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  1. Solstice
    Post

    Mirror: Tory minister demands comedian Ricky Gervais apologises for branding ME sufferers 'lazy' in offensive joke

    None of them would get through the youtube swear-filter though.....
    Post by: Solstice, Apr 15, 2024 at 6:44 AM in forum: General ME/CFS news
  2. Solstice
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I don't know if Walitt does these things on purpose or not. I'm willing to believe that Koroshetz and Nath thought they were giving us what we...
    Post by: Solstice, Apr 10, 2024 in forum: ME/CFS research news
  3. Solstice
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Would've been preferable. The same with other initiatives like it that start on the wrong footing like ME Lines. It's incredibly frustrating to...
    Post by: Solstice, Apr 6, 2024 in forum: ME/CFS research news
  4. Solstice
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    That isn't even a polite way of telling you to get lost :') .
    Post by: Solstice, Apr 5, 2024 in forum: ME/CFS research news
  5. Solstice
    Post

    UniteToFight2024 Long Covid and ME/CFS conference

    Who dat?
    Post by: Solstice, Apr 3, 2024 in forum: ME/CFS research news
  6. Solstice
    Post

    News from Australia

    Can only second this. Very coherent and moving.
    Post by: Solstice, Mar 27, 2024 in forum: Regional news
  7. Solstice
    Post

    News from Australia

    Also goes after the effort preference bullshit propagated by Wallitt.
    Post by: Solstice, Mar 27, 2024 in forum: Regional news
  8. Solstice
    Post

    News from The Netherlands

    That FES organization looks a lot like the Dutch ME Stichting. The one helping out Rosmalen with her MELines project. I couldn't find any other...
    Post by: Solstice, Mar 21, 2024 in forum: Regional news
  9. Solstice
    Post

    News from The Netherlands

    https://fibromyalgie.nl/ found this website. https://www.fesinfo.nl/nieuws/gezondheidsraad-fibromyalgie-verdient-erkenning this apparently is...
    Post by: Solstice, Mar 21, 2024 in forum: Regional news
  10. Solstice
    Post

    News from The Netherlands

    [MEDIA] I've responded to their tweet. Does anyone in here know if FM patients are organized and if so, where? These guidelines have me worried...
    Post by: Solstice, Mar 21, 2024 in forum: Regional news
  11. Solstice
    Post

    News from The Netherlands

    Tramadol and cyclobenzaprine are contraindicated according to the summary because they have side effects and might lead to addiction. I don't know...
    Post by: Solstice, Mar 20, 2024 in forum: Regional news
  12. Solstice
    Post

    News from The Netherlands

    The summary mentions that CSS is the dominant theory in the field. The theory might be able to explain other symptoms as well. The more I read,...
    Post by: Solstice, Mar 20, 2024 in forum: Regional news
  13. Solstice
    Post

    News from The Netherlands

    A sentence later they say that the BPS model is important to be able to provide good care. The Fibromyalgia patients are in for a very rough time...
    Post by: Solstice, Mar 20, 2024 in forum: Regional news
  14. Solstice
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    I think this might track with some of the slides Rob Wüst showed on Dutch TV after exercise. I thought a lot of the muscle cells pooped out after...
    Post by: Solstice, Mar 18, 2024 in forum: ME/CFS research
  15. Solstice
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    I wonder if their posts merit an individual response where possible, or that it's better to look at the bigger picture and go after the flaws in...
    Post by: Solstice, Mar 16, 2024 in forum: General ME/CFS news
  16. Solstice
    Post

    Opinion Appraisal of Clinical Practice Guideline: NICE clinical practice guideline for [ME/CFS]: diagnosis and management, 2024, Sarah Tyson

    Don't call us, we'll call you. *edit* in reaction to Gatchaman's latest quote.
    Post by: Solstice, Mar 15, 2024 in forum: ME/CFS research
  17. Solstice
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    It sorta reminds me of how well prepared the LC people were when it came to getting government funding in the Netherlands. They even went a bit...
    Post by: Solstice, Mar 10, 2024 in forum: ME/CFS research news
  18. Solstice
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Including Nath is only fair. He can hardly claim innocence in this as he's been there for the entire process and dismissed our worries from the...
    Post by: Solstice, Mar 8, 2024 in forum: ME/CFS research news
  19. Solstice
    Post

    Protocol IA-PACS-CFS: a double-blinded, randomized, sham-controlled, exploratory trial of immunoadsorption in CFS including PACS-CFS, 2024, Preßler

    Any knowledgeable patient would've told them using the Chalder scale is bonkers. I wonder if they had any patient input.
    Post by: Solstice, Mar 8, 2024 in forum: ME/CFS research
  20. Solstice
    Post

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    The lexicographer on British gameshow Countdown and on the comedy version of that same show. Also the reason I have a vague understanding of what...
    Post by: Solstice, Mar 8, 2024 in forum: ME/CFS research
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