1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 8th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Search Results

Search Again
Page 1 of 28
  1. Amw66
    Post

    UK: Open Letter: Urgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.)

    Thank you
    Post by: Amw66, Apr 17, 2024 at 9:05 AM in forum: Open Letters and Replies
  2. Amw66
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    This. Exactly this . A crowd funded group legal challenge for those forced into wheelchairs by GET would be an idea , but do we have enough...
    Post by: Amw66, Apr 17, 2024 at 8:11 AM in forum: News from organisations
  3. Amw66
    Post

    Wellness Recovery Action Plan, as recommended by BACME, UK

    This is the nub of the problem . Nothing is being done to challenge and replace , even with the guidelines change . Harm is being perpetuated ,...
    Post by: Amw66, Apr 17, 2024 at 8:08 AM in forum: Psychosomatic theories and treatments discussions
  4. Amw66
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    There are probably more as noone asks . Discussions here on symptoms flag up different manifestations of various symptoms and at times a...
    Post by: Amw66, Apr 17, 2024 at 7:54 AM in forum: ME/CFS research news
  5. Amw66
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    [MEDIA] Article in The Canary https://www.thecanary.co/uk/analysis/2024/04/16/severe-me-carla-west-middlesex/ What on earth is going on ?
    Post by: Amw66, Apr 17, 2024 at 7:47 AM in forum: General ME/CFS news
  6. Amw66
    Post

    UK: Open Letter: Urgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.)

    [MEDIA]
    Post by: Amw66, Apr 16, 2024 at 10:59 PM in forum: Open Letters and Replies
  7. Amw66
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Sadly I think it will take a court case to establish legal precedent before this gravy train stops
    Post by: Amw66, Apr 16, 2024 at 7:40 AM in forum: News from organisations
  8. Amw66
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    If only ....
    Post by: Amw66, Apr 15, 2024 at 2:20 PM in forum: News from organisations
  9. Amw66
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    They have always travelled . When my daughter failed to improve after 6 months the paediatrician suggested referral to specialist . When queried...
    Post by: Amw66, Apr 15, 2024 at 8:01 AM in forum: News from organisations
  10. Amw66
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    2/ There is already a small informal group that assists in cases such as Millie's and they do brilliant work. However, my proposal would be for an...
    Post by: Amw66, Apr 14, 2024 at 10:05 AM in forum: General ME/CFS news
  11. Amw66
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    [MEDIA]
    Post by: Amw66, Apr 14, 2024 at 7:34 AM in forum: General ME/CFS news
  12. Amw66
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Sadly Decode ME is not looking at family links ( at this point in time ) Given the many instances of it running in families I hope this is...
    Post by: Amw66, Apr 12, 2024 in forum: General ME/CFS news
  13. Amw66
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    UPDATE on Carla. We spoke with the family, supporting them writing a letter to PALS making a formal complaint. The psychiatrist 'treating' Carla...
    Post by: Amw66, Apr 11, 2024 in forum: General ME/CFS news
  14. Amw66
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    That's worth posting on the MEA facebook page
    Post by: Amw66, Apr 11, 2024 in forum: ME/CFS research news
  15. Amw66
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    The real cost of living
    Post by: Amw66, Apr 10, 2024 in forum: ME/CFS research news
  16. Amw66
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    [MEDIA] Forced treatments, sectionings, deaths, assisted suicides: the reality of #MEcfs in the UK in just THREE MONTHS of 2024. People aren't...
    Post by: Amw66, Apr 8, 2024 in forum: General ME/CFS news
  17. Amw66
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    @dave30th
    Post by: Amw66, Apr 8, 2024 in forum: ME/CFS research news
  18. Amw66
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Update on Karen Gordon Petition update Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings. More stress and a...
    Post by: Amw66, Apr 6, 2024 in forum: General ME/CFS news
  19. Amw66
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    We need a legal precedent. Without that this will simply continue . It's galling that this is still the reality. I've had a crap week and am...
    Post by: Amw66, Apr 5, 2024 in forum: General ME/CFS news
  20. Amw66
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    This has all the hallmarks of another great ship that has sailed to a predetermined destination .
    Post by: Amw66, Apr 5, 2024 in forum: ME/CFS research news
Showing results 1 to 20 of 547 Next >
Search Again
Page 1 of 28