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News from Malta

Discussion in 'Regional news' started by Mike Harley, Dec 3, 2017.

  1. Mike Harley

    Mike Harley Senior Member (Voting Rights)

    Messages:
    119
    Location:
    Bristol
    Hi

    I'm keen to talk to ME patients in Malta as part of my challenge to raise awareness across Europe.

    If anyone would like to answer a few short questions or tell me their story that would be brilliant.

    I'll be there on Feb 25th to run the marathon and am working with the ME/CFS/Fibro Alliance there, so hopefully can make a bit of noise for research whilst I'm out there

    Thanks

    Mike
    www.mikeseumarathons.eu
     
    Amw66, rainy, Annamaria and 14 others like this.
  2. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

    Messages:
    1,450
    Mike Harley likes this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,573
    Location:
    UK
    I didn't know where to post this as it came from the Independent Malta:
    article outlines their Budget for 2020

    https://www.independent.com.mt/arti...emented-by-15-or-35-one-time-bonus-6736214773

    probably a complete coincidence but Clare Francis (president of AfME) was in Malta talking about an unrelated issue.
    Yachtswoman, author, ME spokeswoman Clare Francis MBE to give talk in aid of Save Valletta’s Skyline
    https://www.independent.com.mt/arti...-in-aid-of-Save-Valletta-s-Skyline-6736214480

    are there any ME organisations in Malta? one for outreach @Andy
     
    Hutan, andypants, Annamaria and 3 others like this.
  4. Mike Harley

    Mike Harley Senior Member (Voting Rights)

    Messages:
    119
    Location:
    Bristol
    Yes there is, I've interviewed Ruth from the Alliance over there. They do a fantastic job of keeping M.E in the public consciousness. http://www.mikeseumarathons.eu/malta.html

    You can find their group of Facebook too https://www.facebook.com/groups/me.cfs.fmalliance/
     
    Amw66, Hutan, Joh and 3 others like this.
  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,573
    Location:
    UK
    “I spend days in bed and cannot go out more than once a week”

    Posted On January 30, 2020
    https://europe.easybranches.com/malta/2028490
     
    Last edited by a moderator: Jan 31, 2020
    Hutan, rvallee, Ebb Tide and 2 others like this.
  6. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,573
    Location:
    UK
    Fibromyalgia And ME Sufferers Urge Malta To Recognise Their Invisible Condition As A Disability

    https://lovinmalta.com/news/news-hu...se-their-invisible-condition-as-a-disability/

    (note: Geradas home country)
     
    Amw66, cfsandmore, Hutan and 2 others like this.
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,573
    Location:
    UK
    https://timesofmalta.com/articles/v...-raise-awareness-about-three-illnesses.871528
     

    Attached Files:

    Hutan and Wyva like this.
  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,573
    Location:
    UK
    [​IMG]
    ME/CFS & FM Alliance - Malta Vo/818 is on Facebook.

    Impressum

    The ME, CFS & Fibromyalgia Alliance (Malta) is a network providing for individuals with ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) and FM (Fibromyalgia) conditions and their respective Support & Carer Groups, advocating public awareness about their debilitating disabilities and seeking recognition as a National Patients’ Organisation (NPO) duly constituted in Malta to represent the interests of sufferers and to act as a focal point-of-reference in matters concerning ME/CFS & Fibromyalgia disbailities in the Maltese Islands and at European level.

    https://m.facebook.com/me.cfs.fm.AllianceMalta/
     
    Simbindi and Hutan like this.
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,573
    Location:
    UK
    Learning to see invisible illnesses, using comics
    https://timesofmalta.com/articles/view/learning-to-see-invisible-illnesses-using-comics.956932
     
    cfsandmore and Hutan like this.
  10. Wyva

    Wyva Senior Member (Voting Rights)

    Messages:
    1,368
    Location:
    Budapest, Hungary
    ME, CFS & Fibromyalgia Alliance condemns benefits abuse

    The Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS) & Fibromyalgia (FM) Alliance has condemned the benefits fraud abuse, questioning why people suffering with Fibromyalgia and Myalgic Encephalomyelitis are being consecutively told that there are not enough funds to even consider giving them benefits.

    "It is very disheartening to learn that, political persons who are supposedly elected in the Maltese Parliament to help their constituents and the Maltese citizens, are instead abusing of their power. This brings to light the questions: Why are persons diagnosed with Fibromyalgia and Myalgic Encephalomyelitis being consecutively told that there are not enough funds to even consider giving them benefits?" the alliance asks.

    It was recently reported in The Sunday Times that former Labour MP Silvio Grixti was implicated in a scandal that allegedly enabled hundreds of people to receive disability benefits which they were not entitled to.

    More: https://www.independent.com.mt/arti...a-Alliance-condemns-benefits-abuse-6736254680
     
    Hutan, Amw66 and shak8 like this.

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