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ME videos

Discussion in 'Science Library (Read only)' started by Cheshire, Nov 15, 2017.

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  1. Cheshire

    Cheshire Senior Member (Voting Rights)

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    Biomedical Research in ME/CFS


    *Research overviews


    The Latest Research on CFS (Lecture)
    Massachusetts CFIDS/ME & FM Association
    Anthony L. Komaroff, MD
    2013

    Link to video

    Action for M.E. AGM 2013
    Action for ME
    Stephen Holgate

    2013
    Link to video

    One Person's Highlights of the Biological Research Presentations
    IACFS/ME Conference
    Anthony L. Komaroff, M.D.
    2014

    Link to video

    The Biology of Chronic Fatigue Syndrome

    Medicine Grand Rounds - Stanford School of Medicine
    Anthony L. Komaroff, M.D.
    2014
    Link to video

    ME & possible treatments
    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Charles Shepherd
    2014

    Link to video

    Promising discoveries and research
    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Charles Shepherd
    2014

    Link to video

    State of affairs regarding ME
    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Charles Shepherd
    2014

    Link to video

    ME and the future
    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Julia Newton

    2014
    Link to video

    2014 ME/CFS Research Review

    Solve ME/CFS
    Suzanne D Vernon
    2014
    Link to video

    New Developments in ME/CFS Research
    Solve ME/CFS
    Dr. Alan R. Light

    2015
    Dr. Alan R. Light, Research Professor of Anesthesiology and Neurobiology and Anatomy at the University of Utah.
    Link to video

    Pre-Conference Dinner Keynote Speech Kjersti Krisner

    11th International ME Conference 2016 - IIMEC11
    Kjersti Krisner
    2016
    Link to video


    *Specific Research programs


    NIH
    Webinar with Avindra Nath, M.D.
    Solve ME/CFS
    Dr. Avindra Nath
    2016
    Link to video

    Cornell university
    Webinar with Dr. Maureen Hanson
    Solve ME/CFS
    Maureen Hanson
    2016
    Maureen Hanson, PhD, professor of molecular biology and genetics at Cornell University.
    Link to video

    Solve ME/CFS
    Progress and Challenges in ME/CFS with Zaher Nahle, PhD, MPA
    Solve ME/CFS
    Zaher Nahle
    2016
    Link to video

    Standford University

    ME/CFS Symposium at Stanford

    2017
    Link to video

    An Update on ME/CFS Research with Dr. Ronald W. Davis

    Open Medicine Foundation - OMF
    Ronald W. Davis
    2017
    Link to video

    UK ME/CFS Biobank

    London School of Hygiene and Tropical Medicine
    Dr Charles Shepherd
    2015
    Link to video

    *International research

    What do we need to do – research in ME/CFS

    Invest in ME
    Prof Julia Newton, Karl Morten
    2017
    Prof Julia Newton of Newcastle University and Karl Morten of Oxford University talk about forging international collaborations in the field of M.E./CFS research.
    Link to video
     
    Last edited: Dec 2, 2017
  2. Cheshire

    Cheshire Senior Member (Voting Rights)

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    Biomedical Research in ME/CFS

    *Metabolism


    ME, exercise and the mitochondria

    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Charles Shepherd
    2014
    Link to video

    Research into Mitochondria & M.E.
    Dr Karl Morten
    2016

    Link to video
    S4ME thread

    Mitochondria not Hypochondria
    CCDP
    2016
    Link to video

    Abnormal Exercise Response and Metabolism in ME/CFS

    RME Konferens Malmö
    Pr. Maureen Hanson, Cornell University, New York
    2017
    Link to video

