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'Robin' - a video game where you play a woman with ME/CFS

Discussion in 'General ME/CFS News' started by Sasha, Dec 7, 2017.

  1. Sasha

    Sasha Senior Member (Voting Rights)

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    From 2016 but I'd never heard of it:

    Code:
    https://twitter.com/PlzSolveCFS/status/938625819987062784
     
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  2. Valentijn

    Valentijn Moderator Staff Member

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    They already lost me at the screen shot. How many ME patients go into the doctor and say "But why do I feel so tired all the time?"

    I went in and said "Why do my ribs hurt so much?" Then a couple weeks later that was gone, but the question became "Why do my legs keep burning so badly that I can barely stand after I walk to the bus stop, followed by chills and exhaustion when I get home?" And then "Why can't I sit up for even a minute without getting too light-headed to think straight?"

    Youtube video review at

    Apparently despite not being able to both feed the bird and herself on the same day, she's "well prepared for the coming week of work." :confused:

    I think this tweet from the developers exemplifies their lack of understanding quite well:
     
  3. EzzieD

    EzzieD Established Member (Voting Rights)

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    Sigh. As usual, it's all about 'tiredness'. I wish that folks who feel the urge to write about, talk about, or make games about this condition would take the time to educate themselves on what the symptoms really are, and not spread misinformation.

    And, that screen in the game that says "Robin is feeling down. She spent the whole week on chores and boring things, and she still feels tired after everything. However, she is well prepared for the coming week of work" - huh?? :rofl:
     
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  4. Trish

    Trish Senior Member (Voting Rights)

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    Definitely not about ME if that's what they think. What a pity.
     
  5. Sasha

    Sasha Senior Member (Voting Rights)

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    I haven't watched this but it's something that Solve are promoting on the site and social media so if it's wrong, it would be great if people could feed that back to them.
     
  6. Wonko

    Wonko Senior Member (Voting Rights)

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    Really quite annoying.
     
  7. Valentijn

    Valentijn Moderator Staff Member

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    Good point, and done now:
     
  8. EzzieD

    EzzieD Established Member (Voting Rights)

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    I went and tweeted my 2 cents worth too, FWIW. I think promoting the game will only annoy sufferers rather than evoke a good reception from them, and will perpetuate more wrong information to non-sufferers about how ME/CFS just = 'tired'.
     
  9. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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    Started watching but that shouty screechy git at the beginning was too much to listen to even with the volume right down for 30 seconds. Sounds like he needs to take a trip with Dan TDM and never come back...wont waste my cognitive energy looking based on the reviews above. I wonder what sort of game we could make that would make it more realistic?

    Perhaps have the screen go blurry every 10-20 min to represent brain fog slowly fading away then turn the volume right up with screeching noises (presenter at the beginning of that video?) followed by bright glaring white light?
     
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  10. Valentijn

    Valentijn Moderator Staff Member

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    Random fluctuations in energy, if you go too high (actual threshold isn't displayed), your energy is severely reduced the next day. The bird probably croaks, and the plants don't have a chance. Dirty dishes form a mountain of stink. Writing your book? Maybe some incomprehensible babble :p

    Then your nice long weekend is over, so you can snap out of it and face the work week. Unfortunately, you collapse halfway to the bus stop and die on the sidewalk :dead: An LP practitioner walks by and tries to convince you that you can reverse death if you just start thinking positively and stop "doing" the dead thing.
     
  11. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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    Perhaps you could have a random event generator where one spin,of the wheel you die on the way, another you manage to drag yourself to work but then perish by lunchtime, and another you could survive but have a slow campaign of work colleagues attacking your personality and quality of work.

    Oh know you got made redundant...go to the job centre do not pass go and do not collect a wage slip.

    You could also have "take a pacing card". 10 units of metabolic energy left, do you:
    A. Wash yourself
    B. Prepare a meal
    C. Spend 20 minutes being patronised by a well meaning friend or relative

    If you choose to forgo the washing your character could develop an increasing cloud of filth (like pigpen from Charlie Brown) ?
     

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