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  1. cyclamen
    Post

    Question: Coronavirus & home sewn masks?

    I have used the free pattern of https://diymask.site/ for women and men. They are very similar to the pattern Keela Too is using and fit...
    Post by: cyclamen, Mar 25, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  2. cyclamen
    Post

    Domestic abuse survivors twice at risk of long-term illnesses

    Beeing a victim of domestic violence is damaging your body. How dangerous concussions can be for longterm health is only known recently in rugby...
    Post by: cyclamen, Dec 8, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  3. cyclamen
    Post

    Jen Brea: My ME is in remission

    Regarding age, Milo, you may be right. I know several people with POTS or ME with POTS, which had the onset after head/neck accidents, neck...
    Post by: cyclamen, May 22, 2019 in forum: General ME/CFS news
  4. cyclamen
    Post

    Jen Brea: My ME is in remission

    Hi Milo For example whiplash after accidents is more common in women compared to men. And it is known (only now?) that the female neck is less...
    Post by: cyclamen, May 22, 2019 in forum: General ME/CFS news
  5. cyclamen
    Post

    ME/CFS contributions at Royal College of Paediatrics and Child Health conference, May 2019

    There is one more: G616(P) When symptoms dictate a young person’s life – and the importance of building trust and team work in rehabilitation of...
    Post by: cyclamen, May 18, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. cyclamen
    Post

    Phase III Rituximab Trial - News

    Good morning, it is on this DVD: https://www.fatigatio.de/shop/?tx_browser_pi1[showUid]=70&cHash=55cc5dbd22
    Post by: cyclamen, Jan 5, 2019 in forum: ME/CFS research news
  7. cyclamen
    Post

    Phase III Rituximab Trial - News

    I do not know if what Dr. Scheibenbogen said is the truth or a misunderstanding. It is just what she said in a recorded video talk and probably...
    Post by: cyclamen, Jan 4, 2019 in forum: ME/CFS research news
  8. cyclamen
    Post

    Phase III Rituximab Trial - News

    I saw now the reason for it. Dr. Scheibenbogen said in a video taped talk last summer, the dosing of Rituximab had to be halved compared to the...
    Post by: cyclamen, Jan 3, 2019 in forum: ME/CFS research news
  9. cyclamen
    Post

    Home-based family focused rehabilitation for adolescents with severe Chronic Fatigue Syndrome, 2018, Burgess et al (inc Chalder)

    From the study... „It is important to note that change was not linear. Individual change over time was varied, with some individuals’ fatigue...
    Post by: cyclamen, Aug 19, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. cyclamen
    Post

    CNN: Escape from the Mayo Clinic: Parents break teen out of world-famous hospital

    With under 18 years old this might happen in Germany too. I know personally two persons with POTS/ME/? whose parents lost guardianship after they...
    Post by: cyclamen, Aug 13, 2018 in forum: Other health news and research
  11. cyclamen
    Post

    Phase III Rituximab Trial - News

    Thank you for answering. A rumor between people with ME in a Facebook group. Haven’t you heard it before? I thought so too, but before stepping...
    Post by: cyclamen, Jul 31, 2018 in forum: ME/CFS research news
  12. cyclamen
    Post

    Phase III Rituximab Trial - News

    Hi, I heard a rumor, that the Rituximab trial failed only because they run out of money. So they had to cut the planned doses in half and this is...
    Post by: cyclamen, Jul 31, 2018 in forum: ME/CFS research news
  13. cyclamen
    Post

    Medically unexplained syndromes: irritable bowel syndrome, fibromyalgia and chronic fatigue (2018) Luty

    Or this: Psychosomatic comorbidities such as migraine, gastrointestinal disorders, and chronic fatigue syndrome are common in patients with OD....
    Post by: cyclamen, Jun 12, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. cyclamen
    Post

    The ME Show

    :thumbup: Thank You so much for the interview with Jane Colby from TymesTrust. It was so nice to hear her speaking. Until now I was only in...
    Post by: cyclamen, May 29, 2018 in forum: General ME/CFS news
  15. cyclamen
    Post

    Michael Sharpe skewered by @JohntheJack on Twitter

    There is absolutely no doubt about the fact, that in the study CBT or GET had been not beneficial. I definitely don’t like the direction the...
    Post by: cyclamen, Apr 30, 2018 in forum: General ME/CFS news
  16. cyclamen
    Post

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Done - 51%
    Post by: cyclamen, Apr 9, 2018 in forum: General ME/CFS news
  17. cyclamen
    Post

    Boom & Bust, where's the evidence?

    My daughter does not have ME, but POTS. When the symptoms showed their ugly heads, she got told it is just some OI, pretty normal in adolescent...
    Post by: cyclamen, Apr 5, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. cyclamen
    Post

    Improving Wikipedia's references to ME/CFS

    There is a timeline in Wikipedia. You can access it via a button looking like a watch going back in time. It is positioned at the end of the...
    Post by: cyclamen, Feb 15, 2018 in forum: Advocacy Projects and Campaigns
  19. cyclamen
    Post

    New German guideline for ME published today

    Yes they will and they will write a formal complain to AWMV. DEGAM did not put any statement (besides the wrong agreement) from Lost Voices...
    Post by: cyclamen, Feb 3, 2018 in forum: General ME/CFS news
  20. cyclamen
    Post

    New German guideline for ME published today

    I just got into contact with the german „Lost Voices“ because it was statet in the Leitlinienreport, that only the deutsche Gesellschaft für...
    Post by: cyclamen, Feb 3, 2018 in forum: General ME/CFS news
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