    Professor Warren Tate's Update on His Research into ME/CFS

    ANZMES Annual General Meeting
    Professor Warren Tate
    2017

    Link to video
    S4ME thread

    Metabolites

    Webinar with Christopher Armstrong

    Solve ME/CFS
    2016
    Link to video

    *PEM

    Top 10 Things You Should Know About Post-Exertional Relapse

    Solve ME/CFS
    2012
    During a webinar held July 19, 2012, researchers from the Pacific Fatigue Lab at the University of the Pacific shared their insights into the characteristics of PEM and addressed the 10 most-asked questions about it based on hundreds of questions submitted in advance.
    Link to video

    Deciphering Post Exertional Malaise

    Dane B. Cook
    Solve ME/CFS
    2014
    Dane B. Cook, Ph.D. is assistant professor of Kinesiology at the University of Wisconsin, Madison. Cook describes the system biology approach his team is taking to provide a clear picture as to what causes post-exertional malaise.
    Link to video

    Mark VanNess 'Exercise and ME/CFS' at Bristol Watershed

    2014
    Prof Mark VanNess from the Workwell Foundation USA presents evidence of the damaging consequences of aerobic exercise programmes (such as GET) for people with ME, comments on observations made by people in the 'Voices from the Shadows' film shown, and explains a more helpful approach to activity and exercise management. Filmed & edited by J Biggs.
    Link to video

    Post-Exertional Malaise: History, Characteristics, Evidence

    Dr. Lily Chu
    Solve ME/CFS
    2015
    Dr. Chu is Co-Vice President of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and a Stanford University ME/CFS Initiative Community Advisory Board Member
    Link to video

    Inducing Post-Exertional Malaise in ME/CFS: A Look at the Research Evidence

    Dr. Peter Rowe, Johns Hopkins Children’s Center
    Solve ME/CFS
    2015
    Link to video

    Post-Exertion Malaise: The Intersection of Biology and Behavior

    Solve ME/CFS
    Dr. Dane B. Cook
    2015
    Much of Dr. Cook’s research uses functional magnetic resonance imaging (fMRI), in conjunction with biological and behavioral outcomes, to understand central nervous system mechanisms of pain and fatigue in patients with fibromyalgia and ME/CFS and veterans with Gulf War illness. These studies combine exercise science and brain imaging methods to better understand these diseases. More recently, Dr. Cook’s research has begun to incorporate additional biological systems, such as the immune, autonomic and gut microbiome to better understand how distinct, yet related, physiological responses interact to maintain illness.
    Link to video

    PEM

    MEFM Society of BC May Awareness Event
    Stacie Stevens
    2015
    Link to video

    Exercise

    Clinical exercise testing in CFS/ME research and treatment

    RME Stockolm
    Professor Christopher R. Snell, Pacific Fatigue Laboratory, Kalifornien, USA
    2012
    Link to video

    Exercise and ME/CFS
    Bristol Watershed
    Dr Nigel Speight
    2014
    Link to video

    Expanding Physical Capability in ME/CFS

    MEFM Society of BC
    Dr. Mark Van Ness
    2016
    Part 1
    Part 2

    *Immunology

    Stanford's Dr. Jose Montoya on Chronic Fatigue Syndrome

    Stanford Health Care
    Dr. Jose Montoya
    2011
    This talk features discussion about CFS and current research regarding diagnosis and treatment, and the possible CFS-infection connection.
    Link to video

    Investigator Report: Decoding the Human Immune Response

    Solve ME/CFS
    Derya Unutmaz
    2014
    Derya Unutmaz, MD, is Professor of Microbiology, Pathology and Medicine at NYU Langone Medical Center. Unutmaz is using samples from the SolveCFS BioBank to understand the “Good, Bad and Ugly” aspects of the immune response in ME/CFS. Unutmaz hypothesizes that a disproportionate immune response leads to damage in ME/CFS. He will describe what the immune signature of ME/CFS looks like compared to a healthy immune response.
    Link to video

    Olav Mella speaks about the Rituximab study and ME/CFS future

    Olav Mella
    2014
    Olav Mella from Haukeland University Hospital in Norway speaks about the upcoming Rituximab study at the premiere for the film Perversely Dark.
    Link to video

    The RituxME and CycloME studies – Ongoing Clinical Research in the ME/CFS Research Group

    RME Sverige
    Öystein Fluge
    2016
    Link to video

    ME/CFS and the immune system. Where are we now?

