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  1. Clara
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Yes. Anyone else?
    Post by: Clara, Sep 7, 2019 in forum: General ME/CFS news
  2. Clara
    Post

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    Based on his previous responses, I wonder if @profmsharpe has spoken to any non-PACE researchers and actually listened to what they had to say? It...
    Post by: Clara, Feb 10, 2019 in forum: General ME/CFS news
  3. Clara
    Post

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    As if you're supposed to only research one possible treatment until it's been proven there are no positive effects? Then we should have only...
    Post by: Clara, Dec 14, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Clara
    Thread

    Professors crowdsourcing scrutiny of research papers and retractions on Twitter.

    Ideas for PACE... An article about a retracted research paper in nutrition science and an interesting bit about a professor of epidemiology at...
    Thread by: Clara, Sep 22, 2018, 6 replies, in forum: General Advocacy Discussions
  5. Clara
    Post

    PACE as a teaching tool - Discuss PACE in "Design and Interpretation of Clinical Trials" free online course by Johns Hopkins University on Coursera

    Sorry, I had dropped off the course because of multiple illnesses. This will probably take me several sessions of the course to complete. So...
    Post by: Clara, Sep 22, 2018 in forum: Advocacy Projects and Campaigns
  6. Clara
    Post

    PACE as a teaching tool - Discuss PACE in "Design and Interpretation of Clinical Trials" free online course by Johns Hopkins University on Coursera

    Great introduction post! I'm so glad someone who is a better writer than I am joined. :) I also want to know how bad studies can be removed from...
    Post by: Clara, Jul 17, 2018 in forum: Advocacy Projects and Campaigns
  7. Clara
    Post

    PACE as a teaching tool - Discuss PACE in "Design and Interpretation of Clinical Trials" free online course by Johns Hopkins University on Coursera

    Excellent! This is a great idea for any university students taking courses on science research methods.
    Post by: Clara, Jul 17, 2018 in forum: Advocacy Projects and Campaigns
  8. Clara
    Post

    PACE as a teaching tool - Discuss PACE in "Design and Interpretation of Clinical Trials" free online course by Johns Hopkins University on Coursera

    Oh, nothing to apologize for. That is a good point to keep in mind when reading responses. I looked at the course discussion forum today and...
    Post by: Clara, Jul 16, 2018 in forum: Advocacy Projects and Campaigns
  9. Clara
    Post

    Strategic framework for activism with practical advice

    I am just going to address this one point for now before I have read the article. If we want hospitals and doctors to change their treatment of...
    Post by: Clara, Jul 12, 2018 in forum: Advocacy Projects and Campaigns
  10. Clara
    Post

    PACE as a teaching tool - Discuss PACE in "Design and Interpretation of Clinical Trials" free online course by Johns Hopkins University on Coursera

    Okay, I'll be happy if one doctor, research scientist, or public health administrator reads it. :) My own read/reply ratio in general is probably...
    Post by: Clara, Jul 11, 2018 in forum: Advocacy Projects and Campaigns
  11. Clara
    Post

    PACE as a teaching tool - Discuss PACE in "Design and Interpretation of Clinical Trials" free online course by Johns Hopkins University on Coursera

    It might depend on the course. I have taken several Coursera courses from Stanford and other universities and there was good student interaction....
    Post by: Clara, Jul 11, 2018 in forum: Advocacy Projects and Campaigns
  12. Clara
    Thread

    PACE as a teaching tool - Discuss PACE in "Design and Interpretation of Clinical Trials" free online course by Johns Hopkins University on Coursera

    Ron Davis said, “I would like to use it as a teaching tool, to have medical students read it and ask them, ‘How many things can you find wrong...
    Thread by: Clara, Jul 11, 2018, 18 replies, in forum: Advocacy Projects and Campaigns
  13. Clara
    Post

    PACE trial graphs and gifs

    @Lucibee What software did you use to make the charts? Thanks!
    Post by: Clara, Jul 3, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Clara
    Post

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    Has it been looked at how many people got worse, and by how much, compared by treatment? I have no spreadsheet skills at the moment so have only...
    Post by: Clara, Jun 23, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Clara
    Post

    Donate 2-20% of your everyday shopping to ME/CFS non-profits or to yourself! (Benefit Mobile)

    For those in the U.K. I came across this Web site and app similar to Benefit that looks pretty awesome. https://easyfundraising.org.uk/ Very...
    Post by: Clara, Jun 1, 2018 in forum: Fundraising
  16. Clara
    Post

    Jen Brea $100,000 crowdfund for 2018 #MEAction activities

    MEAction Network has been added to the Benefit fundraising app which donates 2-20% of your everyday shopping transactions at popular retailers to...
    Post by: Clara, May 23, 2018 in forum: Fundraising
  17. Clara
    Post

    Donate 2-20% of your everyday shopping to ME/CFS non-profits or to yourself! (Benefit Mobile)

    I contacted Benefit support and they said it is only available in the U.S. But I'll keep my eye out for programs that are available globally. The...
    Post by: Clara, May 16, 2018 in forum: Fundraising
  18. Clara
    Post

    Donate 2-20% of your everyday shopping to ME/CFS non-profits or to yourself! (Benefit Mobile)

    Did you try setting up the Benefit app already? I didn't find any information on their Web site about which countries their payment system accepts.
    Post by: Clara, May 15, 2018 in forum: Fundraising
  19. Clara
    Thread

    Donate 2-20% of your everyday shopping to ME/CFS non-profits or to yourself! (Benefit Mobile)

    Continuing the momentum after May 12 and in honor of ME/CFS Awareness Month, let's help our researchers and non-profits do their work! Download...
    Thread by: Clara, May 15, 2018, 10 replies, in forum: Fundraising
  20. Clara
    Thread

    Donate up to 5% of your grocery shopping to ME/CFS nonprofits. (eScrip)

    In honor of ME/CFS Awareness Month, here is an easy fundraising action item to donate up to 5% of your grocery shopping to ME/CFS nonprofits at no...
    Thread by: Clara, May 2, 2018, 0 replies, in forum: Fundraising
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