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Is a CPET safe for PWME?

Discussion in 'Laboratory and Genetic Testing' started by Sasha, Nov 11, 2017.

  1. Sasha

    Sasha Senior Member (Voting Rights)

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    Given the nature of ME, and given the nature of the test, I find it surprising that those who have patients do the CPET don't appear to have routinely kept long-term follow-up data on this.
     
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  2. Dechi

    Dechi Senior Member (Voting Rights)

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    I am part of Dr Moreau’s clinical study. I’ve had this done. I seriously doubt that it gave me anything vaguely resembling PEM. Or if it did, it was very light PEM.
     
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  3. anniekim

    anniekim Established Member

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    @Sasha, all I can share is I did an overambitious 200 metre walk seven years ago which caused a massive relapse from which I still have not recovered. I was until I did that walk able to leave the house in a wheelchair a few times a week for short trips and mobilise around my flat, so moderate-severe at that time.
     
  4. Sasha

    Sasha Senior Member (Voting Rights)

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    Really sorry to hear that, anniekim. Just goes to show a one-off effort can cause a big relapse.
     
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  5. anniekim

    anniekim Established Member

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    Thanks @Sasha. Yes, a one off big effort can definitely cause a long term relapse. Jen Brea in her film mentions walking back from seeing her doctor, who wrongly said she had conversion disorder during the appointment, to her home to test herself and relapsed as soon as she got home. She says in interviews even though she has improved she still so far has never has managed to walk as far as she did up until that fateful walk.
     
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