    RME Konferens Malmö
    Geraldine (Jo) Cambridge, PhD, Dep.Medicine, University College, London
    2017
    Link to video

    CMRC Conference 2017 day 2 - Prof Jose Montoya

    ActionFor M.E.
    Prof Jose Montoya
    2017
    Prof Jose Montoya of Stanford University talks about his latest research involving Cytokines in the blood of people with M.E./CFS.
    Link to video

    Discovery Forum 2017: An Interview with Dr. Ian Lipkin
    Solve ME/CFS
    Dr. Ian Lipkin
    2017
    In this exclusive interview, Dr. Zaher Nahle discusses ME/CFS science and policy with Dr. Ian Lipkin, Director of the Center for Infection & Immunity at Columbia University and the director of the new NIH-funded Center for Solutions for ME/CFS.
    Link to video

    From Theater to Science: A ’Medical Detective’ Describes His Journey

    White House Chronicle Llewellyn King
    Dr. Ian Lipkin
    2017

    Link to video
    S4ME thread

    *Neurology

    Webinar with Jarred Younger, Ph.D.

    Solve ME/CFS
    Jarred Younger
    2016
    Jarred Younger, Ph.D., is Associate Professor in the Departments of Psychology, Anesthesiology and Rheumatology in the University of Alabama at Birmingham. Dr. Younger obtained his Ph.D. in Experimental Psychophysiology at the University of Tennessee, Knoxville in 2003 and completed postdoctoral pain research fellowships at Arizona State University and Stanford University before accepting an Assistant Professor position at Stanford University in Anesthesiology in 2010. Dr. Younger moved to the University of Alabama at Birmingham in 2014 to establish the Neuroinflammation, Pain and Fatigue Laboratory, where he oversees the development of new diagnostic tests and treatments for chronic pain and fatigue disorders.
    Link to video

    *Autonomic dysfunction

    Guidance for GPs and other health professionals on autonomic dysfunction fatigue in ME-CFS

    Professor Julia Newton (Newcastle Hospitals NHS Trust, Dean for Clinical Medicine Newcastle University) on autonomic dysfunction and fatigue in ME-CFS.
    Action for ME
    2014
    Link to video

    Managing Orthostatic Intolerance

    Peter Rowe
    Solve ME/CFS
    2010
    In this Sept. 1, 2010 webinar, Peter Rowe, MD, of Johns Hopkins University School of Medicine describes orthostatic intolerance (OI) and approaches to its treatment in chronic fatigue syndrome (CFS). He explains the different forms of OI, including neurally mediated hypotension (NMH) and postural orthostatic tachycardia syndrome (POTS) and other names used to describe these conditions. Dr. Rowe covers overlapping and co-existing conditions including joint hypermobility, Ehlers Danlos Syndrome (EDS), migraine, allergy, pelvic congestion syndrome. He reviews medications used to treat OI as well as postural and dietary approaches to comprehensive care.
    Link to video

    CMRC Conference 2017 day 1 - Dr Peter Rowe

    Action For M.E.
    Dr Peter Rowe
    2017
    Dr Peter Rowe of the John Hopkins Children's Centre for CFS in the USA talks about Orthostatic Intolerance and the lessons that have been learned about it over the last two decades.
    Link to video

    *Neuromuscular dysfunction

    Neuromuscular Strain in ME/CFS

    Peter Rowe
    Solve ME/CFS
    2014
    Peter Rowe, MD, describes some novel observations about restrictions in range of motion in the limbs and spine in those with ME/CFS. Many affected individuals have restricted movements and increased mechanical tension in nerves. Applying a further mechanical strain to the nervous system can provoke increased symptoms in some patients. These concepts are starting to help explain the pathogenesis of some symptoms and neurological abnormalities in the illness—not only how they might arise but also how we might treat them more effectively.
    Link to video

