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Daily Mirror article: "My body shut down" - Woman reveals her heartbreaking battle with Chronic Fatigue Syndrome

Discussion in 'General ME/CFS News' started by Andy, Dec 4, 2017.

  1. Andy

    Andy Administrator Staff Member

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    Not terrible, I suppose.
    http://www.mirror.co.uk/news/real-life-stories/my-body-shut-down-woman-11620598
     
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  2. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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    Hmm..still the old 'I worked hard to beat my ME' story that the papers love, lifestyle and management. Green smoothies and gluten avoidance and no mention of PEM in the symptom list at the end.

    Overall it's a good piece to convey the seriousness of the disease and is sympathetic ...just all,the BS about hypnotherapy and meditation and stress/diet that is a bit off putting for me.

    Perhaps I've just become a bitter cynic?
     
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  3. Melanie

    Melanie Established Member (Voting Rights)

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    It's terrible. The word "recovered" is always bad in relation to ME/CFS. Maybe "doing better" or can "do more but not healthy".

    Really, these people that get better because of what they did do so much damage to millions who have tried everything for decades.
     
    Last edited: Dec 4, 2017
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  4. TiredSam

    TiredSam Moderator Staff Member

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    What a shame. It was going so well until
    The article was really good until that point. Then it all got a bit deliciously Ella cranial sacral usual pseudo junk for me.

    And now it's a bloody advert. I was wondering why a non-celebrity was writing about ME in the Mirror, now all is clear.

    Super.

    The Salus Foundation (https://www.salus.org.uk/) seems to have a "network of professionals" around Birmingham:

    Sorry did I just see
    in amongst the usual list of silly nonsense?

    This is what she did from 2002-2009, before starting the Salus Foundation:

    From LinkedIn https://uk.linkedin.com/in/linda-jones-39401678
     
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  5. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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    It's always disappointing when it's worse than the crap you think it is.
     
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  6. Melanie

    Melanie Established Member (Voting Rights)

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  7. Forbin

    Forbin Established Member

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    I'd never heard of "iridology" before. Apparently, it's like phrenology, only for the iris. :rolleyes:

    https://en.wikipedia.org/wiki/Iridology
    [​IMG]

    It seems like her onset dates to a virus in 2001, but she doesn't say exactly when she started to improve. The problem is that some people do seem to improve/recover in the first five years after onset. I've seen percentages of "recovery" in that period ranging from 5 to 20%. People who improve in that window are very likely to attribute their improvement to whatever they were doing at the time, but Dr. Bell has said that he couldn't find anything that separated those who improved from those who did not.

    I know some dismiss the idea that it's possible to improve/recover from "real" ME/CFS, but it seems to happen in adolescents, so why not in some portion of adults?

    The cruel thing about articles like this is that they suggest there's a path to recovery out there, if you'll just follow some "common sense" advice.

    They should say that recovery is a high-odds crap shoot - that this person was just lucky - and that there are no good studies showing how to improve your chances.
     
    Last edited: Dec 5, 2017
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  8. Mij

    Mij Senior Member (Voting Rights)

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    I was one who improved in that 5-6 year window. I don't attribute it to anything. I didn't have the internet back then so saved a lot of money not trying 'hope in a bottle' stuff. :thumbup:
     
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  9. Sean

    Sean Senior Member (Voting Rights)

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    Yep, the standard psycho-morality play drivel. Just one more step and she will be blaming people born with Downs Syndrome or spina bifida for their plight because of some crime they committed in a past life. :mad:
     
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  10. Valentijn

    Valentijn Moderator Staff Member

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    There's always a bigger pile :expressionless:
     
  11. Trish

    Trish Senior Member (Voting Rights)

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    Sometimes the worst people to help other sufferers are ones who have 'recovered' because they attribute their recovery to whatever quack treatment they happened to be trying at the time improved. It looks like this is one of these, and the whole article is an advertisement for her 'treatment'.
     
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  12. Sean

    Sean Senior Member (Voting Rights)

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    Or a smellier one. :yuck:
     

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