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What treatment trials for ME/CFS are currently ongoing?

Discussion in 'BioMedical ME/CFS Research' started by Sasha, Nov 24, 2017.

  1. Sunshine3

    Sunshine3 Established Member

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    We need more than B vitamins and LDN!!!!
     
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  2. Inara

    Inara Senior Member (Voting Rights)

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    Isn't that one finished, and wasn't the success negative? Or is there a second trial?
     
  3. Squeezy

    Squeezy Senior Member (Voting Rights)

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    Chronic - all of the above - Syndrome.

    You nailed it.
     
  4. Kalliope

    Kalliope Established Member (Voting Rights)

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    The trial on fecal transplantation will start up in March next year, and they are still open for inclusion. The trial is called The Comeback Study and it has its own Facebookpage. Currently everything is in Norwegian, but I am sure they can write updates in English as well if requested.
     
    Last edited: Nov 25, 2017
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  5. Cheshire

    Cheshire Senior Member (Voting Rights)

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    I just created a new thread listing ongoing studies. It's the first draft and I'd like to get your feedbacks to have the most uptodate list.
    So do not hesitate to signal any ongoing study not yet listed.
    Signal any error (spelling, broken link...)

    There are several studies that could be listed in several topics, I choosed one more or less arbitrarily, please suggest any other classification you think is better.
    There are several ongoing studies which were mentionned on S4ME, but for which I couldn't find official information (eg. LDN (Olli Polo + Younger's pilot), B vitamins (Rekeland); Immunadsorption (Scheibenbogen)

    Thanks

    Edit: I forgot the link!
    https://www.s4me.info/index.php?threads/ongoing-me-cfs-studies.1241/
     
    Last edited: Nov 26, 2017
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  6. Sasha

    Sasha Senior Member (Voting Rights)

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    That's a great resource, @Cheshire! Far more going on than I thought.

    Would it be helpful to indicate in the study titles which are treatment trials?
     
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  7. Cheshire

    Cheshire Senior Member (Voting Rights)

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    Added (in red to avoid confusion with the title, I tried to choose a not too agressive red)
     
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  8. Sasha

    Sasha Senior Member (Voting Rights)

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    Here's an official link to the Immunadsorption study (though not a very helpful one - it just gives one sentence about it:

    https://immunologie.charite.de/forschung/ag_scheibenbogen/schwerpunkte/#c30209007

    Note the second study there, also.

    Some speculation on Phoenix Rising that the Rekeland study was one of B cells, not B vitamins - I can't find any official info.
     
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  9. Inara

    Inara Senior Member (Voting Rights)

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    Hi @Cheshire, great list, thank you so much!

    The immunadsorption and HyQvia trials are treatment trials, aren't they?
     
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  10. Inara

    Inara Senior Member (Voting Rights)

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    My information from the team was the immunadsorption study is finished, but the results are not published yet, it seems.

    HyQvia (immunoglobulins) is on-going.
     
  11. Sasha

    Sasha Senior Member (Voting Rights)

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    They're both medical interventions so I think they must be.

    Here's some info on HyQvia (which I'd never heard of): http://www.hyqvia.com/
     
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  12. Inara

    Inara Senior Member (Voting Rights)

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    I participate in that study (but cannot say more). Maybe results can be published some time in 2018. I am myself very curious about the results.
     
  13. Cheshire

    Cheshire Senior Member (Voting Rights)

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    Added :)
     
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