    The metabolism and the muscles

    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Julia Newton
    2014
    Link to video


    *Microbiome

    The Altered Gut Microbiome in ME/CFS

    Professor Jonas Blomberg, Uppsala Universitet
    2017
    Link to video

    *Genes

    Investigator Report: Epigenetics of ME/CFS

    Solve ME/CFS
    Patrick O. McGowan
    2014
    Patrick O. McGowan used blood samples from the SolveCFS BioBank to identify the chemical modifications (e.g., methylation) to the DNA that is different in ME/CFS patients compared to healthy people. This type of research will help explain the immune dysfunction of ME/CFS.
    Link to video

    Novel Gene Variants in ME/CFS and Fibromyalgia

    Bateman Horne Center
    Alan Light
    2017
    Link to video
     
    Last edited: Dec 12, 2017 at 6:33 PM
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  3. Cheshire

    Cheshire Senior Member (Voting Rights)

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    *Sleep

    ME and sleep disorders

    Wetenschap voor Patienten - ME/cvs Vereniging
    Kenny de Meirleir
    2013
    Link to video


    Can ME CFS and Fibromyalgia Research Help You Sleep?
    Dr. Lucinda Bateman
    Solve ME/CFS
    2014
    Dr. Lucinda Bateman tells us about the body systems that regulate and affect sleep and how these systems are affected in patients with ME/CFS and Fibromyalgia. Dr. Bateman will discuss sleep research can translate into practical solutions and treatment in ME/CFS and FM.
    Link to video


    ME and sleep

    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Julia Newton
    2014
    Link to video


    Sleep and ME/CFS

    Suzanne Vernon, PhD
    Bateman Horne Center
    2015
    Link to video



    *Cognition

    Cognition & CFS: What Do We Know?

    Dr. Gudrun Lange and Dr. Suzanne Vernon
    Solve ME/CFS
    2012
    Impaired cognition in CFS is one of the most disabling and frustrating symptoms patients experience. Deficits in short-term memory, information processing and processing speed have been documented by several research groups. How closely does the medical literature reflect patients' experiences and how can cognitive testing help support self-reported measures?
    Link to video


    ME/cfs and neuropsychological symptoms

    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. M. Vollema, clinical neuropsychologist
    2013
    Link to video


    Neurocognitive problems in ME

    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Julia Newton
    2014
    Link to video


    ME versus psychiatric disorders

    Wetenschap voor Patienten - ME/cvs Vereniging
    Prof. Leonard Jason
    2014
    Link to video



    *Pain

    ME and pain

    Wetenschap voor Patienten - ME/cvs Vereniging
    Kenny de Meirleir
    2013
    Link to video



    *Cardiology

    Wetenschap voor Patienten - ME/cvs Vereniging

    With Prof. Dr. F.C. Visser, cardiologist
    2013

    ME/cfs and the heart

    Link to video

    ME/cfs and palpitations

    Link to video

    ME/cfs and cardiac arrhythmias

    Link to video

    ME/cfs and POTS (Postural Orthostatic Tachycardia Syndrome)

    Link to video

    ME/cfs and the blood flow in the brain

    Link to video

    ME/cfs and orthostatic intolerance

    Link to video



    * Children and adolescents

    Wetenschap voor Patienten - ME/cvs Vereniging
    With Dr. Nigel Speight

    In this web seminar the English paediatrician Dr. Nigel Speight is being interviewed by Rob Wijbenga, chairman of the Dutch ME/cvs Association and coordinator of the project 'Wetenschap voor Patiënten' or in English 'Science to Patients'.
    Dr. Nigel Speight has been involved in 30 child protection cases where children with ME have been threatened by removal from their families by social services. In this interview he talks about this cases and the situation with regard to children with ME in Great Brittain.

