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  1. FreeSarah
    Post

    ScienceAlert: Scientists Have Found an Important Reason You Might Want to Reconsider Taking Probiotics

    Interesting. Q. Is SIBO actually curable? Or once you've got it, is it just a matter of control?
    Post by: FreeSarah, Aug 8, 2018 in forum: 'Conditions related to ME/CFS' news and research
  2. FreeSarah
    Post

    Who was it that said being in support groups leads to poor outcome?

    You’re being very unfair on old Michael. I totally blame PR and S4ME for the fact that I’m still ill. My mistake was joining an online patient...
    Post by: FreeSarah, Jul 25, 2018 in forum: General Advocacy Discussions
  3. FreeSarah
    Post

    The Lancet: UK life science research: time to burst the biomedical bubble

    I knew that phrase rang a bell. It popped up earlier today in the article linked from this thread. The article, from National Public Radio in the...
    Post by: FreeSarah, Jul 20, 2018 in forum: Other psychosomatic news and research
  4. FreeSarah
    Post

    Five years before multiple sclerosis onset: Phenotyping the prodrome (2018) Wijnands et al

    Damn, that feels like important research. I'm not competent to assess its quality, though. Is it well conducted?
    Post by: FreeSarah, Jul 19, 2018 in forum: Other health news and research
  5. FreeSarah
    Post

    Gluten-free need not taken seriously by radio prog

    I can only repeat that when I went gluten-free my calorie intake went up slightly, and as I was already eating healthily the only change in my...
    Post by: FreeSarah, Jul 18, 2018 in forum: General ME/CFS news
  6. FreeSarah
    Post

    Gluten-free need not taken seriously by radio prog

    I didn't suggest you were.
    Post by: FreeSarah, Jul 18, 2018 in forum: General ME/CFS news
  7. FreeSarah
    Post

    Gluten-free need not taken seriously by radio prog

    Yeah, me. And a lot of other people who have the same experience exactly, some of whom have posted in this thread. They stop eating gluten, they...
    Post by: FreeSarah, Jul 17, 2018 in forum: General ME/CFS news
  8. FreeSarah
    Post

    Gluten-free need not taken seriously by radio prog

    Don't know if you read my post, but the only thing I did was switch to gluten-free bread and pasta, and otherwise take care to avoid gluten. My...
    Post by: FreeSarah, Jul 17, 2018 in forum: General ME/CFS news
  9. FreeSarah
    Post

    Gluten-free need not taken seriously by radio prog

    yep, I think the idea that gluten content of wheat has increased significantly has been shown to be wrong now. There's a theory that it's actually...
    Post by: FreeSarah, Jul 17, 2018 in forum: General ME/CFS news
  10. FreeSarah
    Post

    Gluten-free need not taken seriously by radio prog

    Ditto. I lost 20 pounds over 3 months with zero effort, just switched to GF bread and pasta. I was actually consuming more calories, yet the...
    Post by: FreeSarah, Jul 17, 2018 in forum: General ME/CFS news
  11. FreeSarah
    Post

    David Tuller: Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial

    you left out a couple of words, Trish: not give it credibility by conducting a [dodgy and unethical] clinical trial
    Post by: FreeSarah, Jul 17, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. FreeSarah
    Post

    David Tuller: Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial

    The last 3 paragraphs of that letter should be required reading — for NICE, for Bristol University, for GPs, and for everyone who's ever said "I...
    Post by: FreeSarah, Jul 17, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  13. FreeSarah
    Post

    What research do you want to see?

    For sure. I was very late joining in with forums like this, not doing so until more than 10 years into illness, and I was astonished to find some...
    Post by: FreeSarah, Jul 13, 2018 in forum: General Advocacy Discussions
  14. FreeSarah
    Post

    What research do you want to see?

    Being very specific, I'd love to see someone tackle the alcohol intolerance thing. A poll over on PR in 2010 had 62% unable to tolerate even small...
    Post by: FreeSarah, Jul 12, 2018 in forum: General Advocacy Discussions
  15. FreeSarah
    Post

    David Tuller: Trial By Error: Waiting for Godlee

    Just a reminder: http://me-pedia.org/wiki/Lightning_Process#British_Advertising_Standards_Authority_.28ASA.29_ruling The Lightning Process —...
    Post by: FreeSarah, Jul 11, 2018 in forum: General ME/CFS news
  16. FreeSarah
    Post

    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    For sure, wtf. Inventor of untestable magical thinking system now training NHS doctors. The NHS must be suffering from some sort of mass...
    Post by: FreeSarah, Jul 6, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. FreeSarah
    Post

    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    Yep, in recent times the NHS has shown itself willing to outsource 'therapies' to some pretty whacky organisations. Parker and the LP have been...
    Post by: FreeSarah, Jul 5, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. FreeSarah
    Post

    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    I have to ask — if they were bed-bound, how did they do the Lightning Process? It's very intensive, runs all day for a number of days.
    Post by: FreeSarah, Jul 5, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  19. FreeSarah
    Post

    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    A friend of a friend who was bed-bound with 'ME' was completely cured by lying still and thinking about God for a year. Which is a lot cheaper...
    Post by: FreeSarah, Jul 5, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. FreeSarah
    Post

    Markers of non-coeliac wheat sensitivity in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2018, Alaedini et al

    Happily, a lot of brewers are now doing gf beers, some famous names included. Both Peroni and San Miguel gf versions are available at my local...
    Post by: FreeSarah, Jul 3, 2018 in forum: ME/CFS research
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