1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Search Results

Search Again
Page 1 of 3
  1. Alis
    Post

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2021

    Dont have any spare money:( but shared where I can . fb groups and twitter. thank you Dave
    Post by: Alis, Oct 24, 2021 in forum: Fundraising
  2. Alis
    Post

    UK: Equality & Human Rights Commision: Inquiry into challenging decisions about adult social care [includes survey], closes 15th Sept 21

    If I am able to later will have a look. As a btw I am going to challenge the decision by social services that I dont need help with food [...
    Post by: Alis, Jul 19, 2021 in forum: General disability topics and advocacy
  3. Alis
    Post

    Persistent Suffering:The Serious Consequences of Sexual Violence against Women and Girls, Their Search for Inner Healing.., 2021, Sigurdardottir et al

    yes. in conclusion. sexual violence has these extremely negative and long term consequences because of the interconnectedness of mind ,body...
    Post by: Alis, Mar 7, 2021 in forum: Other psychosomatic news and research
  4. Alis
    Post

    Science for ME submission to the NICE draft ME/CFS guideline consultation, December 2020, and submission on substantive errors, August 2021

    And big thank you to you Luna for all your input on severe/very severe me.
    Post by: Alis, Dec 24, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  5. Alis
    Post

    Science for ME submission to the NICE draft ME/CFS guideline consultation, December 2020, and submission on substantive errors, August 2021

    thank you so much to s4me and all the work the team has put in. I haven't been able to read much but felt tearful [in a good way] about some of...
    Post by: Alis, Dec 21, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  6. Alis
    Post

    Occupational therapy and ME/CFS

    the one OT I had who was awful was one I had to see for an assessment of my housing situation. but her report did help .despite her attitude . as...
    Post by: Alis, Dec 15, 2020 in forum: General clinical care
  7. Alis
    Post

    Occupational therapy and ME/CFS

    my experience of OTs has been mostly good. I've seen 4 over the past decade. two were very good, helpful and supportive. one was pretty bad. one ,...
    Post by: Alis, Dec 15, 2020 in forum: General clinical care
  8. Alis
    Post

    Whitney Dafoe Updates

    http://anilvanderzee.com/your-silence-is-killing-m-e/ haven't been able to read much of this but think it maybe relevant eta Anil is a gay...
    Post by: Alis, Nov 8, 2020 in forum: General ME/CFS news
  9. Alis
    Post

    Severe M.E Day - 8th of August 2020

    [MEDIA]
    Post by: Alis, Aug 8, 2020 in forum: General ME/CFS news
  10. Alis
    Post

    Severe M.E Day - 8th of August 2020

    [MEDIA]
    Post by: Alis, Aug 8, 2020 in forum: General ME/CFS news
  11. Alis
    Post

    Severe M.E Day - 8th of August 2020

    [MEDIA]
    Post by: Alis, Aug 7, 2020 in forum: General ME/CFS news
  12. Alis
    Post

    Ear muffs for better rest

    I think I am going to give them a go. They have a much higher noise blocking rating than the ones I use - the E.A.R foam ones.
    Post by: Alis, Aug 3, 2020 in forum: Neurological/cognitive/vision
  13. Alis
    Post

    Ear muffs for better rest

    Ear defenders do cut down a lot of noise [compared to muffs ] but I can only wear them for short periods maybe up to 2hours as they can become...
    Post by: Alis, Aug 3, 2020 in forum: Neurological/cognitive/vision
  14. Alis
    Post

    Severe M.E Day - 8th of August 2020

    I wasn't sure where to put this. Kara Jane has severe ME and she has recorded a single and an album. The single has been released today. Baby...
    Post by: Alis, Aug 1, 2020 in forum: General ME/CFS news
  15. Alis
    Post

    UK - Resources for help getting food during quarantine and other supermarket related problems

    :laugh::laugh: :rofl::rofl::rofl: My parcels are exactly like yours. Except I graduated to hobnobs several weeks ago.:p
    Post by: Alis, Jul 17, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  16. Alis
    Post

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I 'm not sure. I put a number of things in my basket to test it out. It said they can deliver them in 30 mins - 90 mins ! so I think you do...
    Post by: Alis, Apr 4, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  17. Alis
    Post

    UK - Resources for help getting food during quarantine and other supermarket related problems

    This looks like it could be useful https://www.beelivery.com / they say they can delivery within 45-90 mins. it looks like it is nationwide. and...
    Post by: Alis, Apr 4, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  18. Alis
    Post

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I have just logged into tescos , there are still some slots available for Wednesday if anybody is interested , may have to be quick though as I...
    Post by: Alis, Mar 31, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  19. Alis
    Post

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Thanks . I have now registered with it. I have to have very low fat meals [ gall bladder/ pancreas problems] but it looks like they do do a range...
    Post by: Alis, Mar 29, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  20. Alis
    Post

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Wondering about this ? Is this what used to be called Meals on Wheels?
    Post by: Alis, Mar 29, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
Showing results 1 to 20 of 50 Next >
Search Again
Page 1 of 3