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Advocacy Projects and Campaigns

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  1. Andy
    Sticky

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 9 10 11
    Replies:
    200
    Views:
    11,842
    Andy
    Apr 22, 2024 at 10:26 AM
  2. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Hutan, Sep 30, 2022 ... 2 3 4
    Replies:
    73
    Views:
    8,697
    Art Vandelay
    Feb 16, 2024
  3. JellyBabyKid

    UK: Collecting evidence on problematic UK approaches to ME/CFS and Long Covid

    JellyBabyKid, Apr 21, 2024 at 10:54 AM
    Replies:
    4
    Views:
    237
    Maat
    Apr 22, 2024 at 2:51 AM
  4. Wyva

    2021 Pan-Europe ME Patient Survey (EMEA)

    Wyva, May 11, 2021 ... 2 3
    Replies:
    55
    Views:
    4,045
    mango
    Apr 16, 2024
  5. Dr Carrot

    Improving Wikipedia's references to ME/CFS

    Dr Carrot, Jan 30, 2018 ... 9 10 11
    Replies:
    209
    Views:
    29,696
    yannlk
    Apr 13, 2024
  6. ahimsa

    USA: From Solve ME - Educate your Members of Congress about a "HOME" for IACCIs at NIH

    ahimsa, Apr 9, 2024
    Replies:
    4
    Views:
    257
    ahimsa
    Apr 10, 2024
  7. Robert 1973

    Tom Kindlon nominated for an honorary degree at Trinity College Dublin

    Robert 1973, Feb 28, 2024
    Replies:
    14
    Views:
    13,429
    Tom Kindlon
    Apr 2, 2024
  8. ME/CFS Skeptic

    2020: How to sign the EU-petition on a request for funding for biomedical research on Myalgic Encephalomyelitis (No0204/2019) - now closed

    ME/CFS Skeptic, Feb 1, 2020
    Replies:
    11
    Views:
    2,319
    Hutan
    Mar 24, 2024
  9. ahimsa

    International: March 15 is Long Covid Awareness Day - news coverage, social media posts, protests

    ahimsa, Mar 16, 2024
    Replies:
    18
    Views:
    709
    ahimsa
    Mar 23, 2024
  10. Dolphin

    2024: USA NIH NINDS ME/CFS Research Roadmap - input on research priorities sought by 11 March 2024

    Dolphin, Feb 1, 2024 ... 2 3
    Replies:
    57
    Views:
    3,433
    Hutan
    Mar 22, 2024
  11. Hutan

    Making a 'Charter for Ethical ME/CFS Research'

    Hutan, Mar 10, 2024 ... 5 6 7
    Replies:
    128
    Views:
    3,194
    bobbler
    Mar 13, 2024
  12. Dolphin

    (UK) Living with M.E. A Photographic Study by Jeremy Jeffs

    Dolphin, Nov 24, 2023
    Replies:
    5
    Views:
    911
    JohnTheJack
    Feb 27, 2024
  13. Sly Saint

    ME/CFS Medical Education Campaign UK - UK website and blog by Katie Johnstone

    Sly Saint, May 8, 2023 ... 2 3
    Replies:
    48
    Views:
    5,262
    Trish
    Feb 19, 2024
  14. yannlk

    Improving Google’s Abysmal “CFS” pop-up

    yannlk, Feb 3, 2024
    Replies:
    7
    Views:
    566
    CRG
    Feb 4, 2024
  15. EndME

    Chronically Ignored - Investigative Documentary

    EndME, Jan 24, 2024
    Replies:
    2
    Views:
    583
    Dolphin
    Jan 28, 2024
  16. jonathan_h

    ALS Untangled: an organisation worth emulating?

    jonathan_h, Jan 26, 2024
    Replies:
    6
    Views:
    618
    Ravn
    Jan 28, 2024
  17. rvallee

    FraudListing.com: a project to keep track of quack treatments for ME

    rvallee, May 4, 2021
    Replies:
    7
    Views:
    1,766
    Wyva
    Jan 15, 2024
  18. rvallee

    Crowdfunded awareness campaigns including billboards

    rvallee, Oct 19, 2023 ... 2 3
    Replies:
    45
    Views:
    2,777
    Ash
    Jan 1, 2024
  19. mango

    Dysautonomia Awareness Month October 2023

    mango, Oct 2, 2023
    Replies:
    4
    Views:
    851
    mango
    Oct 28, 2023
  20. Andy

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Andy, Oct 15, 2018 ... 11 12 13
    Replies:
    242
    Views:
    39,935
    Andy
    Oct 28, 2023
  21. Andy

    US: Infection-Associated Chronic Conditions Patient Advocacy Coalition (IACCPAC) national webinar, October 24, 2023 at 12pm ET / 9am PT

    Andy, Aug 27, 2023
    Replies:
    2
    Views:
    916
    duncan
    Aug 27, 2023
  22. Adam pwme

    New Video: Very Severe ME

    Adam pwme, Aug 7, 2023
    Replies:
    3
    Views:
    1,128
    Adam pwme
    Aug 7, 2023
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