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SIGN NOW! Jeremy Corbyn's e-card needs 20 signatures to reach 1,000! INTERNATIONAL SIGNATURES WELCOME!

Discussion in 'Advocacy Action Alerts' started by Sasha, Nov 19, 2017.

  1. Andy

    Andy Administrator Staff Member

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    My interpretation is that it's an ME Association vs Invest in ME squabble, I've seen hints of tension between the two organisations for a while, although no idea why that might be the case.
     
    Barry, Inara, Binkie4 and 3 others like this.
  2. Allele

    Allele Senior Member (Voting Rights)

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    Sure, I grokked that--but it still seems 100% nonsensical to stick with a competitive/divisive construct and refuse to spread the word so that all patients who wish to can sign a Thank You to Jeremy Fricken Corbyn for giving some desperately needed high-profile attention to this disease and its horribly mismanaged public perception. This is one of the biggest moments for ME in UK history. Bigger than Elizabeth Warren here in the US.

    It reads to an outsider as totally antithetical to patients' interests and wholly petty/inappropriately political.

    But I will stop picking apart their choice, which they are free to make (plus I admire Charles and MEA,) and trust that the word is getting out via many other means.
     
    Justy, Inara, Jan and 5 others like this.
  3. MeSci

    MeSci Senior Member (Voting Rights)

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    704 signatures now including the duplicates and triplicates (etc?).
     
    Jan, Jo Best, Allele and 1 other person like this.
  4. Alis

    Alis Established Member

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    just signed eta I'm a leftie and a LP member and JC supporter so I am so bowled over by this.
     
    Last edited: Nov 21, 2017
    Moosie, Justy, Nellie and 8 others like this.
  5. Alis

    Alis Established Member

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    just sent him an email.if anybody else feels like doing this jeremy.corbyn.mp@parliament.uk eta if I am able to later I may see if I can put a link about the card on some of the leftie sites I sometimes hang around in.
    another edit!! just got a reply from my email the correct address is leader@labour.org.uk the other one is for organisations or his own constituents only.
     
    Last edited: Nov 21, 2017
  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    Up to 723 now... that's not actually much of an increase. I wrongly thought it was 620 earlier today. Thanks to all the signatories.
     
    Inara likes this.
  7. Sasha

    Sasha Senior Member (Voting Rights)

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    I think we need now to think of ways to get this out to a much wider audience of PWME. Perhaps if people write to the other ME charities with which they have links? Whose blogs have big followings?
     
    MeSci and Esther12 like this.
  8. Sasha

    Sasha Senior Member (Voting Rights)

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    734... we need to get this moving faster... anyone not signed?
     
    Jan, Alis, Esther12 and 1 other person like this.
  9. Allele

    Allele Senior Member (Voting Rights)

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    I don't do social media, but has anyone shared this with Jen Brea? Her audience must be quite large by now.
    Also, LLewellyn King.
     
    Inara, Jan, Jo Best and 1 other person like this.
  10. Alis

    Alis Established Member

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    I've just put a link on the 25%me group page
     
  11. Esther12

    Esther12 Senior Member (Voting Rights)

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    Thanks @Alis - I always forget about all those FB groups.
     
    Alis likes this.
  12. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

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    Would it be appropriate for those not in the UK to sign this?
     
    Jo Best, Sasha, Alis and 3 others like this.
  13. Esther12

    Esther12 Senior Member (Voting Rights)

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    I think so. Problems in the UK have ended up causing problems for patients all around the world - sorry about that, we're a sick, sick society!
     
    Justy, Inara, Jan and 8 others like this.
  14. Jo Best

    Jo Best Established Member (Voting Rights)

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    Yes that's fine, I created it for anyone to sign as it's an international conference, but only as an easy way for people to express their thanks if they wished to, I honestly thought only about 30 people might want to sign it so I'm amazed at the response so far.
    Doing another glitch check now :thumbup:
     
    Justy, Inara, Jan and 5 others like this.
  15. Jo Best

    Jo Best Established Member (Voting Rights)

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    Thank you @Alis :thumbup:
     
    Alis, Jan and Liv aka Mrs Sowester like this.
  16. Jo Best

    Jo Best Established Member (Voting Rights)

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    Jen and Omar were at this year's Invest in ME Research Conference -

     
    Justy, Allele, Nellie and 4 others like this.
  17. Jo Best

    Jo Best Established Member (Voting Rights)

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    Justy, Skycloud, Alis and 2 others like this.
  18. Sasha

    Sasha Senior Member (Voting Rights)

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    I think it's important to get Jen etc. to tweet about the thank-you card, if we can.
     
    Allele and Jan like this.
  19. Allele

    Allele Senior Member (Voting Rights)

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    I agree, @Sasha. The bigger the number of signatories, the more heft Mr Corbyn might consider putting into the issue down the line.
     
    Esther12, Jan, Alis and 4 others like this.
  20. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

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    I think we're all just so grateful that someone of consequence is taking this disorder seriously. :balloons:
     
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