr 20, 2024 at 8:16 AM -
Maat liked Jonathan Edwards's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
To be fair, I suspect that all that was said about following Dr Weir's diagnosis was that Dr Weir is not the NHS consultant responsible...
Apr 20, 2024 at 8:15 AM -
Sean liked Jonathan Edwards's post in the thread Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults.
That is what we call growing up. Or life. ME/CFS plays havoc with growing up. I would ask @Dania Ala to give us details of why this...
Apr 20, 2024 at 8:15 AM -
Sean replied to the thread Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al.
I think the line between them at least for ME/CFS, can be very blurred. I don't actually mind the hypersomnia so much, it is an easy...
Apr 20, 2024 at 8:15 AM -
Sean liked Nightsong's post in the thread Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al.
Modafinil didn't feel like a stimulant to me (well, it doesn't feel like caffeine and it didn't feel like taking d-amphetamine as a...
Apr 20, 2024 at 8:11 AM -
Sean liked Samuel's post in the thread Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al.
i have to sleep MANY hours, and have to take medicine to get to sleep and also back to sleep. this is because i need restorative...
Apr 20, 2024 at 8:11 AM -
Sean liked Hutan's post in the thread Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al.
My point was that if someone is sleeping, then they are not exerting, and that can reduce the prolongation of PEM. I'm very concerned...
Apr 20, 2024 at 8:11 AM -
Sean liked darrellpf's post in the thread Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al.
For many years I coped with 3 pots of coffee every day. I always wondered why I could drink a full pot and then go to bed an hour later....
Apr 20, 2024 at 8:10 AM -
Sean liked Simon M's post in the thread Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al.
My experience with modafinil is that it did help with fatigue (presumably the reason it was being trialled for MS). But it pushed me to...
Apr 20, 2024 at 8:10 AM -
Sean liked Jonathan Edwards's post in the thread Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al.
The abstract suggests a confusion between fatigue and sleepiness. My understanding of ME/CFS is that sleepiness is not the problem. I...
Apr 20, 2024 at 8:09 AM -
Sean liked Hutan's post in the thread Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al.
I think that is generally right. But there is the case of hypersomnia. I think sleeping longer follows an increased activity level,...
Apr 20, 2024 at 8:09 AM -
Sean liked Simon M's post in the thread Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al.
Many years ago, when modafinil first came out, my consultant was running a trial using it for MS. He asked me if I wanted to try it, and...
Apr 20, 2024 at 8:09 AM -
Sean replied to the thread United Kingdom: Science Media Centre (including Fiona Fox).
I don't think there is any doubt that their basic position has always been some variant of: the primary pathology both defining and...
Apr 20, 2024 at 8:08 AM -
Maat liked Lou B Lou's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Dr William Weir (private ME Doctor) was a Consultant in Infectious Diseases at the Royal Free Hospital, London: "During my tenure as a...
Apr 20, 2024 at 8:06 AM -
Jonathan Edwards replied to the thread Mast cell activation triggered by SARS-CoV-2 causes inflammation in brain microvascular endothelial cells and microglia, 2024, Wu et al..
Mast cells are a standard component of pretty much all tissues and a standard component of most acute inflammation so I am not sure this...
Apr 20, 2024 at 8:03 AM
