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  1. Sue
    Post

    Pseudobulbar affect anyone?

    This is a ridiculous price. You could make your own. Dxm is over the counter and quinine is easy enough to get . Alka Seltzer Gold worked wonders....
    Post by: Sue, Jan 21, 2019 in forum: Neurological/cognitive/vision
  2. Sue
    Post

    Firefighters Worried Dirty Gear May Be Causing Cancer - Video - NBC10 Philadelphia (2018)

    The uniforms should be cleaned ASAP. All the high talk of about hero’s and they are not given protection. In my personal me/ fibromyalgia...
    Post by: Sue, Dec 27, 2018 in forum: Other health news and research
  3. Sue
    Post

    He Got Schizophrenia. He Got Cancer. And Then He Got Cured.

    When I was at my most ill. I always felt much better with a cold. I also would give myself poison ivy on purpose . This greatly alleviated my cfs...
    Post by: Sue, Oct 3, 2018 in forum: Other health news and research
  4. Sue
    Post

    Annie Hoppers Dynamic Neural Retraining System

    Still doing Dynamic Retraining. I actually stopped it for about a few weeks but felt myself slipping. At the back of my mind I felt like a jackass...
    Post by: Sue, Oct 2, 2018 in forum: Other treatments
  5. Sue
    Post

    Annie Hoppers Dynamic Neural Retraining System

    I will admit I am practicing Dynamic Neural Retraining. That said I had improved about 80% prior to when I started the program last week. I would...
    Post by: Sue, Jul 30, 2018 in forum: Other treatments
  6. Sue
    Post

    Mental health awareness week includes neurological conditions?

    My mother suffered from epilepsy. (1950’s) She was taken to a doctor that treated mainly psychological illnesses. Her cousin talked her into going...
    Post by: Sue, May 15, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  7. Sue
    Post

    A famciclovir + celecoxib combination treatment is safe and efficacious in the treatment of fibromyalgia. Pridgen et al, 2017

    Celebrex alone does nothing for me personally for fibromyalgia pain. I would put it with nsaids. Prostaglandin inhibition for myself does nothing...
    Post by: Sue, Jan 23, 2018 in forum: 'Conditions related to ME/CFS' news and research
  8. Sue
    Post

    Bath Fatigue Clinic - example of advice that harms child

    This is truly disgusting. Thank goodness for the Internet. Hopefully will bring pressure and embarrassment to the government’s that allow this .
    Post by: Sue, Jan 23, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  9. Sue
    Post

    A famciclovir + celecoxib combination treatment is safe and efficacious in the treatment of fibromyalgia. Pridgen et al, 2017

    I did valtrex ( very similar to Famvir) and Celebrex . I still pulse this if fibromyalgia acts up. This combo greatly decreased my fibromyalgia...
    Post by: Sue, Jan 23, 2018 in forum: 'Conditions related to ME/CFS' news and research
  10. Sue
    Post

    Positive and negative affect mediate the ... relationship between emotional processing and symptom severity ... in IBS, 2018, Moss-Morris et al.

    My “ ibs” went into a brief remission after Xiafaxamin. It came back. After leaving my moldy house and possessions behind I no longer have “ ibs”...
    Post by: Sue, Dec 28, 2017 in forum: Other psychosomatic news and research
  11. Sue
    Post

    Prognosis of ME/CFS – by David S. Bell, MD

    I agree Webdog according to medicine my health is good even though I am disabled. Mermaid I do not accept this either. I will do anything that...
    Post by: Sue, Dec 27, 2017 in forum: General ME/CFS news
  12. Sue
    Post

    Environmental Exposures as a Potential Underlying Factor in Chronic Fatigue Syndrome; a Case Report (2017) Arseneau et al.

    Ugh! We need good unbiased studies. True mold/ chemical avoidance is very unprofitable. I did try to go to doctors and they are willing to “...
    Post by: Sue, Dec 27, 2017 in forum: ME/CFS research
  13. Sue
    Post

    Article, "Dear worried well, the internet is not your friend"

    I worked as a community pharmacist and often was the unofficial triage. I had no diagnostic training and did not feel comfortable in this role but...
    Post by: Sue, Dec 26, 2017 in forum: Other health news and research
  14. Sue
    Post

    Environmental Exposures as a Potential Underlying Factor in Chronic Fatigue Syndrome; a Case Report (2017) Arseneau et al.

    My experience is just that my individual experience. There is a lot of bs posing as “ science.”
    Post by: Sue, Dec 26, 2017 in forum: ME/CFS research
  15. Sue
    Post

    Environmental Exposures as a Potential Underlying Factor in Chronic Fatigue Syndrome; a Case Report (2017) Arseneau et al.

    I hope more research is done on this topic. Or at the very least more awareness. I improved greatly by doing a “ mold “ sabbatical as discussed...
    Post by: Sue, Dec 26, 2017 in forum: ME/CFS research
  16. Sue
    Post

    Does anyone else get IBS as part of a crash?

    Same here. When I was at my worst with this illness my “ ibs” was off the charts.
    Post by: Sue, Dec 24, 2017 in forum: Gastrointestinal and Urinary
  17. Sue
    Post

    Zoster sine herpete - Shingles without a rash. Familiar to anyone?

    I pulse with valcyclovir 500mg twice a day and celexicob ( Celebrex) 200mg twice a day. I had high IGG titer s for Epstein Barr . I never had any...
    Post by: Sue, Dec 18, 2017 in forum: Infections: Lyme, Candida, EBV ...
  18. Sue
    Post

    Jennifer Brea interviewed on Dr Oz Show December 18, 2017

    This sounds terrific. Taking it to the masses.
    Post by: Sue, Dec 18, 2017 in forum: General ME/CFS news
  19. Sue
    Post

    Pseudobulbar affect anyone?

    Justy I am very sorry . This can be horrible and is very Embarrassing. You are not alone. I had similar episodes. I don’t think mine were true...
    Post by: Sue, Dec 14, 2017 in forum: Neurological/cognitive/vision
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