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  1. Denise
    Post

    USA: NIH National Institutes of Health news

    Registration is NOT necessary for those viewing remotely.
    Post by: Denise, Apr 24, 2024 at 4:31 PM in forum: News from organisations
  2. Denise
    Post

    News from the USA, United States of America

    @Dolphin's post re Medicare rule on chronic disabling illnesses I would like to know what definition of chronic fatigue syndrome CMS is using and...
    Post by: Denise, Apr 23, 2024 at 2:43 PM in forum: Regional news
  3. Denise
    Post

    #NotJustFatigue

    I looked at the site briefly so will not comment on accuracy of material. I am however concerned about the intensity and colors used in relation...
    Post by: Denise, Mar 2, 2024 in forum: News from organisations
  4. Denise
    Post

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    Perhaps their inclusion is to balance the program with "NON-sense"?
    Post by: Denise, Mar 2, 2024 in forum: Other psychosomatic news and research
  5. Denise
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    I think it may actually be that you have "mistaken effort preference beliefs" ;)
    Post by: Denise, Feb 28, 2024 in forum: ME/CFS research
  6. Denise
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Is there a way to know How many study participants were referred by ME specialists, by PCPs, other? How many were self-referred? If referred by...
    Post by: Denise, Feb 27, 2024 in forum: ME/CFS research
  7. Denise
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Given the intensity of the testing at NIH for this study (lumbar puncture, CPET (even if one day instead of two), tilt test, the metabolic...
    Post by: Denise, Feb 27, 2024 in forum: ME/CFS research
  8. Denise
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    caution - attitude - not much about this paper seems to be fair and it certainly is not what we were led to expect NOR is it what we deserve!!!
    Post by: Denise, Feb 25, 2024 in forum: ME/CFS research
  9. Denise
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    FWIW - I am one of the one who was very concerned about Walitt (and Saligan and.....)
    Post by: Denise, Feb 23, 2024 in forum: ME/CFS research
  10. Denise
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    I wonder if we are using language differently. The paper says that there were 484 inquiries for participation. 267 of those were screened out in...
    Post by: Denise, Feb 23, 2024 in forum: ME/CFS research
  11. Denise
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Many people tried to get into the NIH study but were not accepted, so it's not that they didn't come forward in sufficient numbers but the...
    Post by: Denise, Feb 23, 2024 in forum: ME/CFS research
  12. Denise
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I apologize if this has already been mentioned. EEfRT task has its origins in work on depression and is validated in schizophrenia. (I know you...
    Post by: Denise, Feb 23, 2024 in forum: ME/CFS research
  13. Denise
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    @Mfairma If you think about it more clearly, you will find you aren't beating a dead horse, it's just that the horse is not preferring effort to...
    Post by: Denise, Feb 22, 2024 in forum: ME/CFS research
  14. Denise
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Reminder - When the study protocol first came out advocates demanded it be improved and to reflect the physiological nature of ME. We DID demand...
    Post by: Denise, Feb 22, 2024 in forum: ME/CFS research
  15. Denise
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    I am concerned that my bias has me misremembering. What have been the arguments from NIH about the size of this study? I feel I heard them argue...
    Post by: Denise, Feb 21, 2024 in forum: ME/CFS research
  16. Denise
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    And how was recovery assessed? Also, were those who considered themselves recovered queried at later points in time to see if their "recovery"...
    Post by: Denise, Feb 21, 2024 in forum: ME/CFS research
  17. Denise
    Post

    Trial Report Can a consensus occur on a research case definition for ME/CFS?, 2024, Jason

    @Simon M - As you say, Jason has long been opposed to the inclusion of OI. I wish I knew why, since it is so prevalent in PwME and even more so in...
    Post by: Denise, Feb 14, 2024 in forum: ME/CFS research
  18. Denise
    Post

    Review Postacute Sequelae of SARS-CoV-2 in Children, 2024, Rao

    The article discusses the differences between Long COVID definitions and the resulting lack of clarity because of the varied definitions but at...
    Post by: Denise, Feb 8, 2024 in forum: Long Covid research
  19. Denise
    Post

    1/18/2024 US Senate hearing on Long Covid of the HELP (Health, Labor, Education & Pensions) committee

    GRRRR!!!!
    Post by: Denise, Feb 6, 2024 in forum: Long Covid news
  20. Denise
    Post

    Trial Report Videoconference-delivered group cognitive behavioral stress management for ME/CFS patients who present with severe PEM: a RCT, 2023, May

    fwiw - A sampling of other publications Klimas has done with Antoni. Perceived Fatigue Interference and Depressed Mood: Comparison of Chronic...
    Post by: Denise, Jan 26, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
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