1. This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies. Learn More.

Woman 'with ME' won world kickboxing championship

Discussion in 'General ME/CFS News' started by JohnTheJack, Dec 2, 2017.

  1. JohnTheJack

    JohnTheJack Established Member (Voting Rights)

    Messages:
    50
    Likes Received:
    295
    Inara, fossil, Woolie and 7 others like this.
  2. Trish

    Trish Senior Member (Voting Rights)

    Messages:
    836
    Likes Received:
    6,641
    Location:
    UK
    ''She has shown ME sufferers that miracles can happen. Sleep and diet are the cornerstones of her success there.''

    While I am sympathetic with all the woman in this article has had to cope with and admire her determination and spirit, I think the article gives the unfortunate impression that pushing through is a viable strategy.
     
    TigerLilea, pteropus, Inara and 24 others like this.
  3. TiredSam

    TiredSam Moderator Staff Member

    Messages:
    1,050
    Likes Received:
    6,487
    The article is sympathetic to her, but I'm not sure that some parts of her message are very helpful for ME sufferers:

     
  4. TiredSam

    TiredSam Moderator Staff Member

    Messages:
    1,050
    Likes Received:
    6,487
    My mind can go to places my body most certainly will not follow. Does this mean it's my mind's fault? We are in dangerous territory here.
     
  5. Sean

    Sean Senior Member (Voting Rights)

    Messages:
    217
    Likes Received:
    1,495
    :banghead::banghead::banghead:

    10 steps forward, 9 steps back.
     
  6. Squeezy

    Squeezy Senior Member (Voting Rights)

    Messages:
    251
    Likes Received:
    1,624
    FFS :mad:

    "Where the mind goes the body will follow"
    "She imagined herself a little better"

    Oh, I just can't be bothered. Unlike this woman I REALLY DO have ME/Chronic fucking Fatigue and can barely kick my duvet off, never mind fucking KICK BOX.
     
  7. EzzieD

    EzzieD Established Member (Voting Rights)

    Messages:
    45
    Likes Received:
    544
    Location:
    UK
    Terrible article, as regards ME. Sympathetic to the lady, but extremely unrealistic view of ME. She clearly doesn't have ME.

    ETA: Added 'as regards ME' to 'Terrible article', which I should have done in the first place, oops, sorry.
     
    Last edited: Dec 2, 2017
    TigerLilea, Perrier, Inara and 7 others like this.
  8. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

    Messages:
    635
    Likes Received:
    3,476
    Location:
    UK
    I'm not going to bother reading it. I'm sorry she was ill and she didn't like her arranged marriage but I would prefer it if she had omitted her presumably wrongly diagnosed ME. Does it even mention PEM?

    Ill start my kick boxing therapy by kicking this one into touch.
     
    Inara, Woolie, Chezboo and 9 others like this.
  9. Valentijn

    Valentijn Moderator Staff Member

    Messages:
    1,518
    Likes Received:
    6,983
    Location:
    Netherlands
    We'll keep a stretcher ready for you :p
     
    Inara, Joh, Barry and 4 others like this.
  10. TiredSam

    TiredSam Moderator Staff Member

    Messages:
    1,050
    Likes Received:
    6,487
    I was just thinking that it's probably for the best that @Squeezy doesn't kick-box, otherwise quite a few people might be needing stretchers :nailbiting::eek:
     
    Inara, Woolie, Barry and 5 others like this.
  11. JohnTheJack

    JohnTheJack Established Member (Voting Rights)

    Messages:
    50
    Likes Received:
    295
    I agree with all these comments. Definitely a case of a retweet but not an endorsement.
     
    Inara, Woolie, Yessica and 6 others like this.
  12. Squeezy

    Squeezy Senior Member (Voting Rights)

    Messages:
    251
    Likes Received:
    1,624
    Woolie, Barry, TiredSam and 1 other person like this.
  13. Revel

    Revel Established Member

    Messages:
    20
    Likes Received:
    241
    Woolie, Joh, Chezboo and 4 others like this.
  14. Hip

    Hip Established Member (Voting Rights)

    Messages:
    39
    Likes Received:
    78
    It would seem likely that Ruqsana Begun has mild ME/CFS on the scale of mild, moderate and severe. People with mild ME/CFS are able to go to work full or part time, although this is a struggle for them.

    Whereas patients whose ME/CFS severity is at the moderate or severe level are housebound and bedbound respectively, due to their debilitating symptoms, so would certainly not be able to participate in such sports as kick boxing.
     
