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Tymes Trust - No reported harassment of staff at Bristol University

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by Liv aka Mrs Sowester, Oct 29, 2017.

  1. Sasha

    Sasha Senior Member (Voting Rights)

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    Location:
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    Is it safe to assume that Esther Crawley hasn't received harassing material just because she hasn't reported it to Bristol University?

    If she was being harassed, might she choose to ignore it, or to respond to the person herself, or report it to the police?

    I think we need to be careful about jumping to conclusions. One of the founding principles of this site is that we value science and the need to be critical even of our favourite theories.

    I think it's important not to overclaim, in any arena, if we want to be taken seriously.

    I hope I haven't offended anyone who has posted above - and I'm posting in complete ignorance of how a university professor being harassed by email would be expected to deal with it.

    If I've missed some pertinent facts, I hope someone will correct me. But:

    I agree. One day, the actions of BPS researchers might bring them to the law courts, or at least to serious public scrutiny. An internet full of cries of 'wolf' won't help us. I think we need to hold ourselves to a high standard, and to gain a reputation for doing so.
     
    Inara, inox, Binkie4 and 22 others like this.
  2. Trish

    Trish Moderator Staff Member

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    I think, as I said earlier, she has shot herself in the foot on this by saying in her talk how supportive Bristol University had been to her in coping with the harassment.

    Though I suppose she could have meant the FOI requests and questioning of her research methods, and David Tuller's contacts with the University about her work.

    It's possible she could have kept genuine personal attacks in e-mails etc. to herself I suppose and not reported them to the University authorities.

    I agree. Though I do think we are right to criticise her for characterising anyone who challenges her research as harassing her and as anti-science.
     
    zzz, ladycatlover, Chezboo and 15 others like this.
  3. Valentijn

    Valentijn Guest

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    Possible, but extraordinarily unlikely, given the attention she is seeking based on her claims. Why use a fake letter if she has a real one that has the same effect?
     
    Inara, Binkie4, ladycatlover and 18 others like this.
  4. Cheshire

    Cheshire Moderator Staff Member

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    Because the fake one was more dramatic visually?
     
    ladycatlover, Skippa, MEMarge and 6 others like this.
  5. chrisb

    chrisb Senior Member (Voting Rights)

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    She could hardly tell us that original threatening messages have to be kept undisclosed on the basis of patient confidentiality. She always says how all her patients are supportive and encourage her work.
     
  6. chrisb

    chrisb Senior Member (Voting Rights)

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    Certainly, but in other circumstances tampering with the evidence is strongly disapproved of.
     
  7. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Some of you will already be familiar with this SMC publication from October 2012, but I had a copy on file so I'm posting the URL:

    http://www.sciencemediacentre.org/w...ews-from-the-front-line-essays-on-the-SMC.pdf

    PDF 5.27 MB

    SMC

    Science Media Centre

    October 2, 2012

    views from the front line – essays on the SMC

    As part of the Centre’s 10th anniversary celebrations, a collection of essays on key moments for science and the media from the first decade of the SMC’s existence were commissioned. Written by the scientists, journalists and press officers involved, the essays paint a picture of the effect the SMC has had on UK science-media relations.


    Commentaries:

    Threats of persecution, Esther Crawely Report Page 16

    Tom Feilden Report Page 17


    --------------

    TYMES Trust

    Behind the scenes: Setting up the UK CFS/ME Research Collaborative (UK CMRC)

    https://www.dropbox.com/s/92m09l9tq55pihh/Behind the Scenes - Research Collaborative.pdf
     
    Inara, Woolie, ladycatlover and 14 others like this.
  8. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Inara, Woolie, zzz and 17 others like this.
  9. chrisb

    chrisb Senior Member (Voting Rights)

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    There aren't many leading charities. And we can presumably leave out AfME.

    EDIT For the avoidance of doubt, I do not for one moment believe these allegations to be true.
     
    Inara, ladycatlover, Skippa and 9 others like this.
  10. Sean

    Sean Moderator Staff Member

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    7,193
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    Australia
    I do think it quite reasonable that, whenever they make the claim of harassment and intimidation, we ask quietly but firmly that they provide evidence for it.

    I don't approve of (actual) harassment or intimidation, for both ethical and practical political reasons. It does our cause no good at all for it to happen.

    So if it is happening it needs to be exposed and dealt with.

    I just haven't seen a shred of evidence that it is happening on any significant or organised scale, especially not in recent times, despite endless opportunities for the accusers to put forward the evidence, or take the alleged harassers to court.

