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Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

Discussion in 'PsychoSocial ME/CFS Research' started by Esther12, Nov 5, 2017.

  1. Sbag

    Sbag Established Member (Voting Rights)

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    sorry, stupid moment! So they haven't written it up as an actual paper, it is just a summary in with some others. Interestingly at the end it says "Treatment is uniquely based on a patient inspired intervention."
    If you had these amazing results from "the largest study ever conducted" in this group, you would expand a bit on the method of intervention which presumably is key. Or am I having more stupid thoughts?
     
  2. Trish

    Trish Senior Member (Voting Rights)

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    I'm trying to find out more about it. It's ridiculous to call it the largest study, since the FINE trial was also on house bound patients and was much bigger.
     
  3. Scarecrow

    Scarecrow Senior Member (Voting Rights)

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    I don't this means inspired by the actual patients involved in the study. At least one of those conducting the trial is recovered but was formerly severe. This same person winced visibly, when I talked about the psychosomatic model of ME being overturned.
     
  4. Esther12

    Esther12 Senior Member (Voting Rights)

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    FINE did widen their entry critieria though, so maybe they're not counting that as a study on severe CFS/ME?
     
    Trish and ladycatlover like this.

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