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Gary Burgess Despicable ME

Discussion in 'General ME/CFS news' started by BurnA, Oct 27, 2017.

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  1. BurnA

    BurnA Senior Member (Voting Rights)

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    Gary Burgess
    A journalist, employed as an on-screen and off-screen Content Editor for ITV News in Jersey & columnist

    He talks about setting up a new website....

    Maybe we should reach out to him, save him a bit of bother.

    We can be happy that our name is at least better than zonked club :neutral:
     
    BurnA, Oct 27, 2017
    #1
    Allele, Hutan, Invisible Woman and 11 others like this.
  2. JCB

    JCB Senior Member (Voting Rights)

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    There are actually a zillion ME and CFS websites. Only a few reach critical mass. Some become popular blogs. I think a site that aims purely at relating good and bad experience won't get a lot of traffic. Little of the traffic on popular sites really fits into that category. Few of use want to spend long reading about these things, I think we prefer to give out snippets as we chat with people and learn to trust them. Maybe he has another USP? However if he has the right intent, I wish him well.
     
    JCB, Oct 27, 2017
    #2
    Invisible Woman, Valentijn, Jan and 4 others like this.
  3. Woolie

    Woolie Senior Member

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    Great to see another high profile person 'come out' though, isn't it? And one that is: a) male; and b) doesn't appear to be a fruitcake...
     
    Woolie, Oct 28, 2017
    #3
    Hutan, Invisible Woman, BurnA and 4 others like this.
  4. Trish

    Trish Moderator Staff Member

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    Yes, so long as it actually is ME, no temporary burnout as seems to have been the case with some who then claim a miraculous recovery with some quack treatment. Note - I'm not questioning his diagnosis, just a little wary of celebrity diagnoses in general. Of course I wish him well.
     
    Trish, Oct 28, 2017
    #4
    Your Neighbour, Jan, JCB and 5 others like this.
  5. Valentijn

    Valentijn Guest

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    I'm still half expecting him to cure himself, write a book about it, and go on tour to inspire the masses :p No doubt his intentions are good, but if you've only been sick for a year, you're still at the stage where you need to be learning about the existing ME/CFS community, not trying to create a new one on your website.
     
    Valentijn, Oct 28, 2017
    #5
    Sly Saint, Jan, JCB and 11 others like this.
  6. TiredSam

    TiredSam Committee Member

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    I did wonder about his research abilities as a journalist, thinking he has to set something up which, with a little research, he would know already exists.
     
    TiredSam, Oct 28, 2017
    #6
    Woolie, Jan, Luther Blissett and 6 others like this.
  7. adreno

    adreno Senior Member (Voting Rights)

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    Everybody wants their name on the billboard.
     
    adreno, Oct 28, 2017
    #7
    arewenearlythereyet, Woolie, Jan and 8 others like this.
  8. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

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    Yah, an ME diagnosis is so hot right now.
     
    Liv aka Mrs Sowester, Oct 28, 2017
    #8
    arewenearlythereyet, Woolie, Jan and 5 others like this.
  9. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    Very true.

    Also strikes me as one of the things that most of the healthy don't get and it takes the newbies a long time to come to terms with (understandably) - what's a year when you've started counting in decades? :(

    I wish him well. That early on he's got a good chance of seeing some light at the end of the tunnel. Let's just hope that, as a journalist, he'll be curious enough to find out that most of us have been left to rot & used to to further some people's careers.
     
    Invisible Woman, Oct 28, 2017
    #9
    arewenearlythereyet, Woolie, Jan and 9 others like this.

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