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Research Conference in Oslo 20-21 nov with Davis, Hornig & Mella

Discussion in 'General ME/CFS News' started by Kalliope, Nov 2, 2017.

  1. Kalliope

    Kalliope Established Member (Voting Rights)

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    Research Conference in Oslo 20 - 21. November 2017

    The Norwegian ME Association is preparing a research conference in cooperation with Oslo university Hospital and the Norwegian Institute of public Health. The first day is for researchers only, primarily from Scandinavia. The second day has an open program and will contain lectures from among others Olav Mella, Mady Hornig and Ron Davis.

    Later that day the ME Association will celebrate their 30 year anniversary with a concert and a screening of Unrest.

    Not sure yet whether any of the conference will be streamed.

    (Post originally posted in thread News from Scandinavia, but made a new thread in order to add the event to the forum calendar)
     
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  2. ivorin

    ivorin Established Member

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    Let's have us some Ritux hints, shall we?
     
  3. Sasha

    Sasha Senior Member (Voting Rights)

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    Is there a hashtag where we might find live tweeting or anything, @Kalliope?
     
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  4. Kalliope

    Kalliope Established Member (Voting Rights)

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    Good question @Sasha I'll look into that.
     
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  5. Kalliope

    Kalliope Established Member (Voting Rights)

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    Ron Davis has cancelled the trip, but doctor Katarina Lien will take his place. She is working on a PhD on ME and exercise intolerance measured with ergospirometry-testing.

    @Sasha As far as I know, there won't be live tweeting, but people are working on making live streaming possible. Let's cross our fingers.
     
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  6. Sasha

    Sasha Senior Member (Voting Rights)

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    Any update on this, Kalliope? Just realised it's Day 2 today!

    Are you attending the conference?
     
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  7. Anne O

    Anne O New Member

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    Anyone here attending the conference (starting in just a few minutes, I think!)
     
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  8. Kalliope

    Kalliope Established Member (Voting Rights)

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    It is starting now.

    Am not attending, but am keeping an eye out for updates from others and will share here if I see anything.
     
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  9. Kalliope

    Kalliope Established Member (Voting Rights)

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    Here is a picture at least. Seems to be very well attended. You can spot Mella and Hornig at the podium.
     
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  10. Sasha

    Sasha Senior Member (Voting Rights)

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    Thanks, @Kalliope - let's hope Hilde keeps posting!

    Do we know if there's a hashtag to look out for on Twitter?
     
  11. Kalliope

    Kalliope Established Member (Voting Rights)

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    No news yet from the seminar, but just heard it is being filmed, so those of us who can't attend will get a chance to see it eventually. :)
     
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  12. Kalliope

    Kalliope Established Member (Voting Rights)

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    News are spreading now in several places, so it is official.. The effect of Rituximab in the trial RituxME is negative.

    This is discouraging news. Warms hugs to everyone.

    We will keep on looking for treatments. We are not giving up!
     
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  13. Sasha

    Sasha Senior Member (Voting Rights)

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    Oh crap...

    Where is this coming from, though, Kalliope? Have Fluge and Mella said so?

    Bit worried about jumping to conclusions...
     
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  14. Kalliope

    Kalliope Established Member (Voting Rights)

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    As far as I know this was said by Mella today at the conference.
     
  15. Sasha

    Sasha Senior Member (Voting Rights)

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  16. Kalliope

    Kalliope Established Member (Voting Rights)

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    Brief account of the Research conference and the celebration of the 30 year anniversary for the Norwegian ME Association
    Forskningskonferanse og fagdag, ME-foreningen feirer 30 år
    Google translation Research Conference, Seminar, The ME Association celebrates 30 years

    - Initially, Ron Davis hoped to come, but unfortunately it was impossible due to of family illness. However, he sent a video greeting and a brief update of what his team is working on. Katarina Lien held an interesting lecture on abnormal lactic acid production in ME-patients. Olav Mella gave a summary of the research at Haukeland, and it was another big disappointment for many when he reported that the RituxME study was negative on the main issue - whether Rituximab was effective as a treatment for ME. However, he reminded that there were many other things that were measured during the study and that there were probably many other interesting results in the waiting. Due to technical problems, Ola Didrik Saugstad's lecture went out, and the seminar ended with a panel discussion led by Jørgen Jelstad.
     
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