    Interview with Dr. Nigel Speight (paediatrician)

    Link to video

    What is ME and what is CFS?

    Link to video

    Diagnostic tools for ME

    Link to video

    ME/cfs and the course of the disease

    Link to video

    ME & children, part 1

    Link to video

    ME & children, part 2

    Link to video

    Future and hope

    Link to video


    A Clinical Approach to ME/CFS in Adolescent and Young Adults: A Practical Primer

    Solve ME/CFS
    Peter Rowe
    2017
    Link to video


    *Ageing

    Ageing and ME

    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Julia Newton
    2014
    Link to video



    *Diagnosis

    Defining CFS: Diagnostic Criteria and Case Definitions

    Dr. Leonard A. Jason
    Solve CFS/ME
    2010
    In this presentation, Dr. Leonard A. Jason of DePaul University explores current CFS and ME/CFS case definitions and whether they adequately identify patients who have this illness. He offers the argument that better case definitions might help identify more homogenous patient groups, which could facilitate the identification of biological markers for this illness. Dr. Jason has been engaged in several of the efforts to craft meaningful definitions for CFS. He will discuss the various CFS case definitions, how they impact research and care, and how the definitions might be improved to better serve researchers, clinicians, and patients.
    Link to video


    What is the difference between ME and CFS

    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Charles Shepherd
    2014
    Link to video


    How is ME diagnosed?

    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Charles Shepherd
    2014
    Link to video


    ME and its triggers

    Wetenschap voor Patienten - ME/cvs Vereniging
    Dr. Charles Shepherd
    2014
    Link to video


    Criteria and diagnosis, part 1

    Wetenschap voor Patienten - ME/cvs Vereniging
    Prof. Leonard Jason
    2014
    Link to video


    Criteria and diagnosis, part 2

    Wetenschap voor Patienten - ME/cvs Vereniging
    Prof. Leonard Jason
    2014
    Link to video


    Population and social impact

    Wetenschap voor Patienten - ME/cvs Vereniging
    Prof. Leonard Jason
    2014
    Link to video


    P2P 2014 Meeting on ME and CFS

    Leonard Jason's presentation
    2014
    Link to video


    Dr Ellen Wright Clayton at the SMCI IOM briefing

    Solve ME/CFS
    Ellen Clayton
    2015
    On March 25,2015, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., on the Institute of Medicine’s report on myalgic encephalomyelitis/Chronic Fatigue Syndrome.
    Link to video


    Will SEID Diagnostic Criteria Improve Diagnosis and Treatment?

    Solve ME/CFS
    Dr Lucinda Bateman
    2015
    Link to video


    Sub Groups

    CFS Subgroups

    Younger Lab
    Jarred Younger
    2017
    Here are some new results from the daily blood draw Chronic Fatigue Syndrome study that suggests there are important subgroups.
    Link to video
     
  4. Cheshire

    Cheshire Senior Member (Voting Rights)

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    Documentaries/TV report

    *Documentaries


    I remember ME

    Kim Snyder
    2000
    Link to information
    Link to documentary


    Voices from the shadows

    Natalie Boulton and Josh Biggs
    2012
    “Voices from the Shadows” shows the brave and sometimes heartrending stories of five ME patients and their carers, along with input from Dr Nigel Speight, Prof Leonard Jason and Prof Malcolm Hooper. It was filmed and edited between 2009 and 2011 by the brother and mother of an ME patient in the UK. The film shows the devastating consequences that occur when patients are disbelieved and the illness is misunderstood. Severe and lasting relapse occurs when patients are given inappropriate psychological or behavioural management: management that ignores the reality of this physical illness and the severe relapse or exacerbation of symptoms that can be caused by increased physical or mental activity, over exposure to stimuli and by further infections.
    Link to trailer
    Link to film website


    Forgotten Plague

    Ryan Prior
    2016
    Ryan Prior’s life imploded October 22, 2006 when he was struck down by a disease that dozens of doctors were powerless to diagnose, let alone treat. Against great odds, he becomes a reporter and ventures to tell the story of his suffering and improbable recovery. He is shocked that millions globally remain sidelined by the same disease, many bedridden for decades.

