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Massachussetts Congressional Delegation made statement at Boston showing of Unrest film

Discussion in 'Advocacy' started by ahimsa, Nov 14, 2017.

  1. ahimsa

    ahimsa Senior Member (Voting Rights)

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    I just saw this from ME Action on twitter (@MEActNet):
    Code:
    https://twitter.com/MEActNet/status/930222000966176768

    The statement is in an image attached to the tweet so it may be hard to read by some. Here's the text from the image:

    "Without meaningful and immediate investments in biomedical research, the 28,000 people living with ME/CFS in Massachusetts will struggle to find answers to critical questions about the disease's cause, diagnosis, and treatment. Events like today's, bolstered by the advocacy and outreach performed by many in this room, have helped to bring this devastating condition out of the shadows and into the spotlight. We will keep our constituents with ME/CFS in mind as we push for expanded biomedical research opportunities and funding in the U.S. House and Senate."

    Joint statement from the entire Massachusetts Congressional Delegation:

    Sen. Elizabeth Warren
    Sen. Ed Markey
    Rep. Richard Neal
    Rep. Jim McGovern
    Rep. Nikki Tsongas
    Rep. Joe Kennedy
    Rep. Katherine Clark
    Rep. Seth Moulton
    Rep. Michael Capuano
    Rep. Stephen Lynch
    Rep. Bill Keating

    Shared at the UNREST film event, Regent Theatre, Boston area on November 12, 2017​
     
    Last edited: Nov 14, 2017
  2. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    From this side of the Atlantic this seems really positive, especially when I saw Elizabeth Warren's name heading the list
     
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  3. Corazon

    Corazon Established Member

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    They have really done some great work. The list of co-sponsors was incredible. The screening was a wonderful event. I traveled from Vermont to attend. It was a long drive and I am crashing today but I am glad I went.

     
    Allele, TigerLilea, Amw66 and 14 others like this.
  4. Corazon

    Corazon Established Member

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    The panel discussion is now available on YouTube. You can share with your networks using this facebook post.

     
    TigerLilea, Trish, Andy and 4 others like this.
  5. Sasha

    Sasha Senior Member (Voting Rights)

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    Merged thread

    Impressive! But hard to read on FB because it's a wall of text, so with apologies to the OP, here's the whole thing, broken up (and not in quotes, which would make it too small to read):

    Please watch and share this new video and wonderful success summary by Rivka Solomon from the Boston area Unrest event! Congratulations to the organizers on a a successful event and outreach effort! #TimeforUnrest#MEAction

    "BOSTON AREA UNREST EVENT: SUCCESSES AND VIDEO

    We are still riding high on the successes from our Regent Theatre (Boston area) Unrest event held on November 12th. We now want to share with you the event successes and the Youtube video link, which includes the event opening, panel discussion and audience Q&A.

    First, the event successes!

    - Packed house: This was the largest “community-organized” screening of Unrest held to date. An impressive 358 attended, many health care professionals from noted Boston healthcare facilities.

    - Elected officials’ support: The joint statement of support from the entire Massachusetts Congressional Delegation, read aloud at the event, can serve as a role model for other states to follow. (See the youtube video for the joint statement.)

    - 19 co-sponsoring organizations: Government, healthcare, academic, disability, ME/CFS, religious, arts, and women’s organizations co-sponsored our event. They included the MA Department of Public Health and the Division of Women’s Health at Brigham and Women’s Hospital. We believe this was the most diversely-sponsored ME/CFS event ever held.

    - WBUR (Boston's NPR station): A WBUR senior correspondent/host moderated our event panel. This added legitimacy and credibility to our efforts.

    - Media attention: We were in a Boston Globe West column, the Arlington Advocate and Ms.magazine.com.

    - Outreach: WBUR included our event in their newsletter sent to 72,000 people. Boston hospitals, med schools and a large pharma organization did the same, reaching well over 55,000 people via newsletter or website.

    - Video of the event: The event opening, panel discussion and audience Q&A is now online to share with others. We will now try to get it aired on cable TV stations around New England and the whole U.S. YouTube:https://www.youtube.com/watch?v=48cCuJkFXzw&feature=youtu.be

    GET INVOLVED: Contact me if you want to see the pitch email you can use to ask your local station to air the video too.

    Time for Unrest The #MEAction Network Massachusetts CFIDS / ME & FM Association"​

    Original here.

    Here's the video:

     
    Last edited by a moderator: Nov 18, 2017
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  6. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    Last edited by a moderator: Nov 18, 2017
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  7. Corazon

    Corazon Established Member

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    Thanks @Sasha for the text version. I am learning my way how to best share on this format. I appreciated your help.
     
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