Australian article : Shepparton News

So many things I don't like about this article but thought I would leave it up to Australian advocates to pick up on.

"
Running to raise awareness

Shepparton chronic fatigue sufferers have joined forces and will take part in a weekly parkrun event ahead of a national awareness day next month.

The Shepparton Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia support group will join the weekly Shepparton Parkrun in the run-up to next month’s National Fibromyalgia Awareness Day.

Shepparton’s Georgie Dodson knows all to well the effects chronic fatigue syndrome and fibromyalgia can have on a person’s life.

‘‘Chronic fatigue syndrome is an illness that affects a person’s nervous system and, unfortunately, fibromyalgia is likely to follow bringing down muscle stiffness and pain. Some days you just can’t make it to everyday activities,’’ Mrs Dodson said.

During the past two months, Mrs Dodson has been helping friend and fellow chronic fatigue and fibromyalgia sufferer Sharleen Bachelor participate in weekly parkruns on Saturday mornings."

rest of article here:
http://www.sheppnews.com.au/2018/04/09/139196/running-to-raise-awareness

 

Yeah. If you started pointing out the issues with this one you'd never stop.

With friends like that...

 

I've been trying to think of something good to say about this mess of an article and all I can come up with is that Shepparton is a country town, albeit a large one with 50k people, so not a huge number will read it.

 

@Simone

 

Thanks for the tag, @AndyPandy... or perhaps not! What a mess! So many areas where we are achieving progress, and then we get this rubbish. Always more difficult when it’s pwME/CFS themselves who are saying it.

 

I think part of the issue is that this is much more of a Fibro event, than ME/CFS (and clearly the support group lacks an even rudimentary understanding of ME/CFS, which is a huge worry).

 

A running event for CFS patients is hilarious. No one would turn up.

The article is certainly a bit confusing but ultimately harmless as few people will make opinions based on it...