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bacme

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  1. Andy
    Thread

    Closed ‘The Index of ME Symptoms (TIMES)’, developing a clinical assessment toolkit for ME/CFS

    Developing a clinical assessment toolkit for people with ME/CFS and clinical services. Part 1: The Index of ME Symptoms (TIMES) We are asking...
    Thread by: Andy, Nov 28, 2023, 2 replies, in forum: Recruitment into current ME/CFS research studies
  2. Dolphin
    Thread

    United Kingdom: BACME 2023 National Services Survey Report

    Copied post From: Dr. Marc-Alexander Fluks Source: British Association of Clinicians in ME/CFS (BACME) Date: October 23, 2023 URL:...
    Thread by: Dolphin, Oct 24, 2023, 10 replies, in forum: UK clinics and doctors
  3. Sly Saint
    Thread

    UK: Human Resources Grapevine Podcast: From Long Covid to ME

    From May 2023 In this episode we look at the topical and ever-present issue of Long Covid in the workplace. Reports are now suggesting that people...
    Thread by: Sly Saint, Jun 23, 2023, 6 replies, in forum: Long Covid news
  4. InitialConditions
    Thread

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    https://meassociation.org.uk/2023/05/me-association-funds-research-for-a-new-clinical-assessment-toolkit-in-nhs-me-cfs-specialist-services/ ME...
    Thread by: InitialConditions, May 8, 2023, 660 replies, in forum: ME/CFS research news
  5. Sly Saint
    Thread

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/cfs 2017, Goudsmit

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/chronic fatigue...
    Thread by: Sly Saint, Apr 16, 2023, 30 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Sly Saint
    Thread

    United Kingdom: Vitality360, a private company treating ME, fatigue and pain

    event Living with ME and Chronic Fatigue Syndrome Sept 22 About this event Chronic Fatigue conditions are some of the most frustrating and...
    Thread by: Sly Saint, Sep 3, 2022, 11 replies, in forum: UK clinics and doctors
  7. Science For ME
    Thread

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and...
    Thread by: Science For ME, Oct 28, 2021, 1,023 replies, in forum: 2020 UK NICE ME/CFS Guideline
  8. InitialConditions
    Thread

    [Blog] BACME, NHS ME/CFS clinics shift from deconditioning to dysregulation model of ME/CFS in anticipation of updated NICE Guideline

    https://domsalisbury.github.io/mecfs/bacme_dysregulation/ I have written more about the emerging theme of a 'dysregulation model of ME/CFS' from...
    Thread by: InitialConditions, Aug 8, 2021, 133 replies, in forum: General ME/CFS news
  9. Andy
    Thread

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    ME/CFS is a serious and complex chronic multi system illness that can profoundly affect the lives of people who develop it. BACME fully supports...
    Thread by: Andy, Oct 20, 2020, 144 replies, in forum: General ME/CFS news
  10. Andy
    Thread

    A Life Hidden - Blog posts by Naomi Whittingham

    Moderator note: We've merged a number of threads to collect Naomi's blog posts into one thread. An article originally printed December 2016 but...
    Thread by: Andy, Nov 22, 2017, 154 replies, in forum: General ME/CFS news
  11. Tom Kindlon
    Thread

    BACME CFS/ME National Services Survey Feb 2018 (Report Published March 2019)

    https://www.bacme.info/sites/bacme.info/files/BACME%20CFS%20ME%20National%20services%20survey%20March19.pdf [MEDIA] [MEDIA]
    Thread by: Tom Kindlon, Apr 9, 2019, 20 replies, in forum: General ME/CFS news
  12. Sly Saint
    Thread

    2014 Impact case study - Oxford University - CFS

    see the one for QMUL here: https://www.s4me.info/threads/2014-impact-case-study-queen-mary-university-of-london-qmul-cfs.7076/ this one is also...
    Thread by: Sly Saint, Mar 24, 2019, 1 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  13. Sly Saint
    Thread

    United Kingdom: BACME Guidelines for Severe ME 2019

    New BACME guidelines for severe ME " The Sussex ME Society works for the nearly 5,000 people in the county affected by Myalgic Encephalopathy...
    Thread by: Sly Saint, Jan 29, 2019, 42 replies, in forum: General ME/CFS news
  14. Sly Saint
    Thread

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    CFS/ME National Services Survey Feb 2018 Snap shot audit BACME National Services Workstream Report Published March 2019...
    Thread by: Sly Saint, Jan 26, 2020, 400 replies, in forum: News from organisations
  15. Sly Saint
    Thread

    2014 Impact case study - Queen Mary University of London (QMUL) - CFS

    Didn't know where to post this or if it has been posted before; 1. Summary of the impact Chronic fatigue syndrome (CFS) is a disorder of...
    Thread by: Sly Saint, Dec 5, 2018, 21 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  16. Sly Saint
    Thread

    Dr Gabrielle Murphy - UK BPS ME/CFS doctor

    Taken from a blog originally from 2011 but the comments go on to 2018; Saturday, 3 September 2011 The Hospital Appointment... so a little...
    Thread by: Sly Saint, Dec 1, 2018, 48 replies, in forum: UK clinics and doctors
  17. Daisymay
    Thread

    Message from the Chair BACME on ME Awareness Month

    https://www.bacme.info/patient-support-groups See link at the bottom of the page, "Message from the Chair on ME Awareness Month 2018" Dear...
    Thread by: Daisymay, May 11, 2018, 10 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  18. Sasha
    Thread

    BACME website

    BACME's (British Association for CFS/ME) website has been down for ages, I'd thought, but now it's up again, and it's quite strange. Here it is:...
    Thread by: Sasha, Mar 21, 2018, 22 replies, in forum: General ME/CFS news
  19. Jonathan Edwards
    Thread

    BACME Meeting 14-15 March

    Discussion about the BACME conference prior to it starting is on this thread....
    Thread by: Jonathan Edwards, Mar 16, 2018, 60 replies, in forum: General ME/CFS news
  20. Tom Kindlon
    Thread

    (Not a recommendation) Alastair Miller: The prognosis of CFS/ME

    Posted by: "Dr. Marc-Alexander Fluks" Sent: Saturday 13 January 2018 10:46 To: LOCALME <localme@yahoogroups.com>; MEACTIONUK...
    Thread by: Tom Kindlon, Jan 13, 2018, 31 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
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