    Inara and Barry like this.
  15. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

    Messages:
    635
    Likes Received:
    3,476
    Location:
    UK
    Well I'm mild moderate on that scale, but 2 min of kick boxing or similar would give me PEM ... Same for any exercise that involved raising my heart rate over 100bpm ...I suppose I could do slow motion kick boxing with some support to stop me falling over?...think my opponent might have to also have ME/CFS?
     
    NelliePledge, Squeezy, Barry and 8 others like this.
  16. Wonko

    Wonko Senior Member (Voting Rights)

    Messages:
    688
    Likes Received:
    4,572
    Location:
    UK
    Many years ago now, when I was still functional enough to lift weights, I could do a up to 2 hour training sessions.

    I then bought a heavy bag and some gloves, but rapidly found more than a minute or so of light work would cause severe PEM.

    Boxing - much, much less ME friendly than strength training, even when no one's trying to hit you ;)

    I'm not a doctor, but the account sounds much more like overtraining syndrome to me, it's missing huge chunks of information that would suggest ME but meets my understanding of overtraining, in symptoms, treatment and resolution.

    I am not a doctor...but could be considered something of an expert on some aspects of ME :p
     
  17. Hip

    Hip Established Member (Voting Rights)

    Messages:
    39
    Likes Received:
    78
    I am also at the top end of moderate these days, but seem to be more cognitively affected than physically affected; this may be due to the fact that my ME/CFS appeared to be kicked off by a viral brain infection (meningitis and/or encephalitis), and thus my brain may be more virally impacted than my muscles. (But I should add that when my ME/CFS was approaching the severe level some years back, I was more limited in what I could do physically).

    I do wonder what causes some ME/CFS patients to be more cognitively disabled, whereas others seem more physically disabled (although most patients have some degree of both disabilities). The only ME/CFS severity scale I know that independently measures both the physical and cognitive level of ME/CFS patients is the excellent ME/CFS Ability and Severity Scale devised by Jodi Bassett.


    One idea that occurred to me is that the severity of your cognitive versus physical disability might related to where in your body the viral infection is located. If you are more infected in your brain, then maybe you will have more cognitive issues; whereas if you are more infected in your muscles, then maybe you will be more physically disabled.


    In all the original ME/CFS British studies from the 1970s onwards, they used to perform muscle biopsies on ME/CFS patients and test the muscle tissue for enterovirus infection (and ME/CFS patients always had much more prevalent enterovirus muscle infections than heathy controls). It would be interesting to see if the level of muscle infection correlated with physical disability.

    Unfortunately we presently have no way of gauging brain levels of viral infection in living patients; this can only be done in postmortem studies (and these postmortem studies again have found enterovirus in the brain's of ME/CFS patients but not in healthy controls).
     
  18. Allele

    Allele Senior Member (Voting Rights)

    Messages:
    236
    Likes Received:
    1,771
    Wrong diagnosis. Period.
     
  19. erin

    erin Senior Member (Voting Rights)

    Messages:
    181
    Likes Received:
    1,055
    So annoying. I hate her. Honestly I do. She's not have ME and she's misleading stupid public who are already stupid! If she really had ME no way she could do kick boxing. She probably suffered from depression and again, here, ME is reduced to moderate depression. I really wish she really have ME. Yes, I don't even wish it to my enemy but to her, I do. I become an evil person nowadays, I can't take bullshit anymore.

    I mean I made some jam few days ago, I'm crawling on the floor. Trying to organize my travel back to UK, it's a f.... military precision plan. I have ME...
     
    Inara likes this.
  20. andypants

    andypants Established Member (Voting Rights)

    Messages:
    44
    Likes Received:
    231
    Location:
    Norway
    Sounds exactly like overtraining syndrome to me.

    Around here they tend to say it’s “similar to ME”, which is bullshit too. Yes, you get a sudden inability to perform at your normal level but they can still do light training and they don’t get PEM or even pain of any kind. So more like a really solid burnout IMO, only exception being that usually a virus during competition or hard training is what sets it off.

    I’ve done both (extreme burnout and ME) and it’s not even remotely the same. Fatigue and brain fog yes, but other than that...

    Timeframe doesn’t add up either, it only lasted four months (?) which again sounds like overtraining syndrome. Even burnout takes you longer to recover from.
     
    Inara, Joh, Allele and 5 others like this.

Share This Page