1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Search Results

Search Again
Page 1 of 41
  1. Tom Kindlon
    Thread

    Some items on gaslighting

    Somebody with ME sent me this list of resources that they put together re Gaslighting. They said I could share it. I haven't looked at them...
    Thread by: Tom Kindlon, Apr 18, 2024 at 2:23 PM, 5 replies, in forum: Resources
  2. Tom Kindlon
    Post

    International: Science for ME social media posts

    Bluesky: https://bsky.app/profile/tomkindlon.bsky.social/post/3kq3nbgd76u2s Threads: https://www.threads.net/@tomkindlon/post/C5vYSFKMqej/
    Post by: Tom Kindlon, Apr 14, 2024 in forum: Advocacy Projects and Campaigns
  3. Tom Kindlon
    Post

    Tom Kindlon nominated for an honorary degree at Trinity College Dublin

    Just a somewhat belated thank you for all the nice messages that forum members have posted to this thread. And with regard to the people who...
    Post by: Tom Kindlon, Apr 2, 2024 in forum: Advocacy Projects and Campaigns
  4. Tom Kindlon
    Post

    International: Science for ME social media posts

    Bluesky: https://bsky.app/profile/tomkindlon.bsky.social/post/3koyiv2atao2k Threads: https://www.threads.net/@tomkindlon/post/C5LZQiSMlS3/
    Post by: Tom Kindlon, Mar 31, 2024 in forum: Advocacy Projects and Campaigns
  5. Tom Kindlon
    Post

    CDC Multi-site Study: Heterogeneity in ME/CFS Illness Measures Not Explained by Clinical Practice, 2024, Unger et al

    The #CFS empirical case criteria (Reeves et al., 2005) are a weird operationalisation of the Fukuda criteria. I campaigned against them...
    Post by: Tom Kindlon, Mar 22, 2024 in forum: ME/CFS research
  6. Tom Kindlon
    Post

    Comparison of Diagnostic Criteria - discussion thread

    The #CFS empirical case criteria (Reeves et al., 2005) are a weird operationalisation of the Fukuda criteria. I campaigned against them...
    Post by: Tom Kindlon, Mar 22, 2024 in forum: Diagnostic Criteria and Naming Discussions
  7. Tom Kindlon
    Post

    News from Australia

    No, that's a separate paper though maybe on the same cohort. That paper relates to the results of 12 weeks.
    Post by: Tom Kindlon, Mar 16, 2024 in forum: Regional news
  8. Tom Kindlon
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Michael Sharpe’s treatment approach, graded activity-oriented CBT, doesn’t pay attention to patients’ fears & emotions. It’s a one-dimensional...
    Post by: Tom Kindlon, Mar 15, 2024 in forum: General ME/CFS news
  9. Tom Kindlon
    Post

    News from Australia

    For what it is worth, I have been sharing this on social media: Press release that is getting a lot of coverage: #LongCOVID ‘indistinguishable’...
    Post by: Tom Kindlon, Mar 15, 2024 in forum: Regional news
  10. Tom Kindlon
    Post

    International: Science for ME social media posts

    Bluesky: https://bsky.app/profile/tomkindlon.bsky.social/post/3kndrvzl4ia2r Threads: https://www.threads.net/@tomkindlon/post/C4VafWnMwV3/
    Post by: Tom Kindlon, Mar 10, 2024 in forum: Advocacy Projects and Campaigns
  11. Tom Kindlon
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Submit comments on NIH paper here: https://www.nature.com/articles/s41467-024-45107-3#article-comments I'd recommend being polite. Better again if...
    Post by: Tom Kindlon, Feb 21, 2024 in forum: ME/CFS research
  12. Tom Kindlon
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Very disappointing: $8M NIH study used some of the very broad and inappropriate thresholds* that are part of the Reeves et al (2005) criteria that...
    Post by: Tom Kindlon, Feb 21, 2024 in forum: ME/CFS research
  13. Tom Kindlon
    Post

    Works of fiction where characters have ME/CFS

    The author, who has ME/CFS, sent me the following link to highlight his new book where one of the main characters has ME/CFS and fibromyalgia. I...
    Post by: Tom Kindlon, Feb 7, 2024 in forum: General ME/CFS discussion
  14. Tom Kindlon
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    No problem at all. There are always new people come along anyway who may not be aware of my page.
    Post by: Tom Kindlon, Jan 22, 2024 in forum: Recruitment into current ME/CFS research studies
  15. Tom Kindlon
    Post

    Open Identifying the immunological signatures associated with post-acute COVID-19 syndrome [and ME/CFS], 2023, Iwasaki and Putrino

    Very useful information. I have now highlighted that on Twitter, Facebook, Tumblr, Bluesky, Mastodon, Instagram and Threads. (Did the Twitter...
    Post by: Tom Kindlon, Jan 22, 2024 in forum: Recruitment into current ME/CFS research studies
  16. Tom Kindlon
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Initially I had just shared a DecodeME post with the comment. But the information about the 3900 kits could get removed if re-shared so have now...
    Post by: Tom Kindlon, Jan 22, 2024 in forum: Recruitment into current ME/CFS research studies
  17. Tom Kindlon
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Useful to have that figure. I’ve just shared that on Twitter, Mastodon, Bluesky, Threads, Facebook and Instagram.
    Post by: Tom Kindlon, Jan 22, 2024 in forum: Recruitment into current ME/CFS research studies
  18. Tom Kindlon
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I've just shared this to a number of my social media channels: Attention: just 2 weeks left to return your spit kit. A few months ago there...
    Post by: Tom Kindlon, Jan 17, 2024 in forum: Recruitment into current ME/CFS research studies
  19. Tom Kindlon
    Post

    Trial Report Cost-Effectiveness of Online CBT for Children with CFS/ME Compared to Online Activity Management: FITNET-NHS Trial Findings, 2023, Crawley

    I suggested that in this post on Twitter/X 21k views and 22 hours later no one has corrected that view. ETA: I have just seen we sort of...
    Post by: Tom Kindlon, Dec 27, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Tom Kindlon
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    Donated
    Post by: Tom Kindlon, Nov 24, 2023 in forum: Fundraising
Showing results 1 to 20 of 801 Next >
Search Again
Page 1 of 41