1. This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies. Learn More.

ME Action: Living w/ ME Support Group, Nov & Dec sessions announced

Discussion in 'Lifestyle Management' started by ahimsa, Nov 9, 2017.

  1. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    116
    Likes Received:
    881
    Location:
    Oregon, USA
    This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/

    The November and December schedule for the Living w/ ME Support Group has just been announced:
    About the Living with ME Support Group:

    Do you have ME and want to connect and share with others from around the world facing similar issues? Join us every other Sunday for a time of open sharing and discussion. Help us be a supportive and inclusive global community for each other. Our goal is to draws strength from each others’ experiences and empowers each other to fight to end to this health inequality.

    Each week we will discuss a different topic. For example, past discussions have included:

    1) the issue of “coming out” to family and friends about having ME
    2) depression, suicide & mental health
    3) ME and work​
     
    MErmaid, Joh, Binkie4 and 5 others like this.
  2. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    116
    Likes Received:
    881
    Location:
    Oregon, USA
    Did anyone attend the Nov. 12 session? Just curious.
     
    Joh likes this.
  3. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    551
    Likes Received:
    3,546
    I didn't, but I don't tend to do those sorts of live-chat things.
     
  4. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    551
    Likes Received:
    3,546
    Also - are you connected to ME Action in any way?

    Might it be worth asking them to add Science 4 ME to their list of patient resources?

    http://www.meaction.net/support/
     
    ahimsa likes this.
  5. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    116
    Likes Received:
    881
    Location:
    Oregon, USA
    Nope, I'm just a patient, no official ties to any organization. :)

    I just think ME Action is a good source of information (at least for US patients). I follow them on twitter and get their emails (signed up for their list a while ago).

    And although I also don't generally do well with online chats, I did attend a couple chats where the subject was advocacy. This was in preparation for meeting with my Congressional representative in 2016, part of the Million Missing campaign.

    I'm doing okay with support because of my wonderful husband and a few friends who are very supportive. So the online support sessions are not for me but I wanted to share them for others who are more isolated.
     
    Michelle and Esther12 like this.

Share This Page