    My bet is that if it has happened it is insignificant, was a long time ago, only involved one or two isolated individuals, who probably had serious mental issues unrelated to ME/CFS, and are probably not patients.

    I note that, as far as I am aware, there has been no consequences for any of the trial participants from the release of the PACE recovery data. Nobody has been identified, or harassed, or intimidated, or anything.

    It is a complete beat up, and every time that accusation and smear is made the response by the patient community should simply be:

    Show us the evidence, and be prepared to submit it for proper examination by the relevant authorities, and make a formal complaint.

    Otherwise, withdraw the accusation, and apologise fully and promptly to the patient community for your reckless, despicable, and cowardly smears.


    I think the truth is that they will stop doing it quick smart, because a genuinely independent and robust public inquiry would find the claims at the very least grossly exaggerated and quite possibly completely baseless, and the accuser's reputation would be destroyed. And the accusers know that.
     
    Esperanza, Inara, Binkie4 and 21 others like this.
  11. chrisb

    chrisb Senior Member (Voting Rights)

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    As a matter of interest, to whom apart from CS could this allude? What might reasonably be termed "leading Charities" and who was in charge of them at the time. I think they should make a joint application to the SMC to withdraw this scurrilous accusation as being, such a small group, all are at risk of reputational damage.
     
    Esperanza, ladycatlover, sea and 12 others like this.
  12. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    https://t.co/899pJkqbIi

    "Can you please provide the number of reports of harassment
    that members of staff have officially recorded with
    Bristol University between September 2010 and June
    2015? I am only interested in those reports where the
    harassment came from outwith the university; that is,
    harassment of university staff by a third party."


    Has Jane Colby clarified why the date September 2010 was requested and not earlier in 2010?

    I've just skimmed the archived posts categorised under SMILE Trial and Lightning Process on ME agenda site:

    The press release for the SMILE Trial was released on March 2, 2010.
    Esther Crawley gave a presentation to a Dorset support group (at which Alastair Gibson the LP practitioner who was at one point involved in the SMILE Trial Pilot study was said to have attended) on March 27, 2010.
    Alastair Gibson had already identified himself, on the Withinspiration website, as “one of the two practitioners working with the NHS and the young people” in March 2010.
    The ASA adjudication on Withinspiration was June 16, 2010.
    FOIs were being submitted to various bodies from at least June 2010.
    MEA and TYMES Trust issued a joint statement on August 4, 2010

    So the SMILE Trial pilot study was being discussed and contested since March 2010 but Jane requested information for the dates September 2010 to January 2017.
     
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  13. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    And presumably AYME.
     
    ladycatlover, Skippa, Jan and 7 others like this.
  14. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    AYME supported the SMILE Trial.
    AfME were supportive at that point.

    TYMES Trust is a very small charity.

    That would appear to only leave the MEA or Invest in ME.

    Note that CS is not "in charge" of the MEA. He is a non office holding member of its Board of Trustees and one of its Medical Advisors.
     
    Esperanza, Inara, Woolie and 11 others like this.
  15. Sean

    Sean Moderator Staff Member

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    Put up, or shut up. Or lawyer up for a defamation case.

    Should be the response.
     
    Inara, ladycatlover, sea and 8 others like this.
  16. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    In the SMC report, EC says:

    "I switched phone numbers, filed the letters and the emails and talked to the police."

    Sean has written:

    "Show us the evidence, and be prepared to submit it for proper examination by the relevant authorities, and make a formal complaint."

    If allegedly threatening letters and emails had been received and had been discussed with the police, that material may now be police evidence and would be unlikely made available to members of the public, either via a direct request to EC, or to the police.

    If EC was holding allegedly threatening letters and emails on file in a personal capacity, as opposed to information and documents being held on file by a university or other body that is subject to the FOI Act, a request for copies of that information/documents would not come under the FOI Act.

     
    Last edited: Oct 30, 2017
    Inara, ladycatlover, Justy and 8 others like this.
  17. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Except none of the charities has the funds to fund a legal case.
     
    ladycatlover, Skippa, Jan and 8 others like this.
  18. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    I've asked Jane Colby why she selected the date "September 2010".
     
    ladycatlover, Skippa, Lidia and 9 others like this.
  19. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    And I think they would need to prove material harm has been done to the charity or to its personnel by implication. No charity or charity leaders were named. So where is your case?
     
    Inara, ladycatlover, Skippa and 3 others like this.
  20. Andy

    Andy Committee Member

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    I think Sean's comment is aimed at those claiming harassment by patients, not at the charities potentially labelled as rabble rousers. At least, that's how I read it.
     
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