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  1. Sid
    Post

    Functional Neurological Disorder (FND) - articles, social media and discussion

    All this started some weeks ago when pseudonymous posters on Twitter said that the S4 forum and ME/CFS patients on Twitter deny the existence of...
    Post by: Sid, Apr 4, 2024 in forum: Psychosomatic theories and treatments discussions
  2. Sid
    Post

    Trial Report The presence of attentional and interpretation biases in patients with severe MS-related fatigue (also ME/CFS), 2024, Knoop, Moss-Morris et al

    Does not follow from the results in the slightest.
    Post by: Sid, Mar 30, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Sid
    Post

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Completely Cured sure.
    Post by: Sid, Mar 29, 2024 in forum: General ME/CFS news
  4. Sid
    Post

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    I’ve downloaded the app and gone through many of the exercises. It’s fundamentally the same thing as CBT, LP, Gupta and any number of other brain...
    Post by: Sid, Mar 29, 2024 in forum: General ME/CFS news
  5. Sid
    Post

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    This should be banned by journals. It’s so misleading.
    Post by: Sid, Mar 29, 2024 in forum: Long Covid research
  6. Sid
    Post

    Complete remission with histamine blocker in a patient with intractable hyperadrenergic postural orthostatic tachycardia syndrome secondary to PASC

    I’m surprised loratidine was helpful. I noticed zero effect from it. However, I will say that another (stronger) antihistamine made me go from...
    Post by: Sid, Mar 27, 2024 in forum: Other health news and research
  7. Sid
    Post

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    [MEDIA] Tweet reads: "I'm not, no. I don't think it's the answer. However, going through Curable has helped me understand why the LP works for...
    Post by: Sid, Mar 22, 2024 in forum: General ME/CFS news
  8. Sid
    Post

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    I think under this operant conditioning paradigm, they would regard PEM as an extinction burst, a temporary increase in conditioned response when...
    Post by: Sid, Mar 22, 2024 in forum: General ME/CFS news
  9. Sid
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    That's actually shockingly bad, if true.
    Post by: Sid, Mar 22, 2024 in forum: ME/CFS research
  10. Sid
    Post

    Is joint hypermobility linked to self-reported non-recovery from COVID-19? Case–control evidence ... , 2024, Eccles et al

    The hypermobility story never made much sense to me. Presumably you’ve always had this very common condition without suffering from debilitating...
    Post by: Sid, Mar 21, 2024 in forum: Long Covid research
  11. Sid
    Post

    "Failings in the care of patients with Very Severe ME" by Dr Nigel Speight, 2024

    Managing gastrointestinal manifestations in patients with PoTS: a UK DGH experience Endoscopy, high-resolution manometry, gastric-emptying...
    Post by: Sid, Mar 21, 2024 in forum: Resources
  12. Sid
    Post

    "Failings in the care of patients with Very Severe ME" by Dr Nigel Speight, 2024

    This is unsurprising given the general lack of research on the very severe.
    Post by: Sid, Mar 20, 2024 in forum: Resources
  13. Sid
    Post

    "Failings in the care of patients with Very Severe ME" by Dr Nigel Speight, 2024

    Excellent article. It’s very important that the abuse and neglect of the very severe is stopped. A number of years ago I had severe ME/CFS. For a...
    Post by: Sid, Mar 19, 2024 in forum: Resources
  14. Sid
    Post

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Scrolling through twitter, Fiona appears to be campaigning against the 2021 NICE guidelines saying that they have harmed people. She has also...
    Post by: Sid, Mar 19, 2024 in forum: General ME/CFS news
  15. Sid
    Post

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    https://acrjournals.onlinelibrary.wiley.com/doi/10.1002/acr.25104
    Post by: Sid, Mar 19, 2024 in forum: General ME/CFS news
  16. Sid
    Post

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    The Curable app seems to be based on pain reprocessing therapy (PRT) which is based on this unblinded trial with subjective outcome measures...
    Post by: Sid, Mar 19, 2024 in forum: General ME/CFS news
  17. Sid
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Sharpe’s reply was pathetic. They’re not even trying anymore.
    Post by: Sid, Mar 16, 2024 in forum: General ME/CFS news
  18. Sid
    Post

    The NIH should create an Office of Infection-Associated Chronic Illness Research - proposed by the American Association of Scientists, 2024.

    It can also be ruinous for us if the likes of Walitt get it.
    Post by: Sid, Mar 16, 2024 in forum: General ME/CFS news
  19. Sid
    Post

    Opinion Appraisal of Clinical Practice Guideline: NICE clinical practice guideline for [ME/CFS]: diagnosis and management, 2024, Sarah Tyson

    100%. I get the point about political compromise but that aspect of the new NICE guideline has deeply troubled me from the start and I think it...
    Post by: Sid, Mar 16, 2024 in forum: ME/CFS research
  20. Sid
    Post

    Physical Activity, Long-COVID, and Inactivity: A Detrimental Endless Loop, 2024, Lippi et al.

    I assumed the figure was a joke.
    Post by: Sid, Mar 13, 2024 in forum: Long Covid research
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