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The UK ME/CFS Biobank Christmas 2017 Appeal

Discussion in 'Fundraising' started by Andy, Nov 14, 2017.

  1. Andy

    Andy Administrator Staff Member

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    Read more and donate at https://www.justgiving.com/fundraising/ukmecfsbiobank
     
    Rosie, Skycloud, Esther12 and 14 others like this.
  2. Sasha

    Sasha Senior Member (Voting Rights)

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    Worth quoting this bit too, I think:

    Off to a good start with a very generous £500 (+ £125 Gift Aid!) donation towards the main £25,000 target. But as they say, even a quid could pay for a set of blood samples to be stored for a year. :)
     
    MeSci, Skycloud, Esther12 and 12 others like this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I've emailed Father Christmas.:emoji_fingers_crossed:
     
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  4. Sasha

    Sasha Senior Member (Voting Rights)

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    Video about the biobank from a while back:

     
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  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    http://cureme.lshtm.ac.uk/christmas-2017-fundraising-appeal/
    "
    Any funds donated will be split between these aims, with collaborating research projects to be chosen by the UKMEB Guardian Board.

    — £10,000 would enable a further blood sample and data release,
    — £25,000 would enable the release of samples for two or three studies to be conducted,
    — £40,000 would sustain the UKMEB for 6 months in its entirety."

     
  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    I've not donated to this before, but it does sound a sensible use of resources, and Jonathan Edwards was recommending donations. It's the sort of worthy project likely to lead to long-term benefits that I wish more people would donate to... okay, I've talked myself into it.

    edit- can't do it now. When this thread next gets bumped I will.
     
  7. Andy

    Andy Administrator Staff Member

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    Code:
    https://www.facebook.com/mecfsbiobank/posts/1599003450147092
     
  8. BurnA

    BurnA Senior Member (Voting Rights)

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    Bump :p
     
  9. Esther12

    Esther12 Senior Member (Voting Rights)

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    You are brilliant! - I had totally forgotten about this.
     
  10. Andy

    Andy Administrator Staff Member

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    Dr Elisa Oltra profile.
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1595042630543174
     
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  11. Andy

    Andy Administrator Staff Member

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    Richmond and Kingston ME Group donation.
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1599011780146259


    Dr Camila Malto Romano profile.
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1604299582950812
     
  12. Andy

    Andy Administrator Staff Member

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    Current total £8,195.25 out of a £25,000 target.

    Latest Facebook post from them

    "Our research nurse, Caroline Kingdon, celebrates her birthday today! Here is a clip from our meeting on Wednesday, featuring some dodgy singing from the CureME team...

    We're still fundraising to keep Caroline visiting pwME into the future: https://www.justgiving.com/fundraising/ukmecfsbiobank"

    Code:
    https://www.facebook.com/mecfsbiobank/videos/1604410739606363/
     
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  13. Andy

    Andy Administrator Staff Member

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    Latest update on Facebook from them
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1609311509116286
     
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  14. Andy

    Andy Administrator Staff Member

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    Researcher update with some (additional?) info on their supplementary work funded by the NIH.
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1610366352344135
     
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  15. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Tell everyone you know to contribute to this for a Christmas good deed! It would make a huge difference to morale if £25,000 could be raised towards the running costs to keep things going.
    IMG_0209.jpg
     
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  16. Daisybell

    Daisybell Senior Member (Voting Rights)

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    I’ve just shared the link on Facebook, which I never normally would do. Probably around half of my Facebook friends don’t know I’m ill- but I’m hoping one or two might donate. I’m going to donate for Xmas.
    I’m not ashamed of being ill and I am sick of pretending I’m well just to fit in with what society expects.
    Perhaps I’m turning into a grumpy old woman!
     
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  17. Skycloud

    Skycloud Senior Member (Voting Rights)

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    I had a look on PR and there didn't seem to be a thread on the biobank christmas fundraiser appeal so I made one.
     
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  18. Daisybell

    Daisybell Senior Member (Voting Rights)

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    So no likes for my Facebook post, and no comments, and no donations.
    I am invisible....
     
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  19. Esther12

    Esther12 Senior Member (Voting Rights)

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    Sometimes these things do just disappear without a trace on social media. It could be only a few people even saw it. Thanks for posting, but best not to take to lack of response personally.
     
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  20. Andy

    Andy Administrator Staff Member

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    Well, you're not invisible here. I'm sorry you didn't get any response, I very rarely get an obvious response whenever I share anything on Facebook, but I still think the effort will be worthwhile in the long run, as it helps to normalize ME. And the Biobank isn't an easy sell for donations, it isn't as compelling as donating to research.
     
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