    Forgotten Plague is a journey into the hidden world of myalgic encephalomyelitis (chronic fatigue syndrome). It is a chilling tale of our medical system’s failures in addressing many chronic, complex diseases. Yet it is also a riveting story of science’s remarkable ability to transform medicine and improve human life itself.
    Link to film website

    Unrest

    Jennifer Brea
    2017

    Jennifer Brea is an active Harvard PhD student about to marry the love of her life when suddenly her body starts failing her. Hoping to shed light on her strange symptoms, Jennifer grabs a camera and films the darkest moments unfolding before her eyes as she is derailed by M.E. (commonly known as Chronic Fatigue Syndrome), a mysterious illness some still believe is “all in your head.”

    In this story of love and loss, newlyweds Jennifer and Omar search for answers as they face unexpected obstacles with great heart. Often confined by her illness to the private space of her bed, Jen is moved to connect with others around the globe. Utilizing Skype and social media, she unlocks a forgotten community with intimate portraits of four other families suffering similarly. Jennifer Brea’s wonderfully honest portrayal asks us to rethink the stigma around an illness that affects millions of people. Unrest is a vulnerable and eloquent personal documentary that is sure to hit closer to home than many could imagine.

    Unrest
    world-premiered January in the documentary competition at the 2017 Sundance Film Festival, where it won a Special Jury Prize for editing. It has since screened at SxSW, CPH:DOX, HotDocs, River Run (Audience Award for Best Documentary Feature), the Nashville Film Festival (Grand Jury Award for Best Documentary Feature), among Sheffield Doc/Fest (Illuminate Award). It also has a companion VR piece which premiered at Tribeca and won the Jury Award for best VR at Sheffield/DocFest.

    Link to watch movie
    Link to trailer


    TV shows and series


    The Golden girls


    *Living with ME /Patient's perspective

    Stuart Murdoch of Belle and Sebastian ME/CFS Interview in L.A.

    Solve ME/CFS
    Stuart Murdoch
    2015
    Stuart Murdoch, lead singer of the indie band Belle and Sebastian, talks to the Solve ME/CFS Initiative about his experience with the disease Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
    Link to video

    QUB ePatient Conference
    Sally Burch

    2015
    Link to video

    What happens when you have a disease doctors can't diagnose
    TedTalk

    Jennifer Brea
    2017
    Five years ago, TED Fellow Jen Brea became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome, a debilitating illness that severely impairs normal activities and on bad days makes even the rustling of bed sheets unbearable. In this poignant talk, Brea describes the obstacles she's encountered in seeking treatment for her condition, whose root causes and physical effects we don't fully understand, as well as her mission to document through film the lives of patients that medicine struggles to treat.
    Link to video
     
    Last edited: Nov 15, 2017
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  5. Cheshire

    Cheshire Senior Member (Voting Rights)

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    *Advocacy

    6 Ways to Maximize Your Congressional Advocacy Impact
    Solve ME/CFS
    2017
    Join Advocacy and Engagement Manager Emily Taylor to learn 6 ways to maximize your advocacy impact and hear about SMCI’s 2017 congressional advocacy strategy.
    Link to video


    ME/CFS Advocacy Week: Local Action Training
    Solve ME/CFS
    Emily Taylor, Gail Cooper
    2017
    Solve ME/CFS Initiative Director of Advocacy and Public Relations, Emily Taylor, and #MEAction Congressional Chair, Gail Cooper, teach you how to be a part of your local advocacy team for ME/CFS Advocacy Week.
    Link to video


    ME/CFS Advocacy Week: District Action Training
    Solve ME/CFS
    Emily Taylor, Gail Cooper
    2017
    Link to video


