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  1. Stewart
    Post

    Guardian Article on NICE pause

    This is definitely part of the problem when it comes to the British media. In addition to the emphasis on reporting rather than journalism and...
    Post by: Stewart, Aug 30, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  2. Stewart
    Post

    What we're not being told about ME - UnHerd (Tom Chivers)

    Re-reading Tom's latest article, I was struck by this sentence: "They suggested that the NICE GRADE system was badly designed for complex...
    Post by: Stewart, Aug 26, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  3. Stewart
    Post

    What we're not being told about ME - UnHerd (Tom Chivers)

    Be fair Jonathan - you know how this works. Any time a journalist - investigative or otherwise - publishes an article about ME/CFS which is less...
    Post by: Stewart, Aug 26, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  4. Stewart
    Post

    What we're not being told about ME - UnHerd (Tom Chivers)

    I'm not sure that's fair. He does explicitly say in the final paragraph "I am not endorsing any of what was said above...". I think he feels the...
    Post by: Stewart, Aug 26, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  5. Stewart
    Post

    Harassment claims in the media and social media.

    Michael Hanlon's 2013 Sunday Times article alleged the existence of a specialised unit at Scotland Yard monitoring 'ME extremists' - however in...
    Post by: Stewart, Aug 25, 2021 in forum: General Advocacy Discussions
  6. Stewart
    Post

    History of NICE decision to set up 2020 Committee

    Responding to myself here... I've just gone and refreshed my memory. NICE used to review all their guidance every 3 years. THE ME/CFS guideline...
    Post by: Stewart, Aug 24, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  7. Stewart
    Post

    History of NICE decision to set up 2020 Committee

    I appreciate I'm probably far too late to this thread to be of any use - but my recollection is that the 2017 review started because NICE was...
    Post by: Stewart, Aug 24, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  8. Stewart
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I initially felt very supportive of the way Jen Brea dealt with her treatment and remission but I've become increasingly uncomfortable as the...
    Post by: Stewart, Nov 16, 2019 in forum: ME/CFS research news
  9. Stewart
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Jonathan - for my part I hope you will go on participating in these discussions. You've spoken in the past (and I'm paraphrasing here) about the...
    Post by: Stewart, May 27, 2019 in forum: ME/CFS research news
  10. Stewart
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I do understand that perspective, but as I've said I don't agree with it. I would argue that if an evidenced account flies in the face of our...
    Post by: Stewart, May 27, 2019 in forum: ME/CFS research news
  11. Stewart
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    A large part of the disagreement here seems to be over what it means to share your story responsibly. Michel has explained why he feels Jen...
    Post by: Stewart, May 27, 2019 in forum: ME/CFS research news
  12. Stewart
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    As I understand it - and I should emphasise again that I have no medical background, so I'm very happy to be corrected if I've got the wrong end...
    Post by: Stewart, May 24, 2019 in forum: ME/CFS research news
  13. Stewart
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    As always, I suppose this is going to come down to how scrupulous the doctors involved are. I was very surprised that some doctors were prepared...
    Post by: Stewart, May 24, 2019 in forum: ME/CFS research news
  14. Stewart
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thanks for taking the time to put this together and share it @Michiel Tack. I don't agree with your statement that cervical meduallary syndrome...
    Post by: Stewart, May 23, 2019 in forum: ME/CFS research news
  15. Stewart
    Post

    Jen Brea: My ME is in remission

    Sure. I don't have a comprehensive list of everything I've read and seen, but this should get you started. Here are a couple of overview...
    Post by: Stewart, May 22, 2019 in forum: General ME/CFS news
  16. Stewart
    Post

    Jen Brea: My ME is in remission

    Although I bow to your vastly superior medical knowledge Jonathan, over the last couple of weeks I've watched a few presentations by neurosurgeons...
    Post by: Stewart, May 21, 2019 in forum: General ME/CFS news
  17. Stewart
    Post

    Jen Brea: My ME is in remission

    Jen has certainly written that this was her experience and Jeff also wrote on his website that he experienced something similar. However from...
    Post by: Stewart, May 20, 2019 in forum: General ME/CFS news
  18. Stewart
    Post

    Jen Brea: My ME is in remission

    Trish - can I ask what these lists said the symptoms of CCI and tethered cord were? (I know I asked a similar - but slightly different - question...
    Post by: Stewart, May 20, 2019 in forum: General ME/CFS news
  19. Stewart
    Post

    Jen Brea: My ME is in remission

    I think that's a perfectly understandable response in the circumstances. But at present we don't know what ME actually is - you're diagnosed on...
    Post by: Stewart, May 20, 2019 in forum: General ME/CFS news
  20. Stewart
    Post

    David Tuller: Trial By Error: My Most Recent Exchange with Bristol

    You could also forward your correspondence with Bristol's Legal Team to the HRA, asking them to pass it along to the Chair of the review panel to...
    Post by: Stewart, May 13, 2019 in forum: General ME/CFS news
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