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  1. Nellie
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Yes, its in today.
    Post by: Nellie, Mar 12, 2024 in forum: General ME/CFS news
  2. Nellie
    Post

    BMJ - Cognitive dysfunction after covid-19 2024 Ladds et al

    The Patient Experience describes my brain fog perfectly.
    Post by: Nellie, Feb 6, 2024 in forum: Long Covid news
  3. Nellie
    Post

    Acupuncture and other traditional Chinese medicine news and discussion thread

    Extraordinary article in today's Independent. It's a 1st person account 'As told to Zoe Beaty'. Sorry I'm not able to post it here, perhaps...
    Post by: Nellie, Jan 22, 2024 in forum: Other treatments
  4. Nellie
    Post

    What can we learn from the Post Office scandal publicity (including TV)?

    This
    Post by: Nellie, Jan 10, 2024 in forum: General ME/CFS discussion
  5. Nellie
    Post

    What can we learn from the Post Office scandal publicity (including TV)?

    This is a quote from an Article, about the Post Office scandal, in today's Independent 'Giving the story a heart and a face is what seemed to...
    Post by: Nellie, Jan 10, 2024 in forum: General ME/CFS discussion
  6. Nellie
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    The link is still good for me.
    Post by: Nellie, Oct 10, 2023 in forum: Petitions
  7. Nellie
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Today I have been asked to do a spit test for DNA. Feeling less miffed - they didn't want mine with the first lot.
    Post by: Nellie, Jun 26, 2023 in forum: Recruitment into current ME/CFS research studies
  8. Nellie
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    @dave30th Still reporting on mail from Berkeley. Today I received a card from Michael C Lu enclosing a request for a monthly gift.
    Post by: Nellie, Dec 29, 2022 in forum: Fundraising
  9. Nellie
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    I'm in the UK.
    Post by: Nellie, Oct 31, 2022 in forum: Fundraising
  10. Nellie
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Congratulations. I think that you asked to be told if more stuff arrived from Berkley. I had an envelope, from Berkeley, arrive today. it had...
    Post by: Nellie, Oct 31, 2022 in forum: Fundraising
  11. Nellie
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    @mango That worked a treat, thank you. The tree surgeons, with their chain saws and chippers, have left now. They, loop thingies, are...
    Post by: Nellie, Oct 1, 2022 in forum: Hypersensitivity and Intolerance Reactions
  12. Nellie
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I ordered some - but needed to change the size. How on earth do you get them on the loop bit?
    Post by: Nellie, Sep 27, 2022 in forum: Hypersensitivity and Intolerance Reactions
  13. Nellie
    Post

    High-dose Oral Thiamine Vs Placebo for Chronic Fatigue in Patients With Quiescent Inflammatory Bowel Disease, 2021, Bager et al

    I came off them gradually over two or three weeks. Very soon after I stopped I could no longer walk up a slight slope outside my house.
    Post by: Nellie, Jun 18, 2022 in forum: Other health news and research
  14. Nellie
    Post

    United Kingdom: Dr Basant Puri of Brakespear Clinic

    Very foggy head but? Basant Puri... 'Vegepa' capsules for ME which are advertised in MEA's magazine?
    Post by: Nellie, Nov 13, 2021 in forum: UK clinics and doctors
  15. Nellie
    Post

    World ME Alliance, was previously IAFME: International Alliance for ME

    @Ravn said 'Is this the same organisation as IAFME? I can't keep track... ' :confused: I so, so agree.
    Post by: Nellie, Oct 5, 2021 in forum: News from organisations
  16. Nellie
    Post

    Chills

    This doesn't answer your question but maybe of use. I've had this for over 50 years since my onset of ME. The only way I can get warn is in a...
    Post by: Nellie, Sep 23, 2021 in forum: Post-Exertional malaise and fatigue
  17. Nellie
    Post

    Will it ever be reasonably safe for PwME to go back into society, post-Covid?

    Yes, good question. I've been isolating since before lockdown but am fortunate as I can go out, without a mask, for fresh air and tiny walks (2...
    Post by: Nellie, Sep 14, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  18. Nellie
    Post

    Covid-19 vaccination experiences

    Hugs for @Rosie
    Post by: Nellie, Aug 26, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  19. Nellie
    Post

    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    Done
    Post by: Nellie, Apr 27, 2021 in forum: Fundraising
  20. Nellie
    Post

    High-dose Oral Thiamine Vs Placebo for Chronic Fatigue in Patients With Quiescent Inflammatory Bowel Disease, 2021, Bager et al

    Sorry if this has already been posted, it was some tiny N=3) studies from Italy: https://pubmed.ncbi.nlm.nih.gov/23696141/ I tried Thiamine...
    Post by: Nellie, Apr 25, 2021 in forum: Other health news and research
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