    Welcome Washington! How to conduct your D.C. Meeting
    Solve ME/CFS
    Emily Taylor, Gail Cooper
    2017
    Link to video


    *ME (lack of) funding

    Money and ME
    MEAnalysis
    2013
    Link to video


    NIHspending2017
    MEAnalysis
    2016
    Link to video


    *Politics

    California Passes a Resolution for ME/CFS
    Solve ME/CFS
    2017
    We did it! Watch California become the 6th state to pass a resolution for ME/CFS with unanimous support!
    Link to video


    Senator Markey Stands Up for ME/CFS disease!
    Solve ME/CFS, #MEAction
    2017
    U.S. Senator Ed Markey (D-MA) speaks about the urgent need to support ME/CFS and increase federal funding at a congressional briefing organized by the Solve ME/CFS Initiative and #MEAction
    Link to video


    *ME history

    CFS and the CDC's Failure to Respond
    Primetime Live
    1996
    This is a Primetime Live news piece on chronic fatigue syndrome (CFS) from 1996. It covers the sudden U.S. outbreaks in the 1980s and the CDC's lack of response. Discussion includes Dr. Paul Cheney, Dr. Daniel Peterson, Dr. David Bell, Elaine DeFreitas, Hillary Johnson, and Osler's web.
    Link to video


    CFS / CVS - Dr. Byron Hyde
    Wetenschap voor Patienten - ME/cvs Vereniging
    2016
    Dr Byron Hyde talks about 1930’s epidemics.
    Link to video






     
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  6. Cheshire

    Cheshire Senior Member (Voting Rights)

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    Biopsychosocial view of ME and CFS

    *Royal Society of Medicine “Chronic Fatigue Syndrome” Conference - 2008

    CBT and GET - Professor Rona Moss-Morris
    Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
    Professor Rona Moss-Morris
    2008
    Link to video

    Epidemiology
    Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
    Professor Simon Wessely, King's College London
    2008
    Link to vide

    What is Chronic Fatigue Syndrome? And What is ME? What is CFS?
    Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
    Peter D White
    2008
    Link to video
    Comments on lecture by Charles Shepherd


    Assessment: psychiatrists approach
    Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
    Professor Matthew Hotopf Institute of Psychiatry, London
    2008
    Link to video

    Pathophysiology
    Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
    Dr Anthony Cleare Institue of Psychiatry, London
    2008
    Link to video

    What drugs can I use?
    Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
    Dr Alastair Miller Royal, Liverpool University Hospital
    2008
    Link to video

    Management: NICE Guidelines
    Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
    Professor Richard Baker, Leicester University
    2008
    Link to video
    Me Association Statement about RSM 2008
    MEAction Concerns about RSM 2008

    *Lectures

    Psychological issues in the management of Chronic Fatigue Syndrome and other long term conditions
    Alison Wearden
    Date unknown
    Link to video

    'Understanding and managing chronic fatigue syndrome in an interpersonal context'
    Professor Alison Wearden
    2014
    'Understanding and managing chronic fatigue syndrome in an interpersonal context', Professor Alison Wearden speaking at 2014 Division of Health Psychology annual conference in York.
    Link to video

    Severe M.E. Symposium
    Action for M.E.
    Dr Clare McDermott
    2014
    Link to video

    ME/Chronic Fatigue Syndrome: Not Just Tired All The Time!
    Dr Alistair Miller
    2015
    ME/CFS is a complex, long-term, chronic illness affecting an estimated 250,000 people in the UK. This lecture will provide a general account of the history, epidemiology, suggested cause, disease mechanisms and current treatment approaches for ME/CFS.
    Link to video

    UK CMRC Conference 2016
    Esther Crawley
    Paediatric CFS/ME, by Dr Esther Crawley (Bristol University) Involving severe and very severely affected CFS patients and M.E. individuals in research - a clinician's point of view, by Victoria Strassheim (Newcastle University).
    2016
    Link to video

    Disrupting Your View Of ME
    TEDxBristol
    Esther Crawley
    2017
    S4ME thread
    Link to video: Part 1 - Part 2

    *Other videos

    Training videos for English GPs on how to deal with CFS patients
    Link to video
    Link to video
    Link to video
    Link to video


    Chronic fatigue syndrome - 10 Minute CBT
    2013
    Link to video


    *Medically unexplained symptoms

    Patients with Medically Unexplained Symptoms
    EADMT Conference 2014
    Helen Payne
    Link to video

    Dr Jim Bolton presents 'Medically Unexplained Symptoms'
    Undergraduate Psychiatry
    Jim Bolton
    2015
    Be warned, this is a pretty nasty video.
    Link to video

    DHP 2015 LIVE - VINCENT DEARY
    VINCENT DEARY
    We need to talk about Anne: Towards a multidisciplinary understanding of human suffering
    2015
    Link to video

    ---------------------------------


    Critique of BPS/psychosomatic theories

    *ME and CFS BPS model

    Medical, Scientific, Political and Journalistic Pitfalls in the Study of Confusing Illnesses
    Julie Rehmeyer
    Santa Fe Institute
    2014
    When illnesses are confusing, without clear mechanisms or sharply-defined symptoms, they are often considered psychosomatic, and there's a consistent pattern of poor handling by federal agencies, researchers, doctors, and the media. AIDS, multiple sclerosis, chronic Lyme disease, and chronic fatigue syndrome are all cases of this. I'll describe this pattern, focusing on chronic fatigue syndrome in particular, along with my understanding of why it happens.
    Link to video

    Pr. James Coyne on poor British and Dutch fatigue studies
    Unrest presentation (The Nederland)
    2017
    Link to video

    ObjectiveEvidence&CFS
    MEAnalysis
    2017
    Link to video

    *The PACE trial

    The Pace Race
    MEAnalysis
    2012
    Link to video

    How's That Recovery?
    MEAnalysis
    2014
    Link to video

    Dr. David Tuller discusses the flaws of the PACE trial
    David Tuller
    2016
    The PACE trial, a research project that should investigate the effects of CBT and GET in CFS is at this moment famous for it's severe and obvious flaws. Nevertheless it was the basis for guidelines in many countries. But for how long? And how long can the Lancet uphold their support for this in scientific terms disastrous research project?
    Link to video

    Pre conference Dinner Presentation London 2017
    #IIMEC12
    David Tuller
    2017
    Link to video

    Interview with David Tuller PhD
    David Tuller
    2017
    An interview with David Tuller PhD, investigative reporter and academic coordinator at University of California, Berkeley. David discusses his ongoing investigations into the PACE trial, including his dealings with Esther Crawley and Stephen Holgate, of the CMRC.
    Link to video


    The death threats campaign

    UK Column News
    2017
    Link to video (37.30 - 39.33)
    S4ME thread


    Other diseases

    Conversion Disorder & Somatization Disorder
    Richard Barnum, M.D. Private Practice of Psychiatry and Previously Forensic Psychiatrist for the State of Massachusetts
    2013
    This lecture addresses the true definitions of Conversion Disorder and Somatization Disorder in the past DSM and the current DSM and how kids with Ehlers-Danlos are commonly misdiagnosed with these psychiatric disorders. It further explores the actual psychological support needed by patients with Ehlers-Danlos Syndrome and how that help can be impeded with misdiagnosis.
    Link to video

    Diane O’Leary, PhD presents - “All in Your Head”: The Problem of Psychogenic Diagnosis for EDS
    EDS Awareness
    Diane O’Leary
    2016
    Link to video

    “Psychiatric Misdiagnoses in EDS: When is Anxiety not Anxiety?”
    EDS Awareness
    Dr. Alan Pocinki
    2016
    Link to video

     
    Last edited: Nov 28, 2017
    Inara, ahimsa, MeSci and 7 others like this.

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