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#meaction

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  1. Sly Saint
    Thread

    #MEAction podcasts - Chronically complex

    If you’re new to myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS), we’re here to tell you that you are not...
    Thread by: Sly Saint, Nov 15, 2022, 6 replies, in forum: Resources
  2. ahimsa
    Thread

    USA: 2022 Sep 19: Long COVID, ME/CFS Patients Protest in Front of White House

    Threads about different articles have been merged Article about today's protest at the White House from MedPage Today: "Long COVID, ME/CFS...
    Thread by: ahimsa, Sep 20, 2022, 18 replies, in forum: General ME/CFS news
  3. ahimsa
    Thread

    Journalist Primer: How to Report on ME/CFS (from MEAction)

    I'm not sure how exactly our forum members might use this type of guideline, but I came across this recently and found it interesting. Link to...
    Thread by: ahimsa, Aug 20, 2022, 3 replies, in forum: Resources
  4. Sly Saint
    Thread

    Pacing and Management Guide for Pediatric ME/CFS and Long Covid: #MEAction, Aug 2022

    https://www.meaction.net/wp-content/uploads/2022/08/Pediatric-Guide-to-Pacing-2.pdf
    Thread by: Sly Saint, Aug 20, 2022, 3 replies, in forum: Resources
  5. Sly Saint
    Thread

    USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

    People with ME deserve accurate & clear ME/CFS education from the Centers for Disease Control, not recycling of discredited recommendations for...
    Thread by: Sly Saint, May 28, 2022, 0 replies, in forum: Advocacy Projects and Campaigns
  6. ahimsa
    Thread

    International Business Times: What Is Chronic Fatigue Syndrome? Overlooked Condition Shares Symptoms With Long COVID

    What Is Chronic Fatigue Syndrome? Overlooked Condition Shares Symptoms With Long COVID...
    Thread by: ahimsa, Feb 26, 2022, 1 replies, in forum: General ME/CFS news
  7. MSEsperanza
    Thread

    United Kingdom: News from #MEAction Network UK

    News from #MEAction UK Website: https://www.meaction.net/countries/uk/ Twitter: https://twitter.com/MEActNetUK
    Thread by: MSEsperanza, Nov 22, 2021, 14 replies, in forum: News from organisations
  8. Sly Saint
    Thread

    #MEAction: Tell your Doctor that GET is gone

    "The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and...
    Thread by: Sly Saint, Nov 10, 2021, 7 replies, in forum: Advocacy Projects and Campaigns
  9. ahimsa
    Thread

    Walktober for ME Action: A Day To Walk For You (October 30)

    https://www.mightycause.com/story/Walktober A nonprofit fundraiser supporting Myalgic Encephalomyelitis Action Network Inc Welcome to Greg...
    Thread by: ahimsa, Oct 30, 2021, 2 replies, in forum: Fundraising
  10. Sly Saint
    Thread

    2021 US ICD-10-CM change proposal: addition of code for ME/CFS

    Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic...
    Thread by: Sly Saint, Aug 24, 2021, 9 replies, in forum: Disease coding
  11. Sly Saint
    Thread

    Sign on to #MEAction’s response to flawed CDC review, deadline 15th Aug 2021

    " MEAction Response to CDC #MEAction has released a draft response to the CDC’s flawed systematic evidence review on ME/CFS treatments. Sign our...
    Thread by: Sly Saint, Aug 13, 2021, 30 replies, in forum: Advocacy Action Alerts
  12. ahimsa
    Thread

    July 2021 edition of Medical Board of California News includes article about ME/CFS and Long COVID by MEAction

    The July 2021 edition of Medical Board of California News issue includes a 2-page article called, "Myalgic Encephalomyelitis/Chronic Fatigue...
    Thread by: ahimsa, Jul 16, 2021, 5 replies, in forum: General ME/CFS news
  13. Andy
    Thread

    USA: NIH National Institutes of Health news

    A thread for general NIH news and discussion See also: USA: NIH funding for ME/CFS research Medpage today: "NIH Striving to Avoid False Hope in...
    Thread by: Andy, Jan 16, 2018, 420 replies, in forum: News from organisations
  14. ahimsa
    Thread

    USA: News from #MEAction

    This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December...
    Thread by: ahimsa, Nov 9, 2017, 155 replies, in forum: News from organisations
  15. InitialConditions
    Thread

    Jen Brea to step down as Executive Director of MEAction to focus on health

    https://www.meaction.net/2020/11/12/important-news-from-jennifer-brea/?fbclid=IwAR3_GgqUDp3qe3woHXjeH04-n_sdapO-xKepc1EvJ4Gz0TTvCLXmo12st0U...
    Thread by: InitialConditions, Nov 12, 2020, 5 replies, in forum: General ME/CFS news
  16. Sly Saint
    Thread

    #MEAction: PACING AND MANAGEMENT GUIDE FOR ME/CFS

    https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf
    Thread by: Sly Saint, Oct 28, 2020, 11 replies, in forum: General ME/CFS news
  17. Gecko
    Thread

    Stop. Rest. Pace. Campaign

    Stop. Rest. Pace. - New global information campaign around Long Covid, ME, and PEM. We knew this was coming. So many people with myalgic...
    Thread by: Gecko, Oct 21, 2020, 3 replies, in forum: Advocacy Projects and Campaigns
  18. Kalliope
    Thread

    #MEAction: Here's what happened at the CDC's sep. 2020 ME/CFS meeting

    On Wednesday, September 23 the CDC helt its ME/CFS Stakeholder Engagement and Communication (SEC) conference call ant the #MEAction community...
    Thread by: Kalliope, Sep 26, 2020, 4 replies, in forum: General ME/CFS news
  19. Sly Saint
    Thread

    USA: #MEAction ME/CFS clinical seminars

    " #MEAction will host a seminar for clinicians recognizing and addressing post-viral ME/CFS. The seminar will be panel-style with time for...
    Thread by: Sly Saint, Jul 14, 2020, 2 replies, in forum: General ME/CFS news
  20. Sly Saint
    Thread

    #MillionsMissing 2020 UK

    email from #MEAction With support from a professional filmmaker, we are putting together a short film for #MillionsMissing 2020 in the UK. If you...
    Thread by: Sly Saint, Apr 20, 2020, 1 replies, in forum: Advocacy Projects and Campaigns
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