1. This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies. Learn More.

Help OverTheHills move back to the UK

Discussion in 'Lifestyle Management' started by OverTheHills, Oct 30, 2017.

  1. OverTheHills

    OverTheHills Established Member

    Messages:
    21
    Likes Received:
    152
    Location:
    NZ to UK
    I’m moving back to UK at the end of this month. I'm sure some of you lovely people can provide me with ideas and tips that will help smooth this big life transition.

    Some background: I’m a Brit, I’ve been living in NZ for some years, but the older I get the more I miss England. I’m well aware of the dire situation in the UK for patients with ME, and I know about standard resources like the MEA website, citizens advice etc.

    I’m not sure where in southern England I will be living yet, so there is no point in me asking yet about recommendations for specific GPs (except maybe in the Bournemouth area where I will be for a few months to start with).

    Although I have a few friends still in England I will need to build up a social network quickly, particularly as I will be living on my own - I envisage this as a mix of face to face and virtual. I do not do Facebook though.

    I have a small pension income which means I don’t need to be in the clutches of the benefit system and can buy essential medications over the internet. I believe I will not be eligible for PIP for 2 years after moving back to UK (if at all - I will be confirming this).

    I’ve had ME for well over a decade by all definitions. Its variable/relapsing- remitting with a strong predictable seasonal pattern varying between mild for a couple of months in late spring/early summer(when can go out for flat walks of a couple of hours duration though perhaps not every day) and moderate the rest of the time (usually close to housebound with days close to bedbound). I don’t have much pain except when the ME is really bad or I’ve tripped over yet another migraine trigger. I don’t have depression/anxiety etc although I do have plenty of cognitive dysfunction & memory issues.

    I’m hoping to avoid acquiring labels like MUS, FND etc, from the NHS and my dream would be to actually see a good rheumy. I suppose there is a possible opportunity to manage my medical records to my advantage (e.g. lose the CFS/ME diagnosis as far as the NHS is concerned?) and I need to ensure continuity of the (few) medications that I find helpful.

    All suggestions/advice welcome, but the social network, medical records and medication are particular things where I’m hoping for input. Happy to provide detail as required.
     
  2. Andy

    Andy Administrator Staff Member

    Messages:
    972
    Likes Received:
    5,673
    Location:
    Hampshire, UK
  3. Trish

    Trish Senior Member (Voting Rights)

    Messages:
    856
    Likes Received:
    6,806
    Location:
    UK
    Social networks can be particularly difficult for those of us unable to get out much if at all.

    If you have any religious inclinations at all, joining a local church or equivalent can be a good way of meeting people, including possibly some willing to visit people at home. Otherwise it really depends on your interests in terms of joining local clubs etc.

    May be a bit easier for women than men, with lots of small local handicraft and book discussing groups meeting in each others homes who may be open to new members.

    A local library may have lists of local organisations that welcome new members.

    Best wishes with the move.
     
  4. Wonko

    Wonko Senior Member (Voting Rights)

    Messages:
    697
    Likes Received:
    4,632
    Location:
    UK
    Certainly, provided you don't need me to pick anything up, move, or think, I'm up for it.
     
  5. MEMarge

    MEMarge Established Member (Voting Rights)

    Messages:
    63
    Likes Received:
    396
    Hi @OverTheHills.
    Did you literally mean this month, ie by tomorrow, or November?
    Either way do be in touch, it would be lovely to meet up again.
    (aka MEMum)
     
  6. Jan

    Jan Senior Member (Voting Rights)

    Messages:
    251
    Likes Received:
    1,580
    Hi @OverTheHills a very warm welcome to the forum :)

    Wishing you lots of luck for your massive move, I have moved within the UK, but I can't begin to get my head around how difficult it must be to move countries.

    You may be able to find ME groups local to you through MEA and others. They could possibly help with finding doctors too.
     
  7. OverTheHills

    OverTheHills Established Member

    Messages:
    21
    Likes Received:
    152
    Location:
    NZ to UK
    Thanks Andy I hadn't seen the Zoopla heatmap which is interesting.
    I have been looking at interactive climate maps such as https://www.metoffice.gov.uk/public/weather/climate/gbujkxvk5?tab=climateStations
    because I'd like to be somewhere relatively dry and sunny (wouldn't we all).

    I have a lot of food and other sensitivities etc these days and its possible that damp (mould) contributes to how bad I feel. I notice that I actually feel fairly good after a long haul flight (apart from an aching bum and jetlag) and wonder if this is because of the dry atmosphere or the enforced lack of movement. So I am not targetting cheap but rainier areas.
     
    Skippa and Andy like this.
  8. OverTheHills

    OverTheHills Established Member

    Messages:
    21
    Likes Received:
    152
    Location:
    NZ to UK
    Thanks for the best wishes Trish.

    Unfortunately my religious inclination is strongly atheist but not in an imposing-it-on-others sort of way.
    And you are right local libraries are a treasure trove in many ways.

    Many of my ME-restricted interests such as film and quizzes tend to be evening time activities for most people which is tricky for me. But I'm sure I will find a way. I don't have much energy but I am persistent when I have a goal in mind. I wonder if there are websites/online groups for film and quiz enthusiasts?
     
  9. OverTheHills

    OverTheHills Established Member

    Messages:
    21
    Likes Received:
    152
    Location:
    NZ to UK
    Just be decorative Wonko.:emoji_dancers:that will help.
     
  10. OverTheHills

    OverTheHills Established Member

    Messages:
    21
    Likes Received:
    152
    Location:
    NZ to UK
    Doh, yes ME Mum you spotted it! I depart/arrive at end of November not October. I will PM you after I have recovered from the trip.
     
    Skippa, Trish and Andy like this.
  11. OverTheHills

    OverTheHills Established Member

    Messages:
    21
    Likes Received:
    152
    Location:
    NZ to UK
    Yes Jan I'm hoping the local ME group in Bournemouth is not on the darkside :devilish::android::blackalien::borg: or a pity party (hopefully MEA ones are better than that). Thanks for the best wishes.
     
    Skippa and Trish like this.
  12. OverTheHills

    OverTheHills Established Member

    Messages:
    21
    Likes Received:
    152
    Location:
    NZ to UK
    Hi Sly

    Sorry to hear your social circle is a bit limited, I do understand how hard it is to spend energy on socialising, and find meaningful contact with people.

    Depending where I live eventually I may be able to make contact with the Monstrous Regiment in the South West, they sound like a laugh.

    On the medical records, one thought I have is
    a) not telling new doctors where in the UK I was registered previously
    b)providing them with (selected) paper copies of my tests and diagnoses from NZ (POTS, high ANA, past hyperthyroidism, endometriosis) so they think biomedical from the start

    And I am quite obviously female, so that never helps.
    Perhaps someone who has experience of the NHS has some ideas?
     
    Sly Saint, Valentijn, Skippa and 2 others like this.
  13. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

    Messages:
    169
    Likes Received:
    900
    And yet you are moving to the UK. Are you sure you are not experiencing cognitive dysfunction? ;)
     
  14. OverTheHills

    OverTheHills Established Member

    Messages:
    21
    Likes Received:
    152
    Location:
    NZ to UK
    Its a fair cop guv'nor. As dry and sunny as England gets. :emoji_fish::emoji_cloud_lightning::emoji_cloud_rain::emoji_dash::emoji_fog::emoji_duck:. Love these new emojis
     
    Wonko, Graham, Valentijn and 2 others like